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Old 08-03-2007, 08:32 AM   #1
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Saw Doctor-Blood Test

Hi:

I saw the doctor this morning. I was bitten by a tick 13 days ago. Tick removed after a few hours.

I've been fine except for pin and needle feeling throughout my body which just started on monday.

Saw the doctor today. I have to go tomorrow for blood work.

1. Lyme dz
2. Bartonella I G can't read the middle initital & I M
3. Ehrlichivsis

Can someone tell me what these tests find? And do you think the pin and needle feelings are a sign. I'm worried sick.

Thank you
julie ford
p.s. She did say stress can cause this. Work has been awful. Planning my wedding for 9-15-07 and my mother is very ill

 
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Old 08-03-2007, 02:11 PM   #2
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Re: Saw Doctor-Blood Test

Hi Julie, Sorry to hear of the pins and needle thing. The sensations of pins and needles is indeed a symptom and I experienced this a few months after but everybody is different. I hope you do not have lyme and that it is nerves from wedding planning. Please keep in contact with healthboards and continue to learn from others of this disease. The testing for Lyme disease is far from reliable. If you have a negative test this does not mean you did not contract lyme disease or any of the tick borne diseases out there. I believe your doctor should treat you for lyme anyway especially since the pins and needle sensations. You should be put on Doxy or ammoxicilin for at least two months and a high dose at that. Make sure you keep track of your symptoms and let the doctor know of the pin and needle thing asap. take Care, Lebnin

 
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Old 08-03-2007, 03:24 PM   #3
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Re: Saw Doctor-Blood Test

Hi:

Thank you for the post. The problem is I can't take many pills, have a reaction to most of them. I was on Doxy for a while years back and was sick as a dog. Not sure what she will do.

How else did you feel once you got Lyme? And how long before you felt bad after you were bitten??

I hope this is not so for me, I just paid $5,000 for a honeymoon in Mexico 9/17/07 and with all the pills they might or might not put me on you can't be in the sun...I'm so upset over this you have no idea....

I have no other feelings, if I did not have this sinus infection I would feel great except for the tingeling in my body which is a little better today...The doctor did say stress can do this, not sure about that one.

Again, thank you
Julie

 
Old 08-03-2007, 05:22 PM   #4
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Re: Saw Doctor-Blood Test

Hi Julie. No Lyme test is completely reliable, and results can vary by lab. Do you know which Lyme test is being done? It is my understanding that an ELISA or titer is the least reliable test and the one most doctors run first. It is important to be tested by a Lyme lab such as IgeneX in Palo Alto, CA.

The co-infections you should be tested for are Babesiosis, both types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.

If the pins and needles feeling started after the tick bite, it likely is related.

What kind of reaction do you have to antibiotics? Doxy can make you very nauseous if you do not eat something substantial and non-dairy before you take it.

 
Old 08-03-2007, 05:40 PM   #5
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Re: Saw Doctor-Blood Test

Hello;

I'm new to this. I've been sick for many years--diagnosed with such things as Fibromyalgia, Hashimotos, Lichen Planus, Osteopenia/Osteoporosis, Carpal Tunnel, H-Pylori, Recurring Kidney Stones, High Cholesterol, Migraines, etc. etc.

I had never been tested for Lyme Disease before; but the Dr. reccommended I get tested for it recently. I had the Western Blot IGM, which was negative, and at the same time I had the Western Blot IGG, which was Positive. My Dr. had me go in for another blood test after these came back--he said it was some kind of confirmation test.

He is also referring me to a Dr. Ames in the Tri Cities, who specializes in Lyme Disease, and other infections.

So does this mean I do or don't have Lyme Disease??

Thank You;
Ava

Last edited by Avalou; 08-03-2007 at 05:41 PM. Reason: spelling error

 
Old 08-03-2007, 05:55 PM   #6
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Re: Saw Doctor-Blood Test

Hi:

She ordered Lyme dz, Bartonella I someting G (Can't read the middle letter), and I again some letter M, and Ehrlichivsis. Plus Comp Metabolic, CBC and sed rate....

I was on ****o (ended up in the hospital for 15 days) Doxy makes my face feel numb. I had a nissen Fundeloption and I can't throw up so I'm scared to take much...

My wedding and honeymoon will be ruined, all I can do is cry at this point. I go tomorrow for my blood work.

Thank you
J

 
Old 08-03-2007, 06:03 PM   #7
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Re: Saw Doctor-Blood Test

Hi Ava, welcome to the board!

How long have you been sick? Below is a Lyme symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

When Lyme disease is a possibility, it is very important to see a knowledge-able doctor. Many doctors do not understand Lyme and treat with outdated protocols. Lyme needs continuous, aggressive treatment. No test is completely reliable, and results can vary by lab.

Do you have copies of your Western Blot? The IgM tests for a more recent infection, the IgG a longer standing one. Although the CDC requires several bands to show for it to be positive, many people who have Lyme do not have this many bands. Lyme doctors often look at which bands are present. Some are specific for Lyme.

You already have a positive test and symptoms. You need to be treated.

Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. It is estimated that 60% of people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these?

I have not heard of the doctor you will be seeing.

It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses. He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know About Lyme Disease (2nd edition)" by Karen Vanderhoof-Forschner.

 
Old 08-03-2007, 06:05 PM   #8
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Re: Saw Doctor-Blood Test

Hi Julie. The reason I asked about your reaction to antibiotics is because there is a reaction called the Jarisch-Herxheimer Reaction (herx). Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel sicker. It can be very scary when it happens, but it is a good sign the antibiotics are working. Although it can vary individually, many people experience this at the beginning of treatment and every three to four weeks.

If you have Lyme and get properly treated, your wedding and honeymoon will not be ruined. Getting the proper treatment early in the infection gives the best chance for a cure.

Last edited by ticker; 08-03-2007 at 06:05 PM.

 
Old 08-03-2007, 06:22 PM   #9
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Re: Saw Doctor-Blood Test

Ticker:

Again, thank you....When I was on Zitromax I had a very bad reaction hives etc. Thought I was going to die....

Are the blood testing I'm getting tomorrow good one's?? And would I have other sympthoms other then the pin and needle feeling, like a fever etc? I'm so sorry for all the questions. I feel fine other than that...

Julie

 
Old 08-03-2007, 06:58 PM   #10
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Re: Saw Doctor-Blood Test

Quote:
Originally Posted by ticker View Post
Hi Ava, welcome to the board!

How long have you been sick? Below is a Lyme symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

When Lyme disease is a possibility, it is very important to see a knowledge-able doctor. Many doctors do not understand Lyme and treat with outdated protocols. Lyme needs continuous, aggressive treatment. No test is completely reliable, and results can vary by lab.

Do you have copies of your Western Blot? The IgM tests for a more recent infection, the IgG a longer standing one. Although the CDC requires several bands to show for it to be positive, many people who have Lyme do not have this many bands. Lyme doctors often look at which bands are present. Some are specific for Lyme.

You already have a positive test and symptoms. You need to be treated.

Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. It is estimated that 60% of people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these?

I have not heard of the doctor you will be seeing.

It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses. He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know About Lyme Disease (2nd edition)" by Karen Vanderhoof-Forschner.

Hi;

Thank you for your response. I have had a large percentage of those symptoms you listed off and on for many years. I was really healthy as a child, then I began having some female problems in my teens, and then started getting really sick after my first child was born over forty years ago. Three months after she was born I got Strep Throat so bad they wanted to hospitalize me. Three months later I was hospitalized with Pneumonia, and almost died..

I'm sick to some degree most all of the time; but it's like I really have to pace myself, or I get seriously ill. Any time I have tried to do a strenuious exercise and diet program I get very ill. A couple of times I got flu-like symptoms, ran a fever, and had very tender and inflamed nodules on my shin bones--this didn't go away for about a year. This last time I tried to exercise and diet, it threw me into almost a year of recurring kidney stone episodes that just finally stopped in March. Not fun.

I'm about 30 pounds heavier than I am comfortable with; but I can't do anything about it. If I look at carbs I gain weight, and if I try to exercise I get sick. All I can do is try to maintain without gaining more weight.

There was ample opportunity for tick infection, because we camped near streams in the woods for half the Summer every year when I was a child. Also, I have lived the past ten years on an acreage where there are deer that come up and eat on our lawn at night.

Since my early thirties, I have treated naturally as much as possible, and have avoided antibiotics unless absolutely necessary. I have done everything the doctors tell me, and it helps; but still I am sick.

My Dr. that I have been seeing for a number of years treats naturally as much as possible; but has had to give me antibiotics a number of times this past few years. Last winter I got a urinary tract/vaginal infection following a lodged kidney stone, and had to be on a couple of different antibiotics for a whole month.

A couple of months ago I was diagnosed with E-Histolytica, and I was put on antibiotics for it. I was on high dose Tinidazole for three days followed by Paramomycin/Humatin for 7 days. I'm not sure which one of them helped; but I felt better for about a week than I have in years. The sore throats, the pain in my muscles and joints etc. let up, and I could even tolerate dairy products!!!

Yes, I do have a copy of my tests. As I mentioned, the Western Blot IGM was Negative, and the Western Blot IGG was positive. My Dr. had me go in for another blood test a couple of days ago--he said it was for confirmation. From the little I've read on the internet, another test wasn't necessary, since the IGG was Positive--or did I misunderstand something?

My Dr. doesn't know very much about Lyme, and he hasn't had very good luck treating some of his other Lyme patients, so he is sending me to the specialist in the Tri-Cities (Dr. Ames in kennewick, Wash.)

I also have contacted a medical center in Reno, Nv. to get some information from them. It's called "Sierra Integrative Medicine". Are they good? How will I know who to go to for this? Is there a current protocol that is working the best for the most people?

I ordered a book called: "The Top 10 Lyme Disease Treatments" By Bryan Rosner.. Is this a good book, or would you still reccommend the one you mentioned?

As if my head wasn't foggy enough before, it's really spinning now.

Thank you for your time--and patience.

Blessings;
Ava

 
Old 08-03-2007, 08:47 PM   #11
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Re: Saw Doctor-Blood Test

Hi Ava. I highly recommend Karen Vanderhoof-Forschner's book. I have not read the other book, so I am not famiilar with it.

Some women who have Lyme feel worse after childbirth. Lyme disease can be passed through pregnancy and breastfeeding. Your children should also be evaluated by a knowledgeable doctor.

You really need to be tested for the co-infections also. A large percentage of people who have Lyme are co-infected. It may affect treatment choice and progress. As someone who has had several, I know firsthand how important it is to know if they are present.

The Lyme bacteria can change forms. One form it changes into is the cyst form. Tinidazole is used to treat the cyst form of Lyme. This may be why you responded to it. You can read about the cyst form in Dr. Burrascano's Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses.

I have not heard good things about the Reno clinic regarding Lyme. There are some excellent Lyme doctors in CA. If you would like their names, let me know.

I hope you can get treated soon. Hang in there okay?

 
Old 08-03-2007, 08:52 PM   #12
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Re: Saw Doctor-Blood Test

Hi Julie. Hives are definitely an allergic reaction.

You need to be tested at a Lyme lab such as IgeneX. They use more sensitivie tests and list more bands on the Western Blot. If you are getting the ELISA or titer, it really is not a good test. You need to be tested for all the co-infections mentioned previously.

I know it is hard to understand, but the majority of doctors are ignorant about tick-borne illnesses. One reason why people get so sick is because it takes them so long to get properly diagnosed. Once the infection is disseminated, it is more difficult to treat and it is more serious. Proper early treatment gives the best chance for a cure.

In my opinion, the most important thing you can do is see a Lyme knowledgeable doctor as soon as possible. Not doing so is like seeing a podiatrist for a cardiac problem.

 
Old 08-03-2007, 11:37 PM   #13
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Re: Saw Doctor-Blood Test

Quote:
Originally Posted by ticker View Post
Hi Ava. I highly recommend Karen Vanderhoof-Forschner's book. I have not read the other book, so I am not famiilar with it.

Some women who have Lyme feel worse after childbirth. Lyme disease can be passed through pregnancy and breastfeeding. Your children should also be evaluated by a knowledgeable doctor.

You really need to be tested for the co-infections also. A large percentage of people who have Lyme are co-infected. It may affect treatment choice and progress. As someone who has had several, I know firsthand how important it is to know if they are present.

The Lyme bacteria can change forms. One form it changes into is the cyst form. Tinidazole is used to treat the cyst form of Lyme. This may be why you responded to it. You can read about the cyst form in Dr. Burrascano's Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses.

I have not heard good things about the Reno clinic regarding Lyme. There are some excellent Lyme doctors in CA. If you would like their names, let me know.

I hope you can get treated soon. Hang in there okay?
Hi Ticker;

I found the one book " Karen Vanderhoof-Forschner's book" at Amazon; But I couldn't find the other one.

The Dr. in the Tri-Cities supposedly tests for other infections also--I don't know if that means "co-infections" though.

A question, if I may---If you had a Western Blot IGM that was negative, and a Western Blot IGG that was positive, would you consider yourself as having Lyme Disease? Both tests were through Igenex. I guess I'm just not sure what to think since one of them was negative, and the other was positive.

If your answer to my above question is yes, then I would like the names and locations for the Lyme Doctors in California.

Thank You;
Ava

 
Old 08-04-2007, 08:09 AM   #14
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Re: Saw Doctor-Blood Test

Hi Ava. Dr. Burrascano's guidelines is not a book, it is on-line.

Many people who have Lyme do not test positive by the CDC standards. The CDC requires several bands to show for the test to be considered positive; however, many people who have Lyme do not have this many bands. What is important is which bands are present. Some are specific for Lyme.

You have a positive test. You need to be treated. Why would a doctor want to re-test you? To see if it is negative? Then say you don't have it? It is crazy!

The Lyme doctors I know of in CA who come highly recommended are Dr. Raphael Stricker in San Francisco and Dr. Steven Harris who has offices in Nevada City, Palo Alto, Long Beach, and Malibu.

 
Old 08-04-2007, 08:24 AM   #15
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Re: Saw Doctor-Blood Test

Question:

Is DOXYCLINE and Zitromax in the same class of drugs? I can't take Zitromax (Bad hives) and chest pains from it.

I just went for my blood for and my doctor will have the results on Tuesday. He said he will most likely start me on Doxycline. He said I should be fine since the wedding is not until 9/15/07, I have a few weeks to take it. Then off to mexico I go and will be in the sun for 8 days...And I know you can't be on Doxycline while in the sun...THIS BITES big time...

Again, thank you
Julie

 
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