I read on another thread that you had a neuro appt at MGH. I just wanted to let you know my experience there. I am sure every doc is different and do not know which one you will be seeing but....
I had an appt with someone who supposedly
was able to answer all the puzzling cases. He took one look at my negative western blot (not approved Lyme lab) and said- not Lyme. He did give me a MRI and when that was clean told me my symptoms were in my head. When I told him I was going to see a LLMD, all he said was "Do not spend too much money". He was absolutely in the CDC camp of Lyme.
I hope there are other docs at MGH who are more Lyme literate!