Hi I will try and help. Sorry for any mis-spells...
Babesia, Bartonella, Mycoplasma, Erichliosis...
I do not believe these are on the Igenex testing...but I would ask your doctor which I have found to really have a big importance on healing is getting your Epstein Barr Virus, Cytomeglovirus, (any herpe) titer down. Also ask to be tested for Chlamydia Pnumoniae bacteria...Another bacteria that can cause many conditioins also...
You can get tested for co-infections through Fry Laboratories. They do a blood smear where they can actually see the infection. I just did a test and came out positive for Bartonella. It costs about $495.
Hi can anyone not herx? ok maybe i should clarify, i am 23 and have lyme babesia(according to igenex) and possible bartonella and rockymountain. Im very sick, in a matter of two years i've become compleately disabled and in screaming pain, ive tryed amox, and tinni for only two weeks cause i had life threatening side effects, ive also done rifes, i have been on the Marshall protocol for three months and to my knowledge have no idea what a herx it, i always feel realllly ill and just sicker every single day? i am starting zithromax in the next couple days im praying it will give me a glipse of relief and hope. anyways im sorry this is short and confusing, im in a bad state any comments, would be appreciated. thanks so much
My LLMD is a good one and she tried experimenting with co-infection antibiotics to see if I would react, even though I didn't test positive.
Are you seeing an LLMD?
Peace and health and Happy Halloween to you,
Hi Mickie - sorry if this is a silly question. what LLMD are you seeing in NJ? I am in NYC and i'm trying to collect a list of LLMDs that i could see. So far i've been told Dr. Raxlan in NYC, and while i believe he's an amazing Dr. he's far outside of my price range right now. Any other names of docs would be fabulous. Again, sorry if it's inappropriate to ask you to share. Just thought it's worth a shot. Thanks!
There are 2 really good LLMD's in NJ: Dr. Eiras in Jackson and Dr. Fein in East Caldwell (or it may be Caldwell - sry I can't remember)
You can find their full names and contact info in the sticky thread at the top of the Lyme board.
Good luck to you in getting an appointment; if you call and your appointment is far away, ask the doc to call you if they have any cancellations, you may get in sooner.
Seeing an LLMD is the best thing I did for myself, but I'm practically broke from my medical bills. Without my health, I have nothing, so my numero uno priority is to get back to an energetic woman. Once I regain my health, I'll be back in money in no time at all.
Hang in there and get yourself to one of the LLMD's. It'll be the best thing you ever did. If you have any more questions - please ask. I'm pretty much an open book here.
I am sorry you are so sick. From what I understand, when someone has co-infecitons it can make the symptoms of all infections more severe.
Are you seeing a Lyme doctor? Many believe the co-infections need to be treated first for Lyme treatment to be effective. This was true in my case. Babesiosis is similar to malaria and needs to be treated with an anti-malarial (often Mepron) and antibiotic (often Zithromax, Biaxin, or Ketek).
Some people have herxes and their symptoms are intensified and/or they get new ones and then they feel better until the next herx. Some people feel worse for a while when on treatment. I think part of this is due to how long you have been sick, if co-infections are present, the type of symptoms you have, etc.
When treating tick-borne illnesses, it is normal to feel worse before feeling better, and it can take time. Typically the longer you have been sick the longer you need to be treated.
I suggest talking with your doctor about treating the co-infections first. Eradicating the Babesiosis may help you feel much better. The antibiotic taken for this may also be effective for Lyme.