It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lyme Disease Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 05-23-2007, 10:50 AM   #1
Newbie
(female)
 
Join Date: May 2007
Location: honey brook, pa, USA
Posts: 1
gngcrzy HB User
Exclamation 15 year old son lymes or not?

My son was diagnosed with lymes in Jan. This was after several doctor visits, brain scans, bloodwork. He has missed over 50 days of school his freshman year. His family doctor and his school wants him to see a psychiatrist; they feel he has a school phobia, or anxiety. He complains of migraines, headaches, or upset stomach. However, evenings and weekends he is perfectly fine, running around like a normal kid.
The school is pressuring us to home school his sophomore year.and they are not much help with making alternate arrangements for teaching/tutoring.
I am going insane....my doctor put me on nerve pills, I felt like I was losing my mind. Dealing with the doctors, tests, the school, seeing my kid lying in bed all day, crying, but getting much better during the weekends.
I know he has lymes, but can he also have a school anxiety also, or does the lyme really fluctuate like that?
He is being treated now with Ceftin, he is scheduled for another SPECHT scan and are awaiting all his bloodwork results, the cd-57 and cd-3. His doctor is Burke from West Chester, PA....incredible internal medicine specialist.
Please someone help me with what we need to expect.
At times all my son says is, no one believes him, I don't feel good, nobody cares, I just want to be normal!!!
Thanks,
Julie

 
Sponsors Lightbulb
   
Old 05-23-2007, 12:42 PM   #2
Veteran
(female)
 
Join Date: Mar 2007
Location: USA
Posts: 493
sarah92202 HB User
Re: 15 year old son lymes or not?

Quote:
Originally Posted by gngcrzy View Post
My son was diagnosed with lymes in Jan. This was after several doctor visits, brain scans, bloodwork. He has missed over 50 days of school his freshman year. His family doctor and his school wants him to see a psychiatrist; they feel he has a school phobia, or anxiety. He complains of migraines, headaches, or upset stomach. However, evenings and weekends he is perfectly fine, running around like a normal kid.
The school is pressuring us to home school his sophomore year.and they are not much help with making alternate arrangements for teaching/tutoring.
I am going insane....my doctor put me on nerve pills, I felt like I was losing my mind. Dealing with the doctors, tests, the school, seeing my kid lying in bed all day, crying, but getting much better during the weekends.
I know he has lymes, but can he also have a school anxiety also, or does the lyme really fluctuate like that?
He is being treated now with Ceftin, he is scheduled for another SPECHT scan and are awaiting all his bloodwork results, the cd-57 and cd-3. His doctor is Burke from West Chester, PA....incredible internal medicine specialist.
Please someone help me with what we need to expect.
At times all my son says is, no one believes him, I don't feel good, nobody cares, I just want to be normal!!!
Thanks,
Julie
Julie, sorry that your son is so sick, my son is 14 in the 8th grade, he had lyme for 6 years before getting his daig. in Oct last year. We never know from day to day wether he will go to school or not. He is protected under the 504 and the IDEA. His doc wrote a letter to the school in Oct. stating that he is protected under the 504. the school was required by law to adjust my son's schedule, offer homebound services at no cost, my son is exempt from the attendance policy, and goes to school from 10:50 to 3:25 he is only required to take the 4 basic classes, no electives. He did have homebound services for about 2 months but the teacher didn't know how to teach him Algebra, and she was coming at 9 in the morning, lyme children don't function that early. So we put him back in school. He makes it usually 2-3 days a week. I am not given a bad time about it at all, it would be illegal for them to not comply with his needs. You need to have your son's doc write a letter also, with Lyme your son is considered disabled and is protected, if the school does not comply the district can be sued. You must go through an ARD meeting with the school staff and it is all documented and legal. If you have trouble with the school call the admin. office and ask to speak to whoever is in charge of the 504 program. My son feels better on the weekends too. But it isn't because he has a school phobia, it's because lymies have trouble concentrating, and retaining what they learn, or learning it at all, especially math, it is also painful to sit in the chairs hour after hour. My son is also able to carry a bottle of water with him, has an exept hall pass, and can dismiss himself from class when needed to go lie down in the guidance office. they have let him sleep in class, he feel asleep in the library one day and the teacher even covered him up with his coat and let him sleep as long as he needed. There is another girl at my son's school that has LD also, so the school knows what they are dealing with. Good luck and if you have more ?'s ask, if your son would like to "talk" with my son on the board let me know. Sincerely, Sarah

 
Sponsors Lightbulb
   
Old 05-23-2007, 02:32 PM   #3
Senior Veteran
(female)
 
Join Date: Jan 2002
Posts: 5,818
ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
Re: 15 year old son lymes or not?

Hi Julie. I am sorry your son is so sick.

Lyme disease can cause many symptoms including neuro-psychiatric ones. Check out the Lyme Disease Research Studies at Columbia Unviersity. It discussses cognitive and neruopsychiatric lyme symptoms in children and adults.

I am not familair with his doctor. Was he tested for the co-infections Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma? It is estimated that 60% of people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.

It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses. He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know About Lyme Disease (2nd edition)" by Karen Vanderhoof-Forschner.

Hang in there okay? It can take time, but with proper treatment your son can get better.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Stuck in N.Palm Bch FL for a year, need help finding a legit doctor PA2LA Pain Management 2 10-14-2009 10:18 PM
Lymes in Australia aust Lyme Disease 1 01-20-2009 01:41 AM
Lyme meningitis in 10 year old daughter garrisonwa Lyme Disease 37 08-10-2007 06:58 PM
New To Board, but not to Lymes SickOfTicks Lyme Disease 6 03-08-2006 09:19 PM
Is Lymes truly gone? alarose Lyme Disease 1 10-01-2005 04:37 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 04:33 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!