Last Friday my husband called his family doc to find out what the results were on his IgeneX WB's ( posted in an earlier post and were IgeneX and CDC pos. IGM) The Nurse told him that the results were normal. We picked up a copy (luckily) and they were obviously pos. But the doc had written --Neg. activity to report--on the results. Well, yesterday we went to see him, like my husband wanted to. We walked into the exam room, and the doc said, "Teddy, why are you here?" He said "to go over my report." the doc said "what report." my husband said, "my Lyme report." The doc said "what about it?" I said "it's positive" The doc said " no it isn't" OK, so here I am sitting with a doctor who is looking at a report that clearly says positive IgeneX and CDC and explains on it how it is positive, and he is saying it's negative. I had called the IgeneX doctor last wed. and my husband had talked to him and the doctor told him that yes it was positive for Lyme and that by the bands he felt my husband had Lyme for over a year. I also had Dr J's report on how to interpret the bands. But com'on there was no need to have to interpret the bands, it said pos. right on it. the doc got mad at me and said he didn't need me lecturing him on IGG and IGM antibodies, when I tried to go over the report with him. My husband flat out said to him: You have been my doctor for 25 years, be upfront with me! And the doc said that he was unwilling to treat him, that he didn't want to get in trouble and didn't want anything to do with Lyme. He said he knows nothing about it and doesn't want to. As we were leaving I tried to give him Dr Burrascannos report and he said he didn't want it. I said, well what if you have other patients that may have Lyme, He shrugged his shoulders and said, oh, well. And he wouldn't take it. What the hell is going on? We are considered an endemic area now, we have had reports in our newspapers about Lyme, we were even mentioned in the PHA and we have a support group that started last month, and this doctor acts like he has no clue. The last time that my friends daughter went to see her pedia ( who diag. my son and her daughter) the CDC was there with another doctor who is anti-lyme, and now when my other friend went and asked for her daughter to be tested by Igenex, the pedia. said no. Our doc's are being threatened around here and it is very scary, who knows how many people have it in our town and aren't being treated. Sorry, this is so long, I'm just disgusted!!!
My husbands doc wouldn't even put him on any ABX's at all, and he said that he wouldn't put in his file that he had Lyme, even though he finally admitted to us that my husband does! Now we have to wait to get into see an LLMD for 4-5 months!! It just makes me sick!! Well, sicker than I all ready am!! Sarah