My Lyme began with a constant sore throat, dental pain, jaw pain and neck pain so excrutiating I felt like someone was standing on the side of my neck. I spent 2 Sundays in the ER before I was diagnosed with Lyme because I felt like I might be having a stroke. I was also sure I had some rare cancer or some other serious illness that they had missed. Of course the Drs. were mystified because my original Lyme test was negative (sound familiar!)
Here's some history - I got Lyme in December 2005 and my symptoms began on January 1, 2006. I wasn't diagnosed by my Grand Rapids Dr. until June 2006. By then I had had a needless tonsillectomy because the Drs. here didn't know what else to do with me. As a result I was put on 6 weeks of steriods for the swelling which made the Lyme thrive. By June I couldn't hold my head up, had tremors and pain so excrutiating I could hardly function.
In June 2006 I tested positive for Lyme (with Igenex) and my LLMD put me on 5 weeks of Doxy and 3 1/2 weeks of IV Rocephin. That helped get my CD-57 cells up to a level where my Dr. felt I could be taken off the meds (120).
From August 2006 until a month ago I was off antiobiotics but took all the natural stuff (Samento, Noni, etc.). I continued to have terrible neck and jaw pain. I began seeing a Chiropracter in Birmingham who helped me quite a bit however the pain always came back. However I continued to see her and I am glad I did - she works my jaw muscles from the inside, my neck and back.
Back to a month ago - I went for a check up with my LLMD and had another CD-57 test and my results went from 120 (when the picc line was removed) to 34! So my Dr. started me on another round of antiobiotics. I have been on them now for almost 3 weeks. I am taking Flagyl and Amoxicillan. Since I have been on them my pain has almost gone away. I think that with the chiropractic work has made all the difference.
So hang in there. You will feel better but you have to seek out help. Chiropractors are great! My Chiro (and my nephew and his wife who live out west) went to National Institute of Health in Chicago - a great school for Chiropractors. I would recommend seeing a Chiro who is a graduate of this school.
It will get better. I am leading a normal life right now. In fact I have even been business traveling again almost every week.
Sounds like we have had a very similar Lyme experience (nightmare??). Please let me know if you have any questions or if I can help you at all.