It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lyme Disease Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 08-30-2007, 07:22 PM   #1
Senior Veteran
(female)
 
Join Date: Dec 2006
Location: NJ
Posts: 560
alex12 HB Useralex12 HB User
Need advice please..... 2 positive one negative WB

About 8 months ago I had a lymes test done which came back positive. It was a Lyme igg/igm AB test.....the result was 1.62 (1.09 being the highest normal range). We proceeded with western blot and it came back negative.

Well I'm still having symptoms so we did another Lymes test and it came back 1.18.

Why do I still have antibodies if I don't have lymes??
I'm so confused?
I also have Epstiens barr if that makes a difference.

Thanks in advanced

ALex

 
Old 08-30-2007, 07:37 PM   #2
Senior Veteran
(female)
 
Join Date: Jan 2002
Posts: 5,818
ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
Re: Need advice please..... 2 positive one negative WB

Hi Alex. Were you ever treated?

Regarding the Western Blot, the CDC requires a large number of bands to show for it to be considered positive yet many people who have Lyme do not have this many bands show. Lyme doctors often focus on which bands show, some are specific for Lyme. It is important to be tested by a Lyme reputable lab such as IgeneX in Palo Alto, CA. They have more sensitive tests and list more bands on the Western Blot.

You already have a positive test, you need to be treated. You also should be tested for all the co-infections.

There are a couple of good Lyme doctors in NJ. Would you like a recommendation?

 
Sponsors Lightbulb
   
Old 08-30-2007, 07:38 PM   #3
Veteran
(female)
 
Join Date: Oct 2006
Location: Kansas City, KS
Posts: 422
KeyLyme HB User
Re: Need advice please..... 2 positive one negative WB

I have Lyme's and my Epstien Barr levels are off the chart. I've heard that's not unusual for Lyme's patients.

You should check into getting tested with Igenex in Palo Alto, CA. They test with high quality materials. I had 3 Western Blots done w/ Quest that all came back negative. I ended up getting tested w/ Igenex and it came back positive.

Are you seeing a Lyme Literate Doctor? A Lyme's diagnosis should not soley be made from test results...the dr has to take into consideration your symptoms as well (seeing how testing is prone to false negatives).

 
Old 08-31-2007, 04:52 AM   #4
Senior Veteran
(female)
 
Join Date: Dec 2006
Location: NJ
Posts: 560
alex12 HB Useralex12 HB User
Re: Need advice please..... 2 positive one negative WB

Thank you guys
so much for the quick reply's.
I would LOVE to know a lyme literate Dr. in NJ.
My EB is off the charts as well it is almost 2500 when 120 is considered positive.
By the way I have never been treated for Lymes, not one antibiotic. I'm a little upset about that since I have symptoms. My Dr. said the WB shows I'm negative so no need to treat.

Last edited by alex12; 08-31-2007 at 04:57 AM.

 
Old 08-31-2007, 06:41 AM   #5
Senior Veteran
(female)
 
Join Date: Jan 2002
Posts: 5,818
ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
Re: Need advice please..... 2 positive one negative WB

Hi alex. Unfortunately many doctors are not knowledgable about tick-borne illnesses.

The Lyme doctors I know of in NJ who come highly recommended are Dr. Emilia Eiras in Jackson and Dr. Leslie Fein in West Caldwell. I hope you can see someone soon.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Strange case need help fouad HIV Prevention 0 10-21-2008 07:45 AM
In Need Of Some Courage And Answers im scared HIV Prevention 6 11-29-2007 09:00 PM
How is HPV spread? rosequartz Human Papillomavirus (HPV) 8 08-13-2007 06:32 AM
OH NO, Swollen Lymph Nodes after pos, I need help, thanks blessedchild HIV Prevention 7 06-17-2007 05:56 PM
Help! Need info on ureaplasma! threethings07 Women's Health 3 04-09-2007 11:56 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



jojo (69), jenj770 (45), tess201 (30), ticker (14), Administrator (11), 6Blues (9), annalisa9397 (7), dganz (5), Katherine777 (5), lala52 (5)

Site Wide Totals

teteri66 (1180), MSJayhawk (1004), Apollo123 (903), Titchou (847), janewhite1 (823), Gabriel (759), ladybud (754), sammy64 (668), midwest1 (668), BlueSkies14 (610)



All times are GMT -7. The time now is 01:06 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!