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Old 08-29-2006, 06:48 PM   #1
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Tmj vs. lyme

Tmj vs. lyme disease?....thats where im stuck at. Both disease/problems are hard to diagnose. I have a horrible left ear/jaw pain. And my ear pops everytime i swallow. ORtho says i have symptoms of tmj and wanted to put me on a 1400 dollar splint. screw that lol. Its not gaurneted it'd even work. At this point i'd rather have surugy and just correct it. But then again i still have all the lyme symptoms and was bitin by ticks. I was bite by a tick and my jaw popped really bad before all these sypmtoms started. . So maybe i have both on top of each other.... but im going to a interals/infectious disease specialist soon. SO hopefully i'll find out more.

 
Old 08-30-2006, 10:39 AM   #2
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Re: Tmj vs. lyme

I also had strange symptoms that could have indicated more than one diagnosis.

I have complete loss of my balance mechanism in both my left and right ear (horrible way to live).

I saw many different doctors ... infectious disease doctor and ear specialists and nuerologists - I wouldn't say it was a waste of my time because I learned a lot, but it brought me no closer to a diagnosis and more importantly - treatment.

Only after I saw a Lyme Literate Medical Doctor (LLMD) and had my blood tested at Igenex labs did I begin treatment and now I feel much better than last year.

Hang in there. It stinks that there are no easy answers or a big neon sign that reads "You have TMJ" or "You have Lyme".

It may be worth getting tested for Lyme at Igenex, if only to rule it out.

Good luck!

Last edited by 6Blues; 08-30-2006 at 10:40 AM.

 
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Old 08-30-2006, 10:42 AM   #3
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Re: Tmj vs. lyme

hi eclipse...just wanted to say that i have had horrible horrible jaw pain and popping and swelling on both sides for the last year. i wear a mouth guard at night and sometimes during the day when it's really bad. it helps somewhat, but i am hoping that this will disappear when the lymes is finally gone. it started up about 3 months after i beagn getting sick and symptoms were getting worse. so i don't know if you both or just lymes, but i hope you can find something that helps with the pain in the meantime. it definitely is hard to have so much hurting and going on and not knowing if there are other causes other then the lyme. wish you luck.

shanna
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"Be joyful in hope, patient in affliction, and faithful in prayer." - Romans 12:12

 
Old 08-30-2006, 04:11 PM   #4
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Re: Tmj vs. lyme

Hi, I too have very bad jaw/TMJ pain. Before I was diagnosed I went to 7 dentists - 3 specialized in TMJ and face pain. I have worn bite splints, etc. and have paid big bucks for them (in the thousands!).

After 10 1/2 weeks of antibiotics I still have TMJ problems. My back teeth also hurt on one side and the roof of my mouth is numb and painful. The bite splints did not help at all. I am hoping this goes away over time. I think TMJ from Lyme is different than regular TMJ. My LLMD thinks I just need to detox more - because symptoms are a result of my body not getting rid of the dead bacteria (YUCK!). I just bought an Infrared Sauna and hope this will help.

I feel for you - because I am in the same boat.

Sue SROCC20655

 
Old 08-30-2006, 04:22 PM   #5
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Re: Tmj vs. lyme

My tmj has been bad for years, but has gotten worse in the last couple days. To the point my left ear hurts and my left side bottom teeth hurt. I agree that lyme tmj is different from tmj. Hope you get some relief.

Prayers...Marsha

 
Old 08-30-2006, 05:08 PM   #6
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Re: Tmj vs. lyme

This is so hard to deal with. I can't do anything at all and its twearing me up grr. Im not getting anywhere with teh drs. thats whats scarying me. Just keep me in your prayers and thanks for all the help. I've been wairing a 20 dollar mouth gaurd from right aid. Its suppose to help tmj. I really think its deeper then that. And im afraid i need surgury. But im worried about the lyme disease. What if i have both. grr.

 
Old 08-30-2006, 07:37 PM   #7
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Re: Tmj vs. lyme

I wore a cheap mouth guard that you molded to fit your teeth in boiling water. I tried it for months. It didn't help. If it gets bad enough, I take a couple tylenol. Can't take pain meds. I hope the mouth guard works for you. I even talked to my dentist. He told me to stay away from meats that required alot of chewing. No gum. Not to open my mouth wide. You might try and let me know if anything helps.
Prayers...Marsha

 
Old 08-30-2006, 07:46 PM   #8
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Re: Tmj vs. lyme

I had TMJ arise pretty much right at the same time as the Lyme.

I have come to the conclusion that the TMJ joint is susceptible to Lyme.

So- what are you going to do about it? Nothing? Come on.

I would not treat the TMJ with surgery until you have a handle on the Lyme.

Start with the Lyme. Go at it man. Give it everything you have.

I suggest reading, if you haven't yet, the Salt-c testimonials and the Lyme and rife testimonials. These people climbed out of the ditch. I don't see why you can't too.

 
Old 08-30-2006, 07:52 PM   #9
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Re: Tmj vs. lyme

Hi Everyone....just want you all to know that as you get on with your treatment it will go away...I was told I didn't have lyme...YOU ALL KNOW THE STORY...and I knew when I got bit and when I got sick... I wound up having TMJ soooo bad...and my teeth were loose...my gums were bloody...AND I FLOSSED!!! I had beautiful teeth...I also ground my teeth REALLY BAD...well I have been treated now for ummm...6 years with a year break and now doing the Dr. J's tinctures...My TMJ left along time ago...actually forgot all about it...My thyroid is back to NORMAL......and I just started wearing a night guard beings the dentist i go to things I still grind my teeth...I don'tknow I am asleep...hehehe...no more bleeding gums...my teeth are all tight again...Just still working on the swelling on my head...things really do start going away...geezzzz....I reemeber years ago when they wanted to fuse the vertabreaes in my neck and back.... I hardly have to go to the chiropractor anymore......there is hope....
REALLY THERE IS!!

Eclipse remember to go over the symptoms of lyme...it might help you in knowing what to expect....might save you from going to 100 doctors too....

HUGS AND FAST HEALING TO YOU ALL!!!

 
Old 09-02-2006, 12:01 PM   #10
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Re: Tmj vs. lyme

Jojo, Thanks for the encouragement. It is hard to believe that my TMHJ/mouth/neck will ever be the same. They were my first symptoms and seem to be the last to go.

I think that I have nerve problems. The trigeminal nerve is near the TMJ - it affects the roof of my mouth and my tongue. The left side of both gets numb and tingly - like pins and needles. It must be Lyme because I went to 7dentists and all they could tell me was I had TMJ. Amazing how it came on overnight! This surely is a hellish disease. My symptoms are so weird I can't even find words to describe them sometimes.

Thanks everyone for being there. Since I live in Michigan I don't know anyone that has Lyme here and no one really understands unless you've been there.

Hugs.

 
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