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Old 10-28-2007, 07:26 AM   #1
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Location: rAYMOND nh USA
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spookiej HB User
New and have many questions

I have alot of symptoms for Lyme disease. I had a test last week and are still waiting for the results. My doctor told me that 3 weeks of Doxy (100MG 2x daily) will kill it and I will be fine. We did pull a tick out in June and another one that prooved to be a deer tick just a week ago. ( I brought it to the doctor). My question is this, I have been on the Doxy for 4 days and feel like I am getting worse, is this normal? I have the Killer headache ( a week now)
and the stiff neck. Today I have a weird numbness in my upper lip and my head is tingling. Is this normal?

Thanks in advance for any input, I am quite nervous. I have fel aweful for more than a week.

 
Old 10-28-2007, 10:41 AM   #2
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Re: New and have many questions

Hi spookiej, welcome to the board!

How did you remove the ticks you found? Did you save them?

Below is a Lyme symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

It is very important to see a kowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. No test is completely reliable, and results can vary by lab.

Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these?

200 mg of Doxy daily is not strong enough for Lyme disease. From what I understand, the recommended dose for Lyme is 300-600 mg daily.

Three weeks of treatment is not long enough treatment. From what I understand, an infection caught within two weeks of the bite should be treated with a minimum of six weeks of the proper dose antibiotic. The antibiotics kill the bacteria when they are reproducing, which is estimated at four weeks. Six weeks of treatment will cover one growth cycle. If symptoms are still present, further treatment is warranted. A longer infection needs longer treatment. If you were infected in June, you need much longer treatment.

There are a few tips about taking Doxy. Do not have any dairy, magnesium or iron products two hours before or after taking it or it will not be absorbed properly. If it makes you nauseous, eat something substantial and non-dairy before taking it. Avoid the sun. You can get a severe burn in minutes even when wearing sunscreen. Do not lay down for at least an hour after taking it or you can ulcerate your esophagus. This is very painful! Drink a full glass of water when you take it for the same reason.

Whenever you take any antibiotics, make sure you take high-quality acidophilus capsules. They replace the good bacteria in the body and help to prevent yeast overgrowth. The best ones to get are refrigerated. Most healthfood stores have them. Wait at least two hours before or after taking the antibiotics to take the acidophilus.

Be aware of the Jarisch-Herxheimer Reaction (herx). Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel sicker. It can be very scary when it happens, but it is a good sign the antibiotics are working. Although it can vary individually, many people experience this at the beginning of treatment and every three to four weeks. This may be why you are feeling worse.

It is a good idea to document your symptoms daily. One way to do this is to list the three main symptoms you have each day and a numerical rating of their severity, from 1-10. Over time when you review this, you can see when your herxes occur and how you are responding to the meds.

If you need a doctor recommendation, let me know.

It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses (on-line). He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know about Lyme Disease
(2nd edition)" by Karen Vanderhoof-Forschner.

Hang in there okay? Good help is available, and you are not alone.

 
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Old 10-28-2007, 12:18 PM   #3
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spookiej HB User
Re: New and have many questions

Thank you for replying. Yes I saved the tick but the doctor threw it away after identifying it as a deer tick. Other than that she told me to take the antibiotics for 3 weeks and I'll be fine. I don't know what she tested me for she just told me to go to the lab and get blood drawn. She did say she had to look up the course of treatment and then came back with the Doxy.

She led me to believe that it was no worse than a strep throat, but when I began to feel worse yesterday, I decided to look it up myself. Should I wait for the blood results before finding a Lyme Doctor in my area? I jsut don't want to over react, But I feel just aweful.

I will document my symptoms, and how I feel daily.

Thanks again

 
Old 10-28-2007, 08:26 PM   #4
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Re: New and have many questions

Hi spookie. For future reference, save the tick. It can be tested for disease at IgeneX Lab in Palo Alto, CA.

How long have you been sick? As I posted before, the Doxy dose is not strong enough and three weeks is not long enough treatment. In my opinion, the sooner you see a Lyme doctor the better. Sometimes there is a wait for an appointment.

Lyme is definitely worse than step throat, especially when under-treated or left untreated.

 
Old 10-29-2007, 05:18 AM   #5
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Join Date: Jun 2005
Location: Delaware
Posts: 236
dianneom HB User
Re: New and have many questions

Hi spookiej,
I agree with ticker, I was sick for a long time before my Lyme was found and then under treated, more then once. In my heart I know this is why I'm still fighting this 8 years later.
About the feeling worse. My poor dog just started Lyme treatment 11 days ago. On day 3 and 4 day I could see he was a lot worse, I felt this to be a good sign that the abx are working. By the way, my dog is a 100 pound Golden, the Vet gave him 200 mg of Doxy 2x a day.

 
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