I was told in Dec my Lyme test results were negative. My doctors have diagnosed me with cfs and fibro and think MS is a possibility. It never occured to me to ask to see the results of the Lyme test since I was told it was negative.
I have all the symptoms, have had them for almost four years, and I am getting worse and worse. My doctors have prescribed me adderall for fatigue but it does nothing. Next week I switch to Provigil which hopefully will work better.
Beyond the fatigue they are not trying to treat any other symptom, and I'm slowly going broke from the constant co-pays. I have follow up visit after follow visit in which they tell me nothing and do nothing for me.
So I asked for the results of my Lyme test. It's clear I'm going to have to pursue answers on my own. They'll let me linger for years while they keep billing the insurance company and telling me "I don't know."
The test result print out just says:
LYME AB ELISA: VALUE FLAG <0.91
TEST INTERPRETATION: NEGATIVE
Shouldn't there be a number there? If it's <0.91 what is it?
They won't order further testing because of they feel they have enough proof that it's not Lyme. Isn't this test one that is not the most reliable? Is there somewhere I can order another test on my own?
I can't keep getting worse and worse. I need answers.