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Old 09-21-2007, 05:02 PM   #1
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Join Date: Aug 2007
Location: Omaha, NE
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ohgoodness HB User
Referral for Omaha?

Does anyone know of any good lyme disease doctors in or near Omaha, NE? My 4-yr-old son has a bullseye mark, and I don't want to waste my $$ going to the pedi----I want to go to a specialist, y'know? I've tried googling for it, but to no avail. Thanx!

 
Old 09-22-2007, 11:31 AM   #2
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Erin524 HB User
Re: Referral for Omaha?

If you find one in Omaha, tell me. I live there. I havent been able to find one...

My aunt told me about a couple of infectious disease doctors that she's worked with at UNMC, that she thought they might be good doctor's to see. I havent called them yet. (been sick with stomach flu, and a weird infection in my nose, and just been too busy when not sick to call them) I dont remember their names offhand right now...I'll have to ask my aunt again.

I'm going to have myself tested for all the lyme co-infections thru Igenex in a few weeks. (on antibiotics right now for the weird nose infection) It's a $600 test, but my dad said he'd pay for it for me.

I just want to be able to go to the doctor with test results and hope they dont tell me they're false positives. The last ID doc I saw was rude to me and said in his very heavy Farsi accent that the 2 bands of bacteria I had on a WB were false positives and basically treated me like I was crazy.

 
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Old 09-23-2007, 10:25 AM   #3
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ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
Re: Referral for Omaha?

Hi ohgoodness, welcome to the board!

I am sorry your son has Lyme. Be sure to get photos of his rash. It is important documentation. Place something near the rash, like a coin or ruler, before photographing it to give it size definition. Although only about 50% of people who have Lyme ever get a rash, a bullseye rash is a definite sign of Lyme. The rash alone merits treatment.

There is only one Lyme pediatrician in the country: Dr. Charles Ray Jones in New Haven, CT. I suggest calling his office for advice. Maybe he could consult with your son's doctor regarding treatment.

From what I understand, an infection caught within two weeks of the bite should be treated with a minimum of six weeks of the proper dose antibiotic. The antibiotics kill the bacteria when they are reproducing, which is estimated at four weeks. Six weeks of treatment will cover one growth cycle. If symptoms are still present, further treatment is warranted. A longer infection needs longer treatment.

Below is a Lyme symptom list. There can be any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

It is very important to see a kowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.

The sooner your son gets proper treatment the better. Early infections are the easiest to cure. I cannot stress this enough.

It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses (on-line). He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know about Lyme Disease
(2nd edition)" by Karen Vanderhoof-Forschner.

 
Old 09-23-2007, 12:35 PM   #4
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Join Date: Aug 2007
Location: Omaha, NE
Posts: 9
ohgoodness HB User
Re: Referral for Omaha?

Thank you both for the responses. I'm sort of on the fence about taking him to the doctor: The bullseye was small (size of a quarter) and no rash spread. The next day, it was barely noticable. Both kids (I also have a 2-yr-old girl) have had several bug bites in the last few weeks (they look like pimples--all pink), and I've been assuming these were spider bites (lots of spiders around here). There are NO LLMD's around here, so I'd be taking him to a regular doctor, and I imagine I'll just be brushed off and given a big bill. We don't make much money, yet we're just a couple of thousand dollars over the poverty guidlines, so we don't qualify for assistance. So, if I knew that this was definately a tick bite, I'd take him in, and if I knew of a nearby LLMD, I'd definately take him in, but since I'm uncertain, and there's no LLMD, and we live paycheck-to-paycheck, I'm really wondering what I should do. Advice?
Also, what is the name of the antibiotic used to treat lyme? Maybe I can convince a doctor to prescribe it.

 
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