I'm waiting for my llmd app. beginning of oct., but I have a question about a symptom. Does anyone have a feeling of a bad hang-over when they wake up. I know it's one of the listed symptoms, but do any of you experience it?
I wake up every morning or from a nap feeling like I have a terrible hang-over. My eyes are blood shot and my whole body aches. It's like while I'm asleep, whatever it is, activates. Worse than once up and moving around.
I wake up every morning feeling like total crap. It's really bad because the fatigue makes me REALLY tired and I need to sleep. But when I wake up it's always hell. In the past I was always a really good sleeper. 8, 10, or even 12 hours was great! I could sleep straight and not wake up. When I did wake I would feel great. Now I'm up after about 4 or 5 hours. Usually around 2 or 3am. It takes around 2 or 3 hours to get back to sleep.
I know sleep disturbance is also a symptom but I'm more interested in the hang-over feeling any of you may experience.
P.S. It's not from drinking or drugs. I haven't had anything like that in a VERY long time.
Yup, very similar. Always up around 2-3 am and stiff and sore when I wake up. I do not get bloodshot eyes or upset stomach though. I have heard that there are pathogens related to the Lyme which feed most at night when your blood presure is lower.??
Thanks for the info. I don't get an upset stomach but the blood shot eyes are pretty bad. That's interesting because that's kind of what it feels like "them feeding". Once I'm up and moving around I feel better. I never feel good, but better.
Anyone else with this symptom? mc
This was a huge one for me. It continued to become more extreme with each passing year, until after 24 years, I began not only to feel like that in the morning but that feeling remained there all the time. I felt slow, sluggish, and like I had drank a lot and taken cold medicine the night before. I always had difficulty sleeping...I felt nervous and jittery when I would try and close my eyes. It was awful.
The detox baths with the baking soda and peroxide gradually helped me to work out years of this toxic back up and this is no longer a symptom for me. It is wonderful not to feel that way. I also remember last year when I woke up for the first time and looked refreshed, with a rosey look on my face. I had not seen that since I was a child. I have always looked extremely pale since I was infected even after sleeping.
Hey mctassi, how's it going? When is your LLMD appointment? It's coming up soon right?
I was wondering if you were ever tested for Lupus? The more I read the more I find out that Lyme and Lupus are VERY similar. Lupus is also called the great immitator! Even tho I got a positive on my IgeneX resluts, I'm still looking into this.
My LLMD app. is on oct. 3rd. I don't think I was tested for lupus. Is it one test? Is it done through bloodwork? Or are they looking at you blood test results for indication? ie CBC with diff. or anything like that? I've had tons of blood tests that are all with in normal range.
I also have a follow-up nuero app. at the VA on the 1st. Kind of dreading that because the first thing they'll say is why are you here? Last thing I had done was a mri of my neck. It shows disk degen. and buldging somethings. I'll have to review the report before I go. I know the lyme(?) is causing it. It didn't just appear for no reason. Like I tell the docs. I have ONE thing effecting my whole body. They just don't listen.
I'm also going to go over some past ct and mri's of my brain.
1) 2002 ct head- calcifation spot
2) Jan. 2006 ct head- enlarged ventrical (stated possible birth defect)***
3) July 2006 mri head- white spots
I want to know why in 2002 no mention of enlarged ventrical. So how could it be a birth defect? Isn't that something that should be noted on a CT if seen. Why not noted in 2002?
july 2006- enlarged ventrical not mentioned in report. Did it go away? If so, ***?
My head and neck have some serious S*** going on in it. I feel it! And docs. keep telling me "it's normal". Well it's not normal. I really would like some answers.
If I didn't have an enlarged ventrical in 2002, but in 2006 I do, you don't have to be a "DOCTOR" to know something is wrong.
Another topic. LLMD app. GREAT! Looking forward to it. However, I'm not looking forward to the financial problem. Office visit is very reasonable. $200 per hour. I plan on rushing him. Usually it's the other way around. haha.
I don't have normal insurance. I go to the VA. Problems are going to arise with any additional blood tests, and treatment. The VA only fills scripts from VA docs. Same with blood work. VA doc has to order it.
I'm throwing around a lot of options. I live within driving distance to Mexico. Take script there to be filled? Maybe get state assisted low-income assistance for med. and perscriptions? If I do would the state script plan cover lyme treatment? I just don't know right now. Dr. Donta in Boston listed himself as affilated with the VA for gulf war syndrome. I don't know if he still does VA work. If so, can he work with the LLMD here. So much to figure out. How I'm going to pay for all of this or how it's going to get paid for is really overwhelming. I'm taking everything one day at a time. Next step is to just SEE the LLMD. How things will work out after that who knows?
Well, too much about me. How are you? Do you feel like you're making any progress? mc
To answer your question regarding Lupus, yes you test through blood work. Apparently, this disease is very similar (symptoms wise) to Lyme....
With Lupus, your own immune system attacks itself ie> organs, tissue, skin, brain etc.
Not to add another disease to your plate, but it is always good to rule out other things. As you already know, I tested positive with IgeneX, but I am still going to test for Lupus. Just to make sure!
zand, I think it's ANA and DNA? Not sure though. The specialist to see is a Rheumatologist.
If you look up this disease, it's amazing how close lyme and lupus is.....they both can cause joint pain and a slew of other symptoms!!! And get this, with Lupus, when taking antibiotics, the antibiotics can cause a "flare" (symptoms) because the sulfa in the antbiotics is not tolerated for people with lupus. Scary, if you think about it.
The differnece between the two diseases is, with Lupus, your own immune system attacks itself, so you need to take drugs to supress it. But with Lyme you need to build up your immune system. So you see, you MUST know for sure which it is.
ANA testing isn't a very specific test. It can tell you a "positive" result, but not necessarily detremine "lupus". I myself had a positive ANA after becoming ill from an "unknown cause" while patrolling Sinai Egypt with the U.S. Army in 1993. However, now my test is negative even though my initial reading was incredibly high (5 times higher than is considered for lupus). All it really does is establish a reading of an "anti body", but isn't really specific to which one. I can't remember off hand what other tests can be used to diagnose lupus, but I believe its a combination of a ANA positive result and the evaluation of symptoms by your Dr.. Obviously, if my test which was once positive, is now negative, then their is room for the test to miss a positive result. If you check the info on the ANA test, the developers consider a person with a positive result to always be positive and to expect variations in results based on your body at the time. I hope this answers your question.
Have a nice day.
Last edited by Administrator; 09-24-2007 at 07:24 PM.