i once heard a very wise person say "take what you like and leave the rest".
i agree that a lot of the medical community is not lyme knowledgable. i saw 9 doctors who did not test me and/or dismissed my symptoms.
i try to educate folks that i meet day to day. for some reason, my illness may come up in conversation and i will try to keep it short and simple but accurate.
i'm always surprised that most (80-90%) of the folks I chat with know someone, somewhere who has had or currently has lyme.
i take a lot of knowledge from here and apply it to my treatment and my life. heaven knows i have much to work on - especially my attitude!!
i am finding that i am growing big chips on both shoulders with the way my supposed friends and family have distanced themselves from me once i became sick. i was so generous, caring, compassionate, a 'giver' more than a 'taker' ... and now i have 3 people who stay in touch with me. that is such a sin it isn't funny.
i am trying to work on my attitude, but that's another topic. if i get started on that one tears, i will never stop!
i present tidbits or suggestions or advice from these boards to my LLMD. sometimes she agrees, sometimes she doesn't.
sometimes i may take the info from here and instist that she prescribe a particular drug or supplement or refer me to a naturopath or herbalist, etc.
it works differently for eveyone. i take what i like and leave the rest. i do try really hard to keep an open mind.
who knows? maybe my LLMD will try something that works for me? maybe i'll read something here that will help me?
knowledge is power. some physicians may offer good information, others may not. it's true that lyme may have a stigma where our symptoms are dismissed away or laughed at (i experienced both).
lucky for us there are medical doctors and naturopaths and herbalists and alternative medicine professionals who believe us and help us.
someday, maybe this year, maybe next year, maybe in three years, you may hear a news story of a crazy blonde woman who handcuffed herself to the doors of the CDC in protest of the poor test quality and unresearched treatment recommendations and lack of funds for research.
well, that lunatic will be me.
peace and health to you,