Hi, for abouts 3 weeks now my knuckles on both hands have been very swollen, hot and painful. so much so I cab't make a fist. In the moring my hands look like claws can hardley get my fingers to bend or open up completely for a quite a while also have had a temp about 100. on & off for 2 weeks . and feeling drained . tired and no energy. went to MD and had labs done got results and today was told I had had lymes disease . but thye rest of the labs were ok . wbc was 10.9 arthritis stuff was all ok. afew weeks ago I had some really horrible head aches that nothing I took would make them go away , also my vision in one was bothered . but that's ok now . Md is sending me to rheumatoidologist? in the mean time am in a great deal of pain darvocet and 800 of motrin don't touch this and now it feels like the pain is moving up inot my elbow area.md said she thought it might be a conective tissue problem ???cause by the lyme anyone have any suggestions on this . thanks Blu
I am sorry you are feeling so bad. It is good your test was positive so you can get the treatment you need. Some people who have Lyme do not test positive. You need to be treated as soon as possible.
Lyme disease is a multi-system bacterial infection caused from the bite of an infected tick. It can cause many seemingly unrelated symptoms. It needs to be treated aggressively with antibiotics.
Below is a Lyme symptom list. You can have any combination of symptoms.
Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol
It is very important to see a kowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these?
It sounds like your infection is relatively early, which is good. Early infections are the easiest to cure. Getting the proper treatment early in the infection may reduce the chance of long-term complications. I cannot stress this enough. Untreated or under-treated Lyme can be very debilitating.
If you need a doctor recommendation, let us know. There are a couple of excellent ones in CA.
It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses (on-line). He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know about Lyme Disease
(2nd edition)" by Karen Vanderhoof-Forschner.
Hang in there okay? Good help is available, and you are not alone.
the md is sending me to see a rheumatoid md. she didn't seem to concerned about it .have alot of the symptoms . also have had MRSA a few times when I told her thid she was kind of surprised this is a new md for me . changed doc due to lack of interest from prior one . I don't have labs inb front of me or could tell you what they were but thanks for your help so far . flagirl as that is where I was from am now calif girl ...lol blu take care
IT IS WHAT IT IS .....PERIOD
Last edited by CALIFBLU; 10-17-2007 at 05:12 PM.
Reason: checked lab tests it says > 198 positive for west nile to recheck in 2-4 weeks for possible lymes
Hi Califblu, Since you have the positive lyme test, you might consider skipping the rheumatologist and go straight to a lyme literate doctor (Known here as an LLMD) The rheumatologist may not be educated about what the lyme bacteria do and end up prescribing medications that suppress your immune system which will make things worse. I believe this is what happened to my husband and to many other people who have posted here. I hope you find a good doctor quickly and can get back to good health very soon.
Sorry so I must had read test wrong , all I know is I feel like I've been dragged up and down the Mt. a few hundred times. and beat up with a bat .now have sore throat. guess I'll just wait and see what happens . Blu
results said positive for west nile >198 to recheck in 2-4 weeks if any symptoms occur for lyme
as far as symptoms I have alot of those now . if they occur in west nile as well.
Hi Califblu...I'm not understanding the post...ugh...sorry...
So you have West Niles and Lyme??? Are they treating you for either of them. Oh my gosh I hope you are doing alright.
Your from Florida? Is that were you got the west niles and the Lyme? wow talk about double whammie.
Where abouts are you in N.Ca. I live in Portola Ca. The last time I was bitten by ticks was in Grass Valley, Nevada City area, those are the bites that truly knocked me down and was told it wasn't in that area...idiots!
Are you seeing a Lyme knowledgeable doctor? If not and need one you might post a new thread asking whom to seek out in your area.
NO SORRY FOR THE CONFUSION THE TEST READ POSITIVE FOR WEST NILE . I READ IT WRONG . ALSO RHEUTMITOID ??? OFF SO THEY WANT ME TO GO SEE SOMEONE ABOUT THAT IT SAYS ON LAB WORK ABOUT GETTING CHECKED FOR LYME IN 2-4 WEEKS . i LIVE IN N.CALIF .BLU