School starts for me next Wednesday on September 5. My Lyme Disease specialist wrote a note to my teachers saying that I'm allowed to carry a water bottle, I can go to the bathroom whrn I need to, and that I may not always be able to participate in gym class and that I'm being treated for Chronic Lyme Disease.
I'm still in a lot of pain and I want to have a good year. I want to have good grades and I don't want teachers to think that I'm making excuses. As a Lyme Disease sufferer, I have to work twice as hard as the other kids to do what they can do and it's hard. You know? Thinking and trying to function at school for 6 or more hours a day is so tiring and painful.
How can I help my teachers understand? I got a panflit thing from my doctor called The ABC's of Lyme Disease and it talks about Lyme and what it's like for a child/teenager to have it. I'd like to give a copy of that to all of my teachers. What else can I do? I also plan on talking to them about it. I'm just really worried.
Do you have any suggestions for me?
If you have any ideas about how to help my concentration and memory, please let me know.
When I was in highschool, we had a study hall elective. It basically was an hour to get homework done. If you're school offers one of these, talk with them to see if you can use that time to take a nap. Maybe you're dr can write a note that sometimes you'll need to lay down during the day. Even if you can get 30 minutes of quiet time, that might help your concentration. I would also have your Mom talk with your teachers and principal.
Make sure you're taking a good multivitamin and get to bed early every night. Hang in there, things are going to start getting better. I just started abx a month ago so I understand how yucky you feel right now.
Just FYI...when I was a kid, I had chronic pnuemonia and wasn't able to participate in gym....the stupid gym teacher still gave me a low grade!! Just make sure that your gym teacher won't mess up your grades since you're not able to participate most of the time.
Thanks for the response! We are allowed to choose as an elective either chorus, band, or study hall and I've been in band since the 4th grade and I'd hate to quit. But my band teacher is really nice and he lets us rest for the period if we aren't feeling well.
I think lymes becoming more common...atleast it is down here in teh south. I can't tell you how many people have come up to me "oh yea my cousion just got lyme, ect ect".... Bush even got lyme. Its been in alot of papers and stuff down here to. Its nothing to play around with....hopefully your teachers will understand. I'd jsut have a heart to heart with your teachers. Maybe even print off a sheet from here explaining all lyme symptoms. Just inform them of everything your going threw. 99% of the time they'll be more then willing to work with you. I had alot going on in my highschool with seperating shoulders and surugies and stuff...and i just told my teachers what i could and couldn't do and they had no problem helping me out. Just w/e you do dont "assume" they know how you feel. Most people under estimate lyme. And when you tell them your tired....Its not just a tired feeling...its run down...drained of energy...ect ect. Again just let them know how you feel. Hope its a great year of schooling for you!!!! Keep us posted on how your doing!
Victoira you know alot of about Lyme and you fought tooth and nail to get your folks to understand. hey maybe you could do a write up in the school news paper. There has to be more kids in your school having this problem
How is your brother doing?
Just remember you do the best that you can do. Maybe home schooling would be something to look into if you start falling behind. Pace yourself each day ...drink LOTS of water ...
I am sure you are going to teach your teachers a few things this year!