I may have a pattern going on where I have a string of good days, then a string of bad days, and so on.
I don't want to jinx myself so I'm whispering this post, (sssshhhhh)
October 14th my Lyme rash came back in full force - the itching drove me crazy! I had a string of really really good days which lasted till October 24th (so it lasted for 10 days).
Those days I felt good enough to plant shrubs and clean - so you know I was feeling really good.
Then on October 24th, I could not sleep. I went ten days without sleep. I would up till 8am or even 10am. Then I would sleep till noon or 2pm.
It was AWFUL! I could not sleep!
I was taking my pain meds (tylenol #4 with codiene) and my full strength narcotic sleeping pills and they could not punch through the Herx and make me drowsy.
That same day I noticed my rash was almost gone.
Then, out of the blue, last Sunday I began to be able to sleep again and I also noticed my rash coming back.
Today is a good day, I was able to run 4 errands in a row and I'm not in excrutiating pain.
So I think I may have a pattern going here. It would be great to be able to predict how I'll feel from one week to the next. And it would be the most blessed awesome-ness to know that I'll have a few good days in a row each month.
I'll keep you all posted on what happens over the next few weeks (if the pattern stays or not).
I've been so very sick for over 3 years. I know there are many folks here who have been sick for a lot longer than I have but, dear God, I am desperate for a ray of hope.
So, if you can, say a little prayer that I am finally turning a corner with my recovery.
I sure could use good news while I look for another job.
Peace and health to all,