new diagnosis - Lyme Disease Message Board

brid · 10-04-2006, 04:45 PM

hi everybody... i had just been diagnose this morning with lupus, i had last week at ana positive test, and saw the best reumatologist ehre, and he said my ind test was never lyme...both diseases can be confusing, and showed him pictures of my rash and said defenitely is the one you get when lupus is attacking you.... so he diagnose , in spanish, dont know the name in english, eritema , lupus eritema s and sindrome antifosfolipido...actually my great general doctor who travell to the llmd with me to new york, agree with that, so i guess tomorrow i will be starting with inmuno suppresor, with antimalarian and aspirin, at least he didit give me corticoides, he said no need now, which is relieving..i have see peolple having lyme and lupus...so peolple with lyme and lupus still take antisuppresors?i guess my history of pleuritis is more likely to lupus than lyme... anybody who have try those medicines, please, some comments, i am a little scare...big hug to all of you

Pearlscale · 10-04-2006, 06:04 PM

Brid
Big hug to you and lots of prayers....Marsha

sleeperwoken · 10-04-2006, 06:50 PM

Hi brid, I'm sorry I don't know much about lupus or those drugs they are going to put you on. I hope you get better after taking them though. So they are saying you never had lyme after all? You have been through so much, brid, I hope this is the beginning of getting some relief.

I will be thinking of you and saying a prayer for you too. Don't be scared, everything is the same as it was yesterday only now you have more information. So you are moving forward. Hang in there, it will get better!

6Blues · 10-04-2006, 07:19 PM

Aw sweetie - it does sound scary. I'd be afraid too if I heard all that.

Sleeper is right - tomorrow you are the same person, except now you more information that may improve your health.

Who knows? Maybe the test was accurate and you do indeed have Lupus and the medicine will work for you? I pray that is the case. I have heard that Lupus and Lyme can have similar symptoms.

You are in good hands. I will pray that peace and health come your way!

Hang in there and try not to worry.

brid · 10-04-2006, 07:33 PM

hi girls, yes it sounds scary, scary of so much...when i saw the doctor he was really convince, and a lot of peolple say he is very good.. he is older and a proffesor..but still scare of new drugs, new disease... etc...so tired of all... tomorow i will start the medicne and see the side efects ..hope i dont have many...my poor stomach..yes, simptoms are very similar...but i guess maybe it sond more lupus cause my big rash didnt have really a ring in the middle and i had like 4...also the pleuritis thing that lyme doesnt have..but believe, same symtoms, i am sooo tired,,low fevers again, so much leg pain..so hopefully this time i really improve, i though i had improve with the doxy, maybe was my idea, maybe i got use to feeling like that... who now...but thank you for your words, even i have lupus and not lyme, i will still be in touch with all of you... big hugs to all