question about Igenex testing - Lyme Disease Message Board

zandvoort · 09-05-2007, 05:05 AM

Hi everyone-

I asked my LLMD to do an Igenex test (Quest negative) and he reminded me that no test is accurate and it does not matter- he knows I have Lyme.

I would really like an objective finding So, I am going to try to get in with dr. P in ct. But, I just learned from another thread alreted me that he does not use Igenex either. If I want Igenex, I will have to get it myself and ask him to order it.
I went onto the Igenex site and I did not see how to order a kit. do you have to know which test you want when you order or can you order a multipurpose and Dr P will know what to order?

OR- should I just trust that Dr. P will do the right testing and not worry about Igenex?

Thanks!

ticker · 09-05-2007, 06:51 AM

Hi zandvoort. I would call Dr. P's office and ask about testing.

Bearygood · 09-05-2007, 06:40 PM

Deb, I know someone who uses Dr. Phillips -- I was actually under the impression that he does use IGeneX. If you want me to ask her this (or anything else) please let me know and I"d be happy to. By the way, she loves him -- her husband actually has an MS dx and is being treated by Dr. Phillips with anti-biotics and has seen amazing improvements.

zandvoort · 09-05-2007, 08:03 PM

Hi Bearygood- yes, thanks- pls ask, that would be great. I havea friend who is treated by Dr P too but she is not answering her e-mail at the moment. I'm too lazy for a phone call.

or is that fatigued?

Bearygood · 09-06-2007, 06:30 PM

Here's your answer -- she gave me permission to pass it on. Hope it helps put your mind at ease.

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He surely does use Igenex. He does only their basic pretty inexpensive tests for lyme. He uses either quest or labcore for co-infections. And does the CD57 test thru labcore (the only lab that does it correctly).

I'll sum up his philosophy. Lyme is a clinically diagnosed disease. Sure, testing is important but he tests for a lot of things besides lyme...stuff like Hepatitis, low B-12, etc..... He doesn't do a lot of expensive testing for lyme because of this. He uses lab tests to support a dx and will ultimately treat for EVERYTHING known to be involved with lyme, like Bartonella, Babesia, Erlichia, Mycoplasma, Chlamydia P....etc. if he thinks you have lyme. Lots of these get treated in combo, but they get treated. He generally leaves no stone unturned. Once treatment begins, he monitors your response closely and goes from there.