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Old 08-21-2006, 12:12 PM   #1
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Join Date: Oct 2004
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LMHART HB User
cotton wool-eyes

Hi everyone,
Just returned from eye specialist because I have been having increased floaters and eye pain times 1 week. He said that he sees cotton wool exudates and did a 1 hour stain test and angiogram. I will get the results next week. States this is called Retinal vasculitis or retinal vascular disease with nerve involvement. I will hear next week what to do about it.
I have Lupus and am in the works to get tested for Lyme with IGenex (waiting for ins to approve). The lyme may be the infectious source causing Lupus! The interesting thing is that this specialist is the first doc in US to diagnose "Lyme eye". He said that my eyes look like either Lupus or Lyme.
Anyone with Lyme have the same eye problem?
Leslie

Last edited by LMHART; 08-24-2006 at 05:52 AM.

 
Old 08-21-2006, 01:16 PM   #2
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Join Date: Jun 2005
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Roman77 HB User
Re: cotton wool-eyes

hi leslie. first let me say i'm glad to hear that your doc is really on top of things, that is such a nice feeling to have i'm sure. i'm very surprised to hear that he was the first to diagnose lyme eye, i'm impressed. wish the first docs i'd seen were that with it.

anyway i just wanted to say that yeah, i have all of the eye stuff. that's how most of my lyme stuff started. i lost vision in both eyes one morning about 2 years ago, prior to that i'd had pink eye month after month for 5 months (never had had it in my life till then!)...and docs said it was a bought of optic neuritis which led them to think ms. but it was lymes. and now i have tons of clear and also black/dark floaters, specks. they are always dry and crusty like and very itchy. plus looking out of my eyes is like looking through a staticy tv screen and it jiggles all around on me. very unreliable and filled with double images sometimes and flashes of light. not to mention the photophobia. yet for any of my docs that i have seen for my eyes, they cannot "see" anything physically wrong. at this point my llmd believes that much of this is from the severely high levels of toxins in my body and also from the current lyme as well, plus due to the lesion in my brain from the lyme.

so yeah you're not alone. i hope if you have lyme too that after treatment you will see dramatic improvements in your health and with your lupus. keep us posted on your test results.

shanna
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"Be joyful in hope, patient in affliction, and faithful in prayer." - Romans 12:12

 
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Old 08-21-2006, 01:33 PM   #3
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Join Date: Jan 2006
Location: AR
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cind68 HB User
Re: cotton wool-eyes

You might want to read my other post on dry eyes. Yes, I have always had lots of eye pain and the floaters? I honestly thought my entire life EVERYONE had them. I used them as entertainment in school finding one and following it around....just trying to focus on one. Simple amusements.

For what it's worth I was also diagnosed with Lupus prior to LD and fit all the tests, etc. I suppose I could say I have Lupus (and numerous other diseases I fit as well) but I personally believe the root of these to be Borrelia in one form or another.

cindy

 
Old 08-23-2006, 01:52 PM   #4
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Join Date: Oct 2004
Posts: 167
LMHART HB User
Re: cotton wool-eyes

Hi there,
So sorry to hear that you guys have eye involvement. That's pretty tough to deal with. I was lucky to get a good doc right away.
I went to an infectious disease doctor who was really nice and I think she thinks I am crazy and pulling at strings. She is going to research things and give me her opinion. She seemed really smart, but I don't think that she has too much faith in LD with a negative Elisa test. She said it should be reliable (and the lab should be OK). So, I will see what happens.
I will read other posts from you guys and absorb as much info as possible. Thanks so much, it's nice to hear I am not alone with this scary eye stuff.
Leslie

 
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