Lyme doctor in Fort Wayne, Indiana area? - Lyme Disease Message Board

alwayshotroddin · 01-05-2007, 06:08 AM

I'm looking for a Lyme Literate Medical Doctor (LLMD) in the Fort Wayne, Indiana area. I would greatly appreciate any help if you know of one or know how to find one! Thanks!

ncgirl88 · 01-05-2007, 03:07 PM

I think the closest one you will find is in Missouri. His name starts with a 'C'.

If you can look up a Lyme Support Group in Missouri and contact them as them for this doctor's name.

As well, while it is expensive and time consuming many people are forced to travel far distances to get proper treatment. Many find to get the aggressive treatment they need they have to travel.

I am sorry but with the politics the way they are with LLMDs being investigated by medical boards I prefer not listing his name in full.

Keep us posted on your progress. I hope you find a doctor soon. I am sorry I am so cryptic but my LLMD has been persecuted by our medical board and it has really colored how much info. I post these days.

lymesgal · 01-05-2007, 05:54 PM

Hi there alwayshotroddin! I just wanted to say hi and good luck with finding an LLMD near you. Do you suspect that you have lyme? Are you sick or do you know of someone who may have it? I am from Indiana but have lived in Massachusetts for about 5 yrs. now. I have chronic lyme disease, diagnosed about a year or so ago but I honestly think I got it when I lived in Indiana. I am from southern Indiana but lived in Indy for the last 2 yrs. before moving here. My problems started about a year or so before I moved here, had no idea what was wrong, and went to dr. after dr. after dr. to no avail. Finally, as I got sicker and sicker, I found an LLMD that finally confirmed that I had lyme disease and at this point I am late stage. At first I thought for sure I got lyme living here in MA, where lyme dis. is so prevalant, but as I went back over my history with my dr., I realized I 'think' I got it while living in IN. I was always in the woods, lived in the country, etc. I know of so many people in IN diagnosed with MS or lupis and I really think they have no idea of how much lyme dis. there really is in IN--I just wonder how many people actually have lyme instead? I really hope that you find a true LLMD cause that is the one and only way you will probably get the help you need. It is so important to find that doctor near you, wherever he may be. Do some research because you will find one! Wishing you well!
Lymesgal

p.s. I just found your history, so I kind of know now what is going on with you...sorry, I hadn't found that thread before I read this one--I saw IN and clicked on it because it said Indiana! anyways, I have the opposite problem of you, I have really high blood pressure, didn't have it before the lyme so I don't know if it is related....but your symptoms sound so much like mine, the acid reflux is horrible! My doc says that that happens usually in late stage lyme. I take prilosec or Nexium, nothing else will work for me, so if you don't have good luck with the prevacid, or whatever you are taking, try the prilosec, you'll be amazed at how well it works! good luck to you!

alwayshotroddin · 01-05-2007, 07:27 PM

Hi guys,

Thanks for all the encouragement!! I actually found a couple of LLMDs in central Michigan (Grand Rapids and Saginaw) by going to lymedisease.org. I'm not sure how accurate it is but I suppose it wouldn't hurt to call them. I won't know anything for several weeks because my doctor is going to draw blood and send it out (to the lab in California I think) and it takes awhile to come back.

Lymesgal if I do in fact have Lyme disease I actually do not know if I would have contracted it from Indiana, Michigan, or even possibly South Carolina? I spent most of my summer up in Central Michigan (Grayling) and lived in a cabin along the river in the woods. My boyfriend swears there are no deer ticks in that area but my best friend has Lymes and said you can contract the disease from other vectors, such as mosquitos.

The only thing holding me back from thinking I don't have Lymes is that I do not have achy joints. My back and neck get stiff from time to time but I lift weights and run and have a bad habit of not stretching properly and working out too hard (I hope no fitness trainers read this lol). My symptoms could be from sooo many things that it is going to probably take a long time to rule out what is wrong with me. Not only that but they come and go. Today was actually a better day for me. My anxiety and acid reflux were much better. I still feel real fatigued, have a headache, and feel dizzy all the time but it's nice to have some relief from other symptoms for once! I also get these weird muscle twitches in random parts of my body... yesterday it was in my right arm, today in my neck! I wonder if that is a symptom of Lymes?

Well, I will keep you all posted as I keep trying to find out what is wrong with me. It will take awhile to get the Lyme test back but if it's positive I will definetely be posting tons on here to get all the support I can get!

lymesgal · 01-05-2007, 10:26 PM

hi alwayshotroddin!
Sometimes people don't have achey joints when they have lyme disease and it would depend on, too, how long you've actually had it. My doctor says it can lie dormant and then come out of nowhere and wreak havoc, it can take years before you feel it in your joints and some never show that symptom. Mine was very slow and gradual. The anxiety is terrible! That is definately one of the signs. I'm on medication but I still have major anxiety attacks and palpitations. And I totally know what you mean about the anxiety you get when you go to the mall--I do too! I understand exactly how you feel! When I read what you said about the mall I thought oh my goodness, that is ME! My husband doesn't like to go to the mall with me anymore cause he knows there is a good chance I'll have the anxiety issue and he doesn't like to deal with it. lol Oh well, I'll shop by myself!

I really hope you find help, I feel for you and what you are going thru. I hope you have people that support you and don't just think you're crazy or a hypochondriac. Its so important to have the support from your family and friends. Keep searching for that answer--have you actually have a lyme test yet? You definately need to get one. If it shows up negative, send it off to the lab for further testing. It can show up negative when you actually have it cause the little spirochetes can hide!

hope you're having a good day today!