I can relate to feeling awful. I have been through a few bouts of feeling just horrid. I've had periods where I vomitted for days, periods when I could not sleep, times when I could not keep my eyes open, times when I could barely drag my body out of bed to pee.
I am a single mom and it can be harrowing to have to take care of others when you are so sick yourself you can barely walk and think.
Treatment can vary. It depends on many things.
It depends on how long you were infected before you began treatment, if you have any co-infections, what strain of Lyme bacteria you have, how strong your immune system is and how your particular body reacts to drugs and treatment.
Personally, I think I was bitten sometime in spring of 2002. I began treatment in January of 2005. I have been taking drugs for 2 years and 9 months. I know that sounds like a long time but I do feel better.
Sometimes I Herx on a regular basis, other times I don't. Sometimes I try a drug that has no affect, other times I have nice improvement. It depends on so many things.
One of the worst parts for me is not knowing when it will end. Will I ever get better? Will I get close to being better? How much longer do I have to endure this?
It's a roller coaster ride of the worst kind. Never knowing how I'll feel from one hour to the next.
Your LLMD is the best person to ask. He/she will know, based on their experience and your personal history, when to change drugs and when to stop treatment.
As a general rule, I believe treatment for Lyme is continued for 3 months after symptoms have gone away.
Hang in there. We're there with you, hanging too.
Peace and health to you,