I live in GA and I see an infectious disease doc in Alpharetta his name is Dr. P. He is very up on Lyme and is very open minded. I had a picc line in for 4 months and i am feeling much better. Still being treatd with orals but am on a little break because my liver enzymes were so high.
He is treating a lot of Dr. Jemseks patience as well. He aslo helps a few kids that Dr. Jones originally dignosed and Dr. P is doing the actual treatment and follow up with them. He is very well respected in the medical community here.
I know that a lot of people do not like the ID doctor's but he has been a life saver for me. I am actually back to working from 10-4 five days a week!
I hope this helps! Let me know if you have any more questions!
I think that the majority of infectious disease doctors are not Lyme knowledgeable, but there are few who are Lyme doctors.
Does this doctor test for all the co-infections?
Lyme disease can cause elevated liver enzymes. If your liver is healthy, taking the supplement Milk Thistle can help. You may want to ask your doctor about this.
I am currently on Milk Thistle and that is what has brought the liver enzymes down. I got lazy and stopped taking them when I ewas pulsing my antibiotics and they went up! I was really my own fault. When I was on the IV antibiotics I toook it religiously and never had a problem!
As far as the co-infections. I Have not been tested for them. I could not afford to the hole kit & caboodle through Igenex. Do you recommend the regular labs like Quest or ******* for those? Or are they not reliable.
I am currently having some really bad right sided head, neck and shoulder pain. My lymph nodes on the right side only are all enlarged and I have a muscle in the neck that is in spasm permananetly! I am going in for a CT Scan Wednesday to see what is going on. The entire right side if my face hurst all the time. It is really weird how a lot of my symptoms are one sided! My eye also swells closed a lot and the eye socket hurts. These are fairly new symptoms.
Like I said I am definatley better than I was. I can function day to day but I take Vicoprofen three times a day, Lyrica for nerve pain. and Soma for the muscle issues. Of course the Lyrica and Soma are taken whe I get home form work! It is never ending as we all know.
I still never heard anything back from the Georgia Lyme Disease Association. All they said that is that there is a LLMD in Atlanta. I tried calling and emailing to ask for his name but they never responded. Sorry.
I live in GA and I see an infectious disease doc in Alpharetta his name is [... ...]. He is very up on Lyme and is very open minded. I had a picc line in for 4 months and i am feeling much better. Still being treatd with orals but am on a little break because my liver enzymes were so high.
He is treating a lot of Dr. Jemseks patience as well. He aslo helps a few kids that Dr. Jones originally dignosed and Dr. P is doing the actual treatment and follow up with them. He is very well respected in the medical community here.
I know that a lot of people do not like the ID doctor's but he has been a life saver for me. I am actually back to working from 10-4 five days a week!
I hope this helps! Let me know if you have any more questions!
Thanks,
Onmyway
Onmyway,
I am surprised you mention the Doctor's name in your post.. all Lyme communities/boards usually advise members to NEVER publicly discuss LLMD's names.. simply because so many of them had to face trouble by their medical boards.. would you mind editing your post and rather pass on names of LLMDs you know via private message?!
There's not a whole lot of LLMDs around anyways, so please let's not endanger their work by getting their names out into the public and have them face consequences..
I am surprised you mention the Doctor's name in your post.. all Lyme communities/boards usually advise members to NEVER publicly discuss LLMD's names.. simply because so many of them had to face trouble by their medical boards.. would you mind editing your post and rather pass on names of LLMDs you know via private message?!
There's not a whole lot of LLMDs around anyways, so please let's not endanger their work by getting their names out into the public and have them face consequences..
Thank you!
Hi Lymogirl,
I edited my post but I was not aware of that on this particular board.
Alos if you take notice Keylime was given his name the LDA of Gerogia and she posted it as well!
I definatley understand where you are coming form. Do you see him as well? I noticed you are from ATL.
How long have you been sick? Do you have any co-infections? Are you currently being treated?
I don't know of any Lyme doctors in GA who come highly recommended. Maybe someone else here can you give you more information and the name. I know of a Lyme doctor in Temple Terrace, FL (near Tampa). If you would like his name, let me know.
Hello to you & thanks for answering.
My daughter is the one sick. I can't begin to tell you how the last 7 years have been. The CDC & LDA should be shot! She is known to have "had" all 3 TBD but get the same old story once treated it's gone. Mayo Clinic recently confirmed "adequately treated"....how do they know when all they did was AB testing? Very frustrating since she is better on abx & worsens off. She has liver issues that respond to abx (blood work proves this) so rather than agressively treat they (the normal docs) keep her on low dose on amox & doxcy. Imagine if a Lyme doc did that. Funny CT ID kept her on amox over 4 years and gave her mass amounts of demerol for the pain. Said they didn't know what it was but wasn't Lyme (even with positive IgM WB). They'd rather turn her into a druggie than treat lyme. Now in GA same old thing. ID basically says "not enough bands to still be active" & when IgM showed +, said false. IgM shows up for 41 & 39 (used to be 23). After doxcy was added showed CDC positive IgG (about 7 bands but Eliza was neg - had to beg them to do WB) but went to Mayo (doc insisted for liver & lyme) retested & only showed IgG 39. Said no Lyme & wouldn't even look into LLMD research. As for Babesia wouldn't do any IgM even with positive IgM at 20 - 2 months ago. Same for Erhlichia. Only would do IgG AB. Now in GA we're screwed - no doc so far will go against CDC & IDS protocal. At least in CT had a LLMD to go to. Took her to Jemsek but now that's gone. They did prelim workup & wanted her hormone levels looked into. Said if immune system is functioning poorly never get rid of TBD. Showed low Vit D. Can't figure out where to go from here... Any suggestions?
Made slight error - prior to Mayo IgG WB positive with about 7 bands & Eliza was also +. At Mayo, Eliza was negative with IgG WB 39 +.
Last edited by Joie9k; 09-16-2007 at 07:58 AM.
Reason: error
Hi Joie9k. I am sorry your daughter has gone through so much. It is terrible that so many people who have tick-borne illnesses have to fight so hard to get proper treatment.
It may be worth traveling to see a really good doctor since she is so sick. Some Lyme doctors will spread out appointments somewhat for patients who need to travel. I believe Dr. Jemsek is relocating to the DC area. If you would like doctor recommendations, let me know.
When someone is co-infected, it can make the symptoms of all infections worse. I have had several co-infections myself, so I can understand what she is going through.
It seems that some people, including myself, who have Lyme have low vitamin D levels. Is she taking Vitamin D? I was told to take Vitamin D3.
Hang in there okay? Good help is available. Your daughter is very lucky to have your support.
Still looking for doctor (LLMD) in Ga. or Tenn. if anyone knowes of any!!! THANKS
