Senior Veteran (female)
Join Date: Jan 2002
Re: Opinions needed..
Hi JENZEY, welcome to the board!
Below is a Lyme disease symptom list. You can have any combination of symptoms.
Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol
Besides Lyme disease, ticks can also transmit several serious co-infections: Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected, and it may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. To me, your symptoms sound like they may be from Lyme, Babesiosis, and/or Bartonella.
It is very important to see a knowledgeable doctor. Many doctors do not understand tick-borne illnesses and under treat them. You have symptoms and a positive test. You need to be treated and tested for the co-infections. I know of two Lyme doctors in NJ: in Jackson and West Caldwell. Would you like one of their names?
It is also important to learn as much as possible. I recommend reading "Everything You Need To Know About Lyme Disease (2nd edition)" by Karen Vanderhoof-Forschner and Dr. Joseph Burrascano's treatment guidelines. He is one of the top Lyme doctors in the country and many Lyme doctors follow his treatment protocols.
Hang in there okay? With proper treatment, you can get better.