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Old 10-12-2007, 09:34 AM   #1
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Location: WI
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Vision problems - Distorted wavy lines

For 10 years I have been aware that my vision in one eye is distorted. I wasn't so aware of it because I use the "mono-vision" system contact lenses in which you wear one lens for distance and use the other eye naked, as it were, for reading. However, I noticed I couldn't read as well as I used to - I had to scan back and forth to pick up the letters. This only occurs when the type is small enough to be totally distorted - larger type is only somewhat distorted and I can see the bulk of the letter. I realized I had a problem when I saw a photograph of my mother which was just the right size and I was unable to recognize her. I was familiar with the photo and KNEW it was her, but couldn't see it.

I saw an ophthalmologist several times and he referred me to a retina specialist. They haven't come up with any reason for this distortion. The distortion of the vertical lines on the Amsler grid have progressed from involving one vertical line to involving 2, which I guess isn't bad for 10 years.

This condition, whatever it is, has made my vision correction somewhat of a challenge. If I wear a lens for distance in the affected eye, the size of the distortions is frightening - cars coming towards me seem to undulate or wiggle. This can't be a safe way to drive.

None of the eye doctors seem to be concerned about this problem. I'm not SO concerned since they don't seem to find any bleeding, etc., but it's affecting my quality of life. I can probably devote more time and effort to finding a correction system - a combo of contacts and/or glasses that allow me to read as before (my job has a lot of reading in it and it's difficult reading of legal text), but I can't help being concerned that this is something that should have treatment. I did have an angiogram with negative results about 8 years ago. I also had a diagnosis of Lyme disease in 1986 which went untreated for 6 years. The diagnosis was made with a positive Western Blot and a history of having a huge Lyme rash on my leg.

Does anyone have any suggestions or similar symptoms? I'm going to cross post to the MS forum here. Thanks.

 
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Old 10-12-2007, 12:05 PM   #2
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ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
Re: Vision problems - Distorted wavy lines

Hi saintj, welcome to the board!

I am sorry about the eye problems you are having. I know it must be very frustrating.

When you had Lyme before, do you remember how long you were treated? Were you treated until all symptoms were gone plus a while longer? It could be that you were not treated long enough and/or aggressively enough. It is also possible you could have been bitten again.

Below is a Lyme symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

It is very important to see a kowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. No test is completely reliable, and results can vary by lab.

Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. It is estimated that 60% of people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.

If you need a doctor recommendation, let us know.

It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses (on-line). He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know about Lyme Disease
(2nd edition)" by Karen Vanderhoof-Forschner.

 
Old 10-12-2007, 08:38 PM   #3
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Re: Vision problems - Distorted wavy lines

Hi Ticker,

I was a member of the sci.med.diseases.lyme message board for several years. I have read extensively about Lyme and no, I don't think I was treated aggressively enough or long enough, but that's a chance that will never come again. I have read Dr. Burrascano's recommendations and follow some of them regarding supplements and I read the Everything You Want to Know book .... in 1992. After reading that book I decided I had Lyme and a rheumatologist agreed with me, given my symptoms. I had 3 WBs from different labs and 2 were positive. The ELISAs were negative, of course. I also had had the rash which grew to about a foot in diameter. A dermatologist thought I had contact dermatitis.

I stopped participating in the forums, message boards and a local support group when I started to feel better and when the politics of this disease seemed almost insurmountable I just gave up. The tide is changing finally, but not quickly enough. Considering I've had this disease for 21 years it hasn't been too bad, but I'm starting to get MS type symptoms and I'm worried about what's next.

My husband was bitten by a tick 2 years ago and had a 6 inch bullseye rash on his side, under his arm. I immediately made him go to the local walk-in clinic where the doc told him he had ringworm. He also told him it couldn't possibly be Lyme because the Lyme rash only appears on the BACK! In the face of such ignorance I could hardly keep my temper. Actually, I didn't keep it and the doc said, "Oh, you're one of those..." My husband had to restrain me :>

I would like a LD MD referral for Wisconsin or anywhere in the upper midwest, hopefully some one who actually keeps up on medical literature.

Thanks again.

saintj

 
Old 10-14-2007, 06:54 AM   #4
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Location: USA
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LymieGirl HB User
Re: Vision problems - Distorted wavy lines

Quote:
Originally Posted by saintj View Post
For 10 years I have been aware that my vision in one eye is distorted. I wasn't so aware of it because I use the "mono-vision" system contact lenses in which you wear one lens for distance and use the other eye naked, as it were, for reading. However, I noticed I couldn't read as well as I used to - I had to scan back and forth to pick up the letters. This only occurs when the type is small enough to be totally distorted - larger type is only somewhat distorted and I can see the bulk of the letter. I realized I had a problem when I saw a photograph of my mother which was just the right size and I was unable to recognize her. I was familiar with the photo and KNEW it was her, but couldn't see it.

I saw an ophthalmologist several times and he referred me to a retina specialist. They haven't come up with any reason for this distortion. The distortion of the vertical lines on the Amsler grid have progressed from involving one vertical line to involving 2, which I guess isn't bad for 10 years.

This condition, whatever it is, has made my vision correction somewhat of a challenge. If I wear a lens for distance in the affected eye, the size of the distortions is frightening - cars coming towards me seem to undulate or wiggle. This can't be a safe way to drive.

None of the eye doctors seem to be concerned about this problem. I'm not SO concerned since they don't seem to find any bleeding, etc., but it's affecting my quality of life. I can probably devote more time and effort to finding a correction system - a combo of contacts and/or glasses that allow me to read as before (my job has a lot of reading in it and it's difficult reading of legal text), but I can't help being concerned that this is something that should have treatment. I did have an angiogram with negative results about 8 years ago. I also had a diagnosis of Lyme disease in 1986 which went untreated for 6 years. The diagnosis was made with a positive Western Blot and a history of having a huge Lyme rash on my leg.

Does anyone have any suggestions or similar symptoms? I'm going to cross post to the MS forum here. Thanks.

Hi, Saint!

Have you ever thought about trading your contacts in for a pair of glasses? They might be gentler on your eyes.

My brother used to wear glasses just for driving or watching TV and then had them off at other times, especially for reading. (He doesn't have Lyme, and had Lasix surgery, so he doesn't wear glasses anymore.)

In your case, you might try 2 different pairs of glasses...one for distance and one for reading.

I don't know what to tell you about the "vertical line" problem. There must be some doctor out there who can help you if you keep looking. I once read that for everything that is broken, there is someone out there who can repair it...it's just a matter of finding that person.

Blessings,
LymieGirl

 
Old 10-14-2007, 07:04 AM   #5
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Join Date: Oct 2007
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LymieGirl HB User
Re: Vision problems - Distorted wavy lines

Quote:
Originally Posted by saintj View Post
Hi Ticker,

I was a member of the sci.med.diseases.lyme message board for several years. I have read extensively about Lyme and no, I don't think I was treated aggressively enough or long enough, but that's a chance that will never come again. I have read Dr. Burrascano's recommendations and follow some of them regarding supplements and I read the Everything You Want to Know book .... in 1992. After reading that book I decided I had Lyme and a rheumatologist agreed with me, given my symptoms. I had 3 WBs from different labs and 2 were positive. The ELISAs were negative, of course. I also had had the rash which grew to about a foot in diameter. A dermatologist thought I had contact dermatitis.

I stopped participating in the forums, message boards and a local support group when I started to feel better and when the politics of this disease seemed almost insurmountable I just gave up. The tide is changing finally, but not quickly enough. Considering I've had this disease for 21 years it hasn't been too bad, but I'm starting to get MS type symptoms and I'm worried about what's next.

My husband was bitten by a tick 2 years ago and had a 6 inch bullseye rash on his side, under his arm. I immediately made him go to the local walk-in clinic where the doc told him he had ringworm. He also told him it couldn't possibly be Lyme because the Lyme rash only appears on the BACK! In the face of such ignorance I could hardly keep my temper. Actually, I didn't keep it and the doc said, "Oh, you're one of those..." My husband had to restrain me :>

I would like a LD MD referral for Wisconsin or anywhere in the upper midwest, hopefully some one who actually keeps up on medical literature.

Thanks again.

saintj
I've never heard of the Lyme rash just appearing on the back. Mine was on my thigh. It was only about 2 inches in diameter. I ignored it thinking it was just an allergic reaction to a bug bite. At the time, I didn't know anything about Lyme. It was a mistake to ignore it.

I hope you found a doctor who would give your husband antibiotics. Antibiotics often cure Lyme if given within a certain window of time. I'm not sure what that window is, but I think it's within the first 6 months. (Someone please correct me if I'm wrong.) I do know that Lyme is almost always curable with antibiotics if they're given soon enough. If you didn't get antibiotics for your husband, please do! The sooner the better, Saint.

LymieGirl

 
Old 10-14-2007, 12:24 PM   #6
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ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
Re: Vision problems - Distorted wavy lines

Hi saintj. It never ceases to amaze me how incredibly ignorant some doctors can be! The bulls-eye rash only appears on the back if you have Lyme??!!! Insane! Others have been told that there rash was not large enough to be Lyme! Are these doctors making it up as they go along?

I hope your husband got treated.

I am sorry you have been dealing with this for so long. I have heard that the following WI doctors are knowledgeable, but I do not know if they are: Dr. Waisbren, Waisbren Clinic in Milwaukee; Dr. Steven Meress in Fon Du Lac; and
Dr. Hoffmann in Eagle River.

Have you been in contact with any Lyme support groups in your state? They may have more information on these doctors.

Good luck!

 
Old 10-14-2007, 07:06 PM   #7
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Join Date: Oct 2007
Location: WI
Posts: 12
saintj HB User
Re: Vision problems - Distorted wavy lines

Hi Ticker,

Thanks for the info. I haven't been aware of a support group in my immediate area for a long time. The local one disbanded about 10 years ago. I'll check around the state.

saintj

 
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