It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lyme Disease Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 10-27-2007, 12:47 PM   #1
Senior Member
(female)
 
Join Date: May 2006
Location: england uk
Posts: 141
topsy123 HB User
Lyme lesions???

I have written on the MS board as well as here, as I have an on going illness that as yet has not been diagnosed. Some of my symptoms match that of MS and others Lyme Disease. So getting diagnosed is not easy, especially when your faced with neuros or GP's that don't appear to be very proactive. However, I do have a question. I started with one lesion on my brainstem, wich remained there for around 3/4 years. On having my last MRI, it revealed a large number of white spots/lesions on my brain as well as my spinal cord. These however do not fit what they call the normal shape of MS lesions. Is it possible to have white spots/lesions with Lyme disease on the brain and or down the spinal cord. I understand there are no doctors here, but alot of people with good knowledge and experiance of this disease. My lumbar puncture is positive aswel, but that doesnt always indicate MS. ANY help would be greatly appreciated.....

 
Old 10-27-2007, 05:36 PM   #2
Junior Member
(female)
 
Join Date: Sep 2007
Location: nj
Posts: 19
njgirl14 HB User
Re: Lyme lesions???

topsy

my understanding is that lyme can cause lessions in the brain and spinal cord. I am not aware of lessions being distinctive as far as size and shape to MS.

I was dx with MS for six years before I found out I had lyme. I have read alot since my lyme dx in 2005 and am appalled that the neuros I saw (6) over the years did not know much at all about lyme, except I definately did not have it. Especially since the 2 diseases are so similar it is unbelievable that they are not more versed on lyme. I have also read in several places that lyme can cause the o-bands found in the spinal fluid. I have some lessions and did have o-bands.

I suggest getting evaluated by a lyme literate MD (LLMD). Blood tests for lyme are not very accurate and false negatives are common. A LMD will do a thorough eval and dx based on symptoms. If you want a LLMD recommendation tell us where you are and we will get you Dr names.

Best of luck and keep searching for answers.

 
Sponsors Lightbulb
   
Old 11-11-2007, 09:30 AM   #3
Newbie
(male)
 
Join Date: Nov 2007
Location: Royal Oak MI
Posts: 3
JRBaugh HB User
Re: Lyme lesions???

Quote:
Originally Posted by njgirl14 View Post
topsy

my understanding is that lyme can cause lessions in the brain and spinal cord. I am not aware of lessions being distinctive as far as size and shape to MS.

I was dx with MS for six years before I found out I had lyme. I have read alot since my lyme dx in 2005 and am appalled that the neuros I saw (6) over the years did not know much at all about lyme, except I definately did not have it. Especially since the 2 diseases are so similar it is unbelievable that they are not more versed on lyme. I have also read in several places that lyme can cause the o-bands found in the spinal fluid. I have some lessions and did have o-bands.

I suggest getting evaluated by a lyme literate MD (LLMD). Blood tests for lyme are not very accurate and false negatives are common. A LMD will do a thorough eval and dx based on symptoms. If you want a LLMD recommendation tell us where you are and we will get you Dr names.

Best of luck and keep searching for answers.

 
Old 11-11-2007, 09:32 AM   #4
Newbie
(male)
 
Join Date: Nov 2007
Location: Royal Oak MI
Posts: 3
JRBaugh HB User
Re: Lyme lesions???

Im in michigan Royal oak area.

 
Old 11-11-2007, 01:05 PM   #5
Senior Member
(female)
 
Join Date: May 2006
Location: england uk
Posts: 141
topsy123 HB User
Re: Lyme lesions???

Thanks so much for your reply and advice. I did ask my GP for a Lymes test, he was prepared to do it, but the lab it was sent to refused to do it. They based it on the fact that I have never been to America and therefore could never catch it. (ridiculous, I know!)...
Anyway, I have just last week written a letter to a LLMD based here in the uk, I am hoping he will consider giving me a consultation. Each neuro has given me a different opinion according to my health. Iv been told it could be MS, Lupus, Encephalitis, its all in my head, see a shrink, and just don't know. So I am a little fed up to say the least. Im not looking for it to be Lymes disease, far from it, but I do think it should at least be investigated. If I do get a reply from this guy I shall post here and let you know how it goes. Thanks again....Take care....

 
Old 11-11-2007, 03:17 PM   #6
Senior Veteran
(female)
 
Join Date: Mar 2004
Posts: 537
datgrlstef HB User
Re: Lyme lesions???

Are you serious? There is a video on the web somewhere, about people suffering from chronic Lyme. All the people in the video are from England, or at least have the British accent.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
I have a theory on Lyme vs. MS, etc worriedwife08 Lyme Disease 11 03-24-2011 01:56 PM
Neuro Lyme smith20 Lyme Disease 2 01-29-2008 02:10 PM
Neuro Visit Lyme Vs Ms cindys601 Multiple Sclerosis 28 09-28-2007 06:02 AM
Neuro Dx with demylinating disease of cns from lyme disease. Pearlscale Multiple Sclerosis 3 03-09-2007 06:35 PM
I have migrain lesions in later Lyme Yourtroubl Lyme Disease 3 02-01-2007 12:05 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



jojo (69), jenj770 (45), tess201 (29), ticker (14), Administrator (11), 6Blues (9), annalisa9397 (7), dganz (5), Katherine777 (5), lala52 (5)

Site Wide Totals

teteri66 (1166), MSJayhawk (1000), Apollo123 (898), Titchou (833), janewhite1 (823), Gabriel (758), ladybud (747), sammy64 (668), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 12:26 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!