Hi Linnyloo and Pat Sr. Happy new year to you both.
I have pain in my legs and feet.
I began treatment for Lyme in January 2005. I tried many different antibiotics and I did not have any pain at all.
My LLMD suspected I had a co-infection so she switched me to Levaquin in April 2006, which is sometimes given to combat Bartonella.
Wow! The pain hit almost immediately after I began taking it.
I have been taking Levaquin for 8 months now and I have pain all the time. Once in a blue moon it won't be that bad, and there are rare moments when it's not there, but mostly it's ouch ouch ouch all the time.
What I believe is that the Levaquin found the Bartonella and is killing it. The die off of these nasty bacteria is causing the pain. The Levaquin could also be killing the Lyme. It's a broad spectrum drug - so it could be killing all sorts of nasty things inside me.
I try to remind myself that my pain is proof that my medicine is working.
I love Levaquin. My brain fog is 90% gone and I feel much better than I did last year. I choose to live with the pain, hoping that when all the critters are dead and gone, I will be pain free.
On a scale of one to ten, my pain ranges from two to seven.
I feel as if there are razor blades sticking into the bottoms of my feet. It's difficult to describe, but I feel as if my feet will split open when I take steps. It's not muscular, it's not bone pain, it just "tissue" pain I guess.
I also have leg pain but it's hard for me to pinpoint exactly where it hurts - it's not just my knees, or just my backside, etc .... it's all over achiness in my legs that makes me groan when I stand, walk or sit.
When it's bad, I walk with a frankenstein shuffle so I don't bend the bottoms of my feet. I get a lot of funny looks from strangers.
I have tried detox baths and foot baths and creams but I have not felt any relief from these. Others here have good results though. There are detox foot pads that may be worth trying. There are also naturopathic doctors and/or therapists (healers) who can do raindrop therapy using essential oils along the body's meridian lines. I've heard that accupuncture can also help with pain management.
I do take pain pills, tylenol with codeine. I do not take them while I am working. I can't afford to feel anymore "dopey" than I normally do. The pain pill does take the edge off but it only lasts two hours.
I am so sorry to hear that you both live with Lyme and how sick hubby is. Your desription of his sufffering sounds a bit different than what I experience. I have no trouble with my calves whatsoever.
My apologies if you've told us before, but ... do you both see a Lyme Literate Medical Doctor (LLMD)? Are you under treatment? Were you tested/treated for co-infections? Do you perform any detox?
I wish I could offer some sage advice or a cure for his pain.
I will send up a prayer for you both to get some relief. It's awful enough to live with Lyme but his pain sounds unbearable.
Peace and health to all,