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Old 09-01-2007, 07:15 AM   #1
Inactive
(female)
 
Join Date: Aug 2007
Location: Lake VIlla, IL
Posts: 65
maree4848 HB User
2007

Hi Everyone:

Last night I was thinking. Its 2007 and they still have not come up with a better way to treat Lyme. With all the modern medicine out there, you would think someone, somewhere could help everyone like you and I.

I just had to say this.

I think I may have found a doctor, in Gurnee, IL. He is a specialist (not a LD) but he told me he has had many cases of lyme in the past few years and has helped those people.

Again, my problem is I have an HMO until 9-15 (If the wedding takes place because of the way I feel) and I already have an appointment with him.

My family doctor did another lyme test - Negative-Already knew that would happen. At first he did say "Lyme" then he just told me he thinks its all because of my thyroid, I go next week for an up-take scan of the thyroid. He will be FIRED after the 15th when I change over to a PPO. JERK...

I'm still on the 500mg per day of amoxcillin, its all the body will allow. I am allergic to most of the meds used for Lyme. (I've had this problem since a child), its not Hexing. Doxy, Zitrom, sulfa, cipro. I can take flagyl I don't know if there is anything in that class of drugs that would help me. Along with the Amox I have to take bendrly every 4 hours so I don't get hives. This SUCKS. I just want to feel good for the wedding and its still two weeks away. I guess if God wants me to get married I will.

Jim has been very understanding, I thank him everyday. I can't believe how much my life has changed since 7-22-07.

Thank you all for listening to my ramble on and on.

Julie

 
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Old 09-01-2007, 08:49 PM   #2
Senior Veteran
(female)
 
Join Date: Jan 2005
Location: NJ
Posts: 1,945
6Blues HB User6Blues HB User6Blues HB User
Re: 2007

Hi Julie.

I get riled up about:
- the lack of accurate testing for diagnosing Lyme
- with many drugs able to kill many bacteria, why does Lyme invade every nook and crany of our bodies and may not die from antibiotics
- the closed-mindedness of lawmakers and CDC requirement authors
- the battles with health insurance companies to pay for treatment over 6 weeks
- the ignorance of most medical professionals
- the fact that we may recover, and/or we may never be completely healed
- the callousness of friends, family, neighbors and strangers who either avoid and distance themselves from me, or give me odd glances as I grocery shop

However, bear in mind that I was probably bitten 2 full years before my symptoms became apparent. I had these darned buggers in my body, hiding, multiplying and perhaps in the cyst (dormant form) of the Lyme spirochete bacteria. I went through 9 doctors and only one of them tested me for Lyme, the ELISA test which is the least reliable test, and of course, it came back negative.

My family doctor dismissed my complaints. A dermatologist looked at my rash and (seriously) laughed at me, told me I had dry skin and to get out of her office.

So I was headed down the Lyme path a lot longer than you.

You caught it early. That is a good thing, since treatement is most effective when the infection is treated right away. It's only been a few weeks since you began treatment so please keep up hope!

I have been on massive doses of oral antibiotics for 2 years and 9 months. I've been on I.V. antibiotics for 4 months. I do feel much much better than I did three years ago.

Try to be patient and try to treat yourself gently, as you would for a friend. Try to allow stress and worry not raise your pulse. Say a prayer, call a friend and talk about some random subject, take a detox bath, drink a gallon of water to get the toxins out of your body, take a short walk and breathe very deeply or put together a peaceful playlist of your MP3 player and lie down and just listen..

My point is .... planning and celebrating a wedding is a happy but large stress. Stress can make Lyme symptoms more intense and may prevent progress which means you'll feel crappy longer.

Please try to relax, you will enjoy your wedding no matter how you feel that day. I'm sure it will exceed your expectations. You may not feel like doing the 'worm' on the dance floor, but please enjoy the joy.

When folks tell you how beautiful you are, how lovely the ceremony and celebration was and tell you what a sensational couple you make - take those positive compliments and remember them.

Every wedding I went to, I did not remember the music, I may not even remember what the wedding favor was or what flower arrangements were on my table - but I absolutely remember if I had a good time. The bride and groom are the hosts and they set the tone of the whole day; I will say a prayer that you have joy and serenity that day.

Peace and health and nuptual bliss to you,
Mickie

 
Old 09-01-2007, 08:55 PM   #3
Senior Veteran
(female)
 
Join Date: Jan 2005
Location: NJ
Posts: 1,945
6Blues HB User6Blues HB User6Blues HB User
Re: 2007

Hi Julie.

I get riled up about:
- the lack of accurate testing for diagnosing Lyme
- with many drugs able to kill many bacteria, why does Lyme invade every nook and crany of our bodies and may not die from antibiotics
- the closed-mindedness of lawmakers and CDC requirement authors
- the battles with health insurance companies to pay for treatment over 6 weeks
- the ignorance of most medical professionals
- the fact that we may recover, and/or we may never be completely healed
- the callousness of friends, family, neighbors and strangers who either avoid and distance themselves from me, or give me odd glances as I grocery shop

However, bear in mind that I was probably bitten 2 full years before my symptoms became apparent. I had these darned buggers in my body, hiding, multiplying and perhaps in the cyst (dormant form) of the Lyme spirochete bacteria. I went through 9 doctors and only one of them tested me for Lyme, the ELISA test which is the least reliable test, and of course, it came back negative.

My family doctor dismissed my complaints. A dermatologist looked at my rash and (seriously) laughed at me, told me I had dry skin and to get out of her office.

So I was headed down the Lyme path a lot longer than you.

You caught it early. That is a good thing, since treatement is most effective when the infection is treated right away. It's only been a few weeks since you began treatment so please keep up hope!

I have been on massive doses of oral antibiotics for 2 years and 9 months. I've been on I.V. antibiotics for 4 months. I do feel much much better than I did three years ago.

Try to be patient and try to treat yourself gently, as you would for a friend. Try to allow stress and worry not raise your pulse. Say a prayer, call a friend and talk about some random subject, take a detox bath, drink a gallon of water to get the toxins out of your body, take a short walk and breathe very deeply or put together a peaceful playlist of your MP3 player and lie down and just listen..

My point is .... planning and celebrating a wedding is a happy but large stress. Stress can make Lyme symptoms more intense and may prevent progress which means you'll feel crappy longer.

Please try to relax, you will enjoy your wedding no matter how you feel that day. I'm sure it will exceed your expectations. You may not feel like doing the 'worm' on the dance floor, but please enjoy the joy.

When folks tell you how beautiful you are, how lovely the ceremony and celebration was and tell you what a sensational couple you make - take those positive compliments and remember them.

Every wedding I went to, I did not remember the music, I may not even remember what the wedding favor was or what flower arrangements were on my table - but I absolutely remember if I had a good time. The bride and groom are the hosts and they set the tone of the whole day; I will say a prayer that you have joy and serenity that day.

Peace and health and nuptual bliss to you,
Mickie

 
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