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Old 09-13-2007, 08:21 PM   #1
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For JoJo and others with brain related symptoms

JoJo,

I thought this would do more good over on the Lyme thread and maybe reach anyone else that has been having similiar symptoms. I haven't been diagnosed with Lyme but for some nagging feeling I think that it could be a strong possibility.

The basal ganglia calcification showed up on a CT of my head that I had done for the worst headaches of my live. It showed up on a follow up MRI that noted the basal ganglia calcification and no other significant findings.

I am most curious about the cause foremost to prevent further damage. I don't think there is treatment to reverse the damage that is already done.
However, I maybe wrong about that. My neurologist didn't seem all that concerned about it.

I would think that your doc would know if it was calcification or not. If they didn't, maybe you could do a follow up with another neurologist. After all we certainly have a right to know just what is going on with our bodies and especially our brains.

Take care

Grace

 
Old 09-13-2007, 08:33 PM   #2
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Re: For JoJo and others with brain related symptoms

Just wanted to list some of the symptoms I have been having that could be brain related.


short term memory problems
writing and saying the wrong words
making writing mistakes and missing them during proofreading
getting lost easily especially in buildings (getting turned around and confused easily)
severe headaches despite any amount of rest, relaxation, pain meds
seeing "stars" or the little white lights all around
dizziness
history of losing consciousness
pain going done only right side of my face

I think this stuff is neurologically related
stabbing pains in feet
shooting pains up legs
numbness and hands and arms that takes a good while to go away

I used to be extremely healthy and happy so I know this stuff isn't normal for me.

Thanks

Grace

 
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Old 09-14-2007, 06:21 AM   #3
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Re: For JoJo and others with brain related symptoms

Hi Grace...found you

So have you been to a LLMD? Have you had any type of lyme tests? I looked over your past post but couldn't find anything. What does your neuro say about all this? How does he say to treat it.

Been to many neuro's and like I said on the other board. I am burned out on different diagnoises. I' ve just gone with my gut feeling and the doctor I see now does look outside the text book box. The med's I have been on are helping some so I just have to keep whittling away .

Have you asked or done your own reseach and see if the area that is clogged up in your brain could that cause the symptoms that you are having.

I am real curious about what the docs are going to do for you. Keep me posted okay! I am sorry you are going through this...

Hugs to you!


 
Old 09-14-2007, 07:00 AM   #4
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Re: For JoJo and others with brain related symptoms

Hi Grace me again....

So is it clogged arteries, vessels, Or hard places on (in) the brain?

thank you for your input...


 
Old 09-14-2007, 04:01 PM   #5
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Re: For JoJo and others with brain related symptoms

Jojo,

I'm still trying to figure all this out myself. My neuro isn't a big help either. He didn't seem all that concerned about it although he did note that someone my age shouldn't be having it. He refered me to a neuropyschologist? to evaluate my memory problems better. He said they would do a bunch of tests and send him like a ten page evaluation on what they discover. He doesn't know what is causing it so no treatment yet. Although, I'm sure when and if they find the cause they can treat the cause which should help prevent further damage.

I am going to keep persisting on finding a cause. It's hard to say if any of my symptoms are related to that although I'm sure it has to have some effect on my over all health.

So your doc thinks that it is some kind of bacteria or virus causing your problems? Is something showing up in your bloodwork to suggest that? Just curious if you have similiar symptoms as me.

I haven't been tested for Lyme yet. I asked my primary doc back in April about it and they pretty much dismissed the idea immediately. I guess they won't even entertain the concept of chronic lyme. However, since then my symptoms have gotten much worse. I figure that I'm going to have to be my own advocate and keep trying until I find a doc that will consider all possibilies.

I'll keep you updated on new developments.

hugs back at you
Grace

 
Old 09-15-2007, 06:47 AM   #6
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Re: For JoJo and others with brain related symptoms

Morning Grace...

I feel if you got to a LLMD instead of these doctors running you around. That "might" help all of your problems. If I had known about this board back when I was truly trying to find answers it would of saved me soooo much energy and I would of understood to get to a sprecialist instead of leaping from one doc to another.

Yes my doctor has gone on my blood test for bacteria (s) and virus's. He is a specailist in the chlamydia bacteira, Epstein Barrr, Cytomeglovirus, he is involded in research at Stanford University. He does treatments with many protocols. He is a specialist not a g.p.

If you read up on the virus's let's say...they do like bacteria (s) and imbeded themselves in the temporal artery, other vessels, lungs, muscles, heart, every thing...(not sure about bone) ...

When you read up on Lyme bacteria (s) and the C.P. bacteria they invade your whole body as well. Brain, arteries, blood vessels, bone, muscle, organs...

There is alot you can learn by searching the internet. I have gone to places like Mayo and neurologist and shrinks and ect ect ect. They all told me "Gee I don't know what that is" YOU better learn to live with it...well I was on my way to a care home so I had to find someone to look outside that box. And oh my gosh ...once I started reading and trying to find more answers...It wsa like oh my gosh how easy this would of been to fix years ago...

Anyway I hope you look outside of the doctors you are seeing. I have been tested by Mayo in the physc ward. And you want to know what they came back with...I had alsheimers, ADD and beacuae I had partied when I was younger it damaged my brain....What a flippin joke! So I asked what is this on my head....They had noooo clue...

Anyway I am hoping and Praying that you find the answers you are looking for. And if you are getting worse...I hope it is soon. It just breaks my heart that sooooo many people are mis-diagnoised. When all it would of taken is treatmetn with antibiotics....

Keep us posted ....

Big hugs to you!


 
Old 09-21-2007, 03:28 PM   #7
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Re: For JoJo and others with brain related symptoms

Greetings JoJo,

Just wanted to give you a quick update. I went to my Endocrinologist today and told him about the calcification. He said it's like scarring in the brain. He ordered the most labs I think I've ever had taken in my life. He said he would also talk to my neurologist and see if he recommends anything he forgot to test. He said there are many possible causes to include parathyroid problems, genitic problems, and so on. He ordered a toxo panel among other things. Do you know if this is testing for toxic diseases or something else?

Have you heard anything new and or promising from your doc?

Grace

 
Old 09-21-2007, 08:38 PM   #8
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Re: For JoJo and others with brain related symptoms

Hi Grace..I looked on the internet and from what I understand that toxo panel is looking for "Toxoplasma gondiir" which from what I read is a bacteria carried in cat feses...do you have cats? Are you pregnant? You might want to research it...

Scarring of the brain....hmmm...So how did you get this scarring of the brain? Is it like a type of brain tumor? I just don't understand how one would get a scare on their brain...more reading on my end ...

So did he say how he can help you? Is this suppose to be lyme or bacterial related or did he say?

No updates from any doctors on my end. I should call and make an appt. But it is just the same with me...keep taking my med's. And for me to remember to smile and laugh during the day...

Keep us posted on what happens with your doc's okay?

Hugs to you!!


 
Old 09-23-2007, 10:47 AM   #9
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Re: For JoJo and others with brain related symptoms

Hi Grace,

I was searching yesterday about scaring of the brain. I found that YES bacterial infections can cause scarring...

Just wanted to share that with you...

hugs


 
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