So....here I am again. I have been out of work since the beginning of July....it is now September 11.
Initially when I was taken off work I was very lathergic, severe headaches, neck aches, and back pains. I would wake up with severe pains in my ears (the cartelidge)...so bad that I didn't want to pick my head up off the pillow for I was afraid they would fall off. Sick to my stomache, didn't want to eat. Lost weight.....and looked "green" as my boss stated.
Being as how I remembered these symptoms from my first "relapse" I knew what it was. I went my MD and he put me on muscle relaxers, pain killers, something for the nasua, and anti-biotics. After I finished the anti-biotics I went back to my MD and guess what....I had a fever. Couldn't believe it! How could I when I just finished 2 weeks of anti-biotics??? I continued to lose weight.
When I was first put on my medical leave of absense I could still do what I love...and that was play with my kids a little at a time, and do interviews for a magazine that I work for.....however...now....I only enjoy my children. I dont even want to do what I love anymore.
I am unable to drive....because I am disoriented even when Im not on my medication. I tried to drive the other day and wrecked my car. I was not on any medication at the time. Just misjudged....and on top of that....I couldn't even figure out my north, south, east, and west. I was irritated and confused because I didn't know where I was going. I felt like a stranger in a place so familiar to me.
So I finally got into see the Rumatologist (spelling...sorry) and he took blood to check my auto immune system...whatever that is.
Then today I went to see the oh so wonderful IDS. What a waste of trip that was...oh, and money too. He tells me there is no such thing as chronic Lyme and that the "bars" on the Lyme's test do not detect how active the Lyme's is. He also did not take blood to even check, said that it wasn't necessary. All he did was tell me to go back to my regular MD and have him refer me to a Neurologist. He stated he wont treat me unless the Neurologist states I have "inflamation around the brain" which would be meningitis.
This is my second time to an IDS and neither time has been of any help at all. My regular MD's treat me better than these IDS do.
Im frusterated as can be....however, I have come to a conclusion.....
With other health issues, such as cancer...the treatment is text book.....go thru surgery, chemo, medications....etc....
However, with us as well as MS patients there is no text book answer. There is no treatment....and we continue to get tossed from one DR to another.
I just want to throw up my hands and say I give up!!! However, when I look into those beautiful eyes of my children I know I can't.
Of the symptoms I have:
Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Sexual dysfunction or loss of libido
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
History of a heart murmur and valve prolapse
Joint pain or swelling
Stiffness of the neck and back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness,
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Mood swings, irritability
Disturbed sleep-too much, too little, early awakening