I had an appointment with Dr. E yesterday and I want to share what I learned.
Summary: I've been on medicine for over a year. Currently on Doxy for 10 months (for Lyme) and Levaquin for 2 months (for Bartonella co-infection). I've improved mentally on the Levaquin, had some rashes come and go, and bad pain and stiffness.
Last month when I had the big rashes appear, I took pictures. I brought my camera and showed her but they were hard to see on the camera.
Luckily though, I woke up with a classic Bartonella rash on my right thigh, so I was able to show her in person. She agreed that these rashes are proof of the Bartonella.
Word of warning - I tested negative twice for Bartonella co-infection. My LLMD decided to treat me anyway based on my symptoms and thank God she did. Just FYI for those who suspect co-infections.
I showed her my swollen ankles and she explained that its not water, its lymph.
Apparently we have a lymph system similar to our circulatory system. The lymph system however, has awesome lymphocytes that kill and dispose of bacteria.
Lymph does not get pumped by the heart. It relies on the muscles to squeaze the fluid around.
Since I have been sedentary (even more than before) because of the severe pain, my muscles are not squeazing and not moving the lymph along. Hence my feet are swollen. I may have a pool of dead bacteria in my foot tissue - ewww!
This may also explain why I seemed to get worse lately instead of better.
VERY very interesting. I did a bit of research on lymph and its cool!
She recommended I move every day - walk to the mailbox, walk around the block, or something. She also recommended a rebounder (mini trampoline) to help the lymph move along.
She gave me (or rather sold me) a topical cream to help with the knee and foot pain so that I can move.
She also recommended dry brushing my skin to help the lymph move. She said any dry brush can work. She said to brush my skin upwards towards my groin. I want the lymph to move up and away from my feet.
She said to do the dry brushing before a shower or detox bath.
Also, the foot pads will help with lymph so I bought a 30 day supply.
In addition, she added plaquenil to my protocol. Its not an antibiotic. Its an anti-inflamatory and it should help get my medicine circulating around - especially if I haven't been walking much.
I haven't put together the rebounder yet. I was too tired last night to carry it in from my truck and one of my cats killed a squirrel and left it for me. I didn't feel like walking past it (stinky!) again.
I tried the cream on my feet and it seemed to work. I hope it works on my knees; sitting on the john to pee is so painful! LOL
whew - lots of info. Good appointment.
She's off next week on a cruise with her family and they sure deserve it - so bon voyage Dr E and thank you.
Peace and health to all!