I wrote a post earlier titled "New Here" and I said I would start a new thread with my symptoms. I highlighted the symptoms that I have from the symptoms list. First I will tell you what specialists I've been to and the tests I've had.
I started seeking help from the Drs in Feb, 2007 after not feeling well for a few months (since Oct 2006). As I think back approx 8 yrs, I had gone to the Dr several times for a symptom here and there, but they weren't all together at the same time so they just seemed minor and there were things I didn't even mention. Something had to be really bothering me in order for me to go to the Dr. I think the first major thing I started having was migraines and headaches and was given migraine meds. I recall going for tingly hands/arms and she thought it was carpal tunnel but it wasn't. I went for weird chest pains a few times but tests came out normal. I mentioned seeing spots and she said it was probably just floaters and thats normal. I was put on wellbuterin for depression because I was suddenly crying all the time and feeling frusterated with the kids alot. I know I had sciatica and back pain on and off. I had told her several times that I was tired alot, but it wasn't nearly as bad as it is now. Thats all I can think of right now. She did routine blood testing, etc but she mainly just gave me prescriptions for everything. Oh, I also had dizziness on and off.
Ok, back to Feb 2007. I went to the Dr with a list of symptoms I had been having. Since Oct 2006 my heart had been racing and pounding on and off, but it progressively got worse. I did an event monitor test for a month and they said I had supraventricular tachycardia and that I would be ok. It was bothering me so much because I could feel my heart pounding up in my throat. My Dr put me on a beta blocker and sent me to the cardiologist. He did a 2 day monitor and said it was just the tachycardia and I would be fine and to keep taking the meds. I did have a stress test in 2005 due to chest pain and it was normal. I started having trouble swallowing and getting food stuck and sometimes it would hurt to swallow. This past May I went to a GI Dr and he diagnosed me with esophageal dysmotility and said the muscles in my esophagus weren't working normal. He dilated my esophagus and that did help with some of the problems I was having in my throat. I started having most of the neurological symptoms in May and then went to a neurologist. She listened to me and was really nice and said I wasn't crazy and there was something wrong but she doesn't know what. I had a brain MRI and it was normal except for a birth defect which I never knew about and she said it was nothing to worry about. She told me to try to eat better and exercise and be less stressed and to keep track of my symptoms and come back in 2-3months if I was still having these symptoms. My next appt is Oct 5th. I was at my regular Dr this week and she thinks its all in my head and just wanted to give me more meds, which I refused. It was a couple nights ago that I saw Lyme Disease on Mystery Diagnosis and realized how similar my symptoms were to the man on there. Then I found this board. My symptoms are highlighted here:
Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair lossSwollen glands Sore throat
Testicular pain/pelvic pain Unexplained menstrual irregularity
Unexplained milk production: breast pain Irritable bladder or bladder dysfunction Sexual dysfunction or loss of libido (Sometimes) Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting painsFacial paralysis (Bell's Palsy) Eyes/Vision: double, blurry, increased floaters, light sensitivity Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity lncreased motion sickness, vertigo, poor balance
Confusion, difficulty in thinking
Difficulty with concentration, reading Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places (little bit) Difficulty with speech or writing Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol
The one thing that just struck me about your post is the "birth defect" with your brain MRI. I was also told I had a birth defect on my CT scan. Is your's and enlarged ventrical? It would be interesting if it was.
My report says "ventricles are asymmetric with an enlarged left lateral ventricle occipital horn compared to the right." Then the report says probably congenitial. The doc told me probably a birth defect.
I have my 1st llmd app. on Oct. 3rd. So I'll find out more info then.
Please let me know if your "birth defect" has to do with a ventricle.
If it does I think that is more than a coincidence. Take care mc
P.S. Most of us cry a lot easier than we use to.. I cry over the littlest thing. Others will probably tell you the same thing.
Last edited by mctassi; 09-20-2007 at 06:31 PM.
Reason: add p.s.
That is so interesting! I think my MRI report says something very similar to what yours says. I'm going to look for it right now and get right back to you. Its lost on my desk in the stacks of papers, haha. I have really been wondering about this too.
Mine's a little different, I guess. Its still interesting we both have a congenital defect on our brain. I wonder if anyone else on the board might have this?
My MRI report reads "Note is made of absence of the septum pellucidum with inferior "pointing" along the inferior aspect of the frontal horns of the lateral ventricles." It goes on to say it is a congenital variation. The neurologist explained it to me as a birth defect that does not affect me. Maybe it does affect me and she just doesnt know it. Hmmm
I really don't think it's a birth defect. I think it's all related, but to convince a doctor is another story. Both have to do with the lateral ventricle. I hope a LLMD will shed some light. Maybe he has seen this before.
Also, when I go to nuero. I'll ask them to assume it's not a birth defect what significance/brain function would it effect. I'm sure they'll just feed me some B*******. Thanks. mc
so many of us here on this board thought we had MS before we found out it was Lyme. Have you looked up a Lyme literate doc (LLMD) in your area yet? No matter what your tests, etc say, do not let any doc tell you that you do not have Lyme except an LLMD. It is a very mis-understood disease, as you probably are aware from Mystery Diagnosis.
About 50% of people with Lyme do not recall being bitten by a tick (I do not) Good luck!