It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lyme Disease Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 09-05-2007, 05:05 AM   #1
Veteran
(female)
 
Join Date: Mar 2007
Location: MA,USA
Posts: 422
zandvoort HB User
question about Igenex testing

Hi everyone-

I asked my LLMD to do an Igenex test (Quest negative) and he reminded me that no test is accurate and it does not matter- he knows I have Lyme. I would really like an objective finding So, I am going to try to get in with dr. P in ct. But, I just learned from another thread alreted me that he does not use Igenex either. If I want Igenex, I will have to get it myself and ask him to order it.
I went onto the Igenex site and I did not see how to order a kit. do you have to know which test you want when you order or can you order a multipurpose and Dr P will know what to order?

OR- should I just trust that Dr. P will do the right testing and not worry about Igenex?

Thanks!

 
Sponsors Lightbulb
   
Old 09-05-2007, 06:51 AM   #2
Senior Veteran
(female)
 
Join Date: Jan 2002
Posts: 5,818
ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
Re: question about Igenex testing

Hi zandvoort. I would call Dr. P's office and ask about testing.

 
Sponsors Lightbulb
   
Old 09-05-2007, 06:40 PM   #3
Senior Veteran
(female)
 
Join Date: Apr 2007
Location: New York, NY
Posts: 2,162
Bearygood HB UserBearygood HB User
Re: question about Igenex testing

Deb, I know someone who uses Dr. Phillips -- I was actually under the impression that he does use IGeneX. If you want me to ask her this (or anything else) please let me know and I"d be happy to. By the way, she loves him -- her husband actually has an MS dx and is being treated by Dr. Phillips with anti-biotics and has seen amazing improvements.

 
Old 09-05-2007, 08:03 PM   #4
Veteran
(female)
 
Join Date: Mar 2007
Location: MA,USA
Posts: 422
zandvoort HB User
Re: question about Igenex testing

Hi Bearygood- yes, thanks- pls ask, that would be great. I havea friend who is treated by Dr P too but she is not answering her e-mail at the moment. I'm too lazy for a phone call. or is that fatigued?

 
Old 09-06-2007, 06:30 PM   #5
Senior Veteran
(female)
 
Join Date: Apr 2007
Location: New York, NY
Posts: 2,162
Bearygood HB UserBearygood HB User
Re: question about Igenex testing

Here's your answer -- she gave me permission to pass it on. Hope it helps put your mind at ease.

-------------------------
He surely does use Igenex. He does only their basic pretty inexpensive tests for lyme. He uses either quest or labcore for co-infections. And does the CD57 test thru labcore (the only lab that does it correctly).

I'll sum up his philosophy. Lyme is a clinically diagnosed disease. Sure, testing is important but he tests for a lot of things besides lyme...stuff like Hepatitis, low B-12, etc..... He doesn't do a lot of expensive testing for lyme because of this. He uses lab tests to support a dx and will ultimately treat for EVERYTHING known to be involved with lyme, like Bartonella, Babesia, Erlichia, Mycoplasma, Chlamydia P....etc. if he thinks you have lyme. Lots of these get treated in combo, but they get treated. He generally leaves no stone unturned. Once treatment begins, he monitors your response closely and goes from there.

Last edited by Bearygood; 09-06-2007 at 06:31 PM.

 
Old 09-07-2007, 04:09 AM   #6
Veteran
(female)
 
Join Date: Mar 2007
Location: MA,USA
Posts: 422
zandvoort HB User
Re: question about Igenex testing

Thank you so much Bearygood! That is fantastic info. I do not think I have ever had a CD 57 done. I have called Dr P 2x in the last week and left a message but his office is not calling me back. Very frustrating.

 
Old 09-10-2007, 01:32 PM   #7
Senior Member
(female)
 
Join Date: Jul 2007
Location: Boston, ma
Posts: 183
Aimiloo HB User
Re: question about Igenex testing

zand, i called about 3:30 on a thursday and i got right through! I'd keep trying agaiin.

Well i have the igenex kit, but i guess i might not even need it. That's good news.

Thanks for the response bary!

 
Old 09-10-2007, 10:08 PM   #8
Member
(female)
 
Join Date: Jun 2007
Location: Nebraska
Posts: 51
Erin524 HB User
Re: question about Igenex testing

Quote:
Originally Posted by zandvoort View Post
Hi everyone-

I asked my LLMD to do an Igenex test (Quest negative) and he reminded me that no test is accurate and it does not matter- he knows I have Lyme. I would really like an objective finding So, I am going to try to get in with dr. P in ct. But, I just learned from another thread alreted me that he does not use Igenex either. If I want Igenex, I will have to get it myself and ask him to order it.
I went onto the Igenex site and I did not see how to order a kit. do you have to know which test you want when you order or can you order a multipurpose and Dr P will know what to order?

OR- should I just trust that Dr. P will do the right testing and not worry about Igenex?

Thanks!
Look on their website again. There should be an 800 number that you can call to order the test. The people who answer the phone are nice, and will send you the test kit(s) along with the packaging to ship it back to them. All you have to do is take the test kit and the shipping materials with you to your doctor...have the doctor or the nurses in his lab draw the blood for you. I think the blood has to be put in the centrifuge for awhile before it's shipped, and then the labtechs can pack it up into the shipping back and they can either ship it out from their office, or you can take it with you to ship. (my doctor had the shipping company pick the test kit up and shipped it from his office instead of me taking it to the shipping place.)

 
Old 09-11-2007, 08:05 AM   #9
Senior Veteran
(female)
 
Join Date: Apr 2007
Location: New York, NY
Posts: 2,162
Bearygood HB UserBearygood HB User
Re: question about Igenex testing

I found them very nice and helpful as well. Don't make your doctor appointment on Friday though, because of the shipping!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
IGenex Results - Need Help Understanding wdiguy Lyme Disease 1 03-10-2009 03:20 PM
Slow Road to Diagnosis...Question... monarog Lyme Disease 3 02-18-2008 05:19 AM
Where to start? Dr. appt. tomorrow (and eye question) Bearygood Lyme Disease 9 07-20-2007 08:29 PM
igenex lab question and arthritis question hmlyn04 Lyme Disease 2 06-06-2007 03:40 PM
Prema, you mentioned IgeneX may be covered by insurance??? Burnt Bees Lyme Disease 3 03-26-2006 05:47 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 08:45 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!