Results of my last LLMD appt
Just thought I would post what my LLMD said in his letter to me today. I had asked him about Babesia (I'm fairly certain I have it) and treating it based on my symptoms. I also asked about when we could try to get me a PICC line. I also asked about getting on Flagyl b/c I had the biggest herx on that. I also asked him about his opinion on Cat's Claw. Here's what he said in response:
W/ regards to the cat's claw, that would be fine to take that along w/ antibiotics. I have not seen any dramatic results in people who have taken it, but it does appear to be safe and doesn't interfere with the abx. With regard to Flagyl, I am not opposed to trying it, although I would certainly be careful w/ it since it can cause a significant herx reaction. I would consider holding off on it now until we sort out some of these other issues (i.e. Babesia) and that we are sure that you have adapted to the current antibiotics.
In terms of going to the IV therapy, certainly that is a consideration. Patients who have not improved significantly on oral antibiotics and have neurological symptoms are reasonably good candidates for the IV therapy.
I agree that Babesia is a considerable concern w/ you, particularly given the severe night sweats, dark urine and low RBC count. The tests for Babesia are not great, however, there is a new recent test that we have been using that seems to be better than what we have had before. I have had over 20 positives tests just this summer looking for this newer strain (WA-1) than I have seen in a decade. Therefore, I do think that it would be worth getting the routine tests. I may consider treating you anyway even if the tests come back negative; however, if the tests were to come back positive, we would definitely have an answer.