It took a long time for the doctors to figure out I had lyme. My symptoms were extreme fatigue, anxiety attacks that I have never had before, loss of appetite, and elevated liver enzymes (dark urine).
All of the symptoms have subsided expect for the panic attacks. In the begining they were horrible. I couldnt function and had trouble eating, talking, concentrating. It felt like the world was falling down on me. Now almost two months later I have mini panic attacks during the day that last for about 10 minutes 4 times a day. Im dealing with it but I jsut cant live like this.
I was told that once I was done with the antibiotics I should no longer experience the panic attacks. Ionly have one more day left which is why I am worried.
Please let me know if you have had a similar situation.
Hi TMO, Sorry you are having these attacks. I continue to have these types of instances myself. I can not handle too much stimulus or I get really confused and dizzy. When were you finally diagnosed ? You stated you will be finishing antibiotics in one day. With chronic lyme it is more than just a month with antibiotics although many uninformed doctors continue with this insufficient protocal. Lyme is considered chronic if you were not treated immediately after the tick bite. I'm sure you will have others also explain this here on the boards. We with lyme are in a continuous battle to get well. Most of us are or have been on antibiotics or some form of treatment for at least a year. take Care and keep searching for answers, Leb
I think it's very important to locate a Lyme Specialist. Dr. Steve Phillips is in CT. I also think it's a good idea to have him test for all co infections especially Babesia with the dark urine you mentioned.
I think the xanax is excellent for the short term while you are being treated to help with the panic.
Definitely consider Dr. Phillips, the treatment for this disease as mentioned is very long.
hi! my introduction into the world of lyme came in the form of my first panic attack at age 28! i am now 40 and have been finally diagnosed with lyme. until now, i had panic and anxiety disorder, depression, unexplained blood in my urine (for 10 years?,) mitral valve prolapse, painful arthritis in my legs, fibromyalgia, and chronic fatigue. the panic is gone, but for about 2 days each month, i am so edgy i hate everyone and everything! i become angry, hostile, and severely depressed. my husband is afraid i will attack him. it's bad. i'm hoping treatment will make me whole again, cuz i'm losing my mind and my hubby is losing his patience! good luck...
What you described, I have to the T. 2 - 4 days a month I am a monster. I dont realize how I am acting until the end on the day which is when I experience the panic attacks. I feel like a a comming down from a high of drinking too much coffee. Its be over 4 months now, done with medication a long time ago, and still experiencing panic attacks and depression. I just want to be happy again, without fear.
I've noticed that my food intake has a lot to do with the onset and the severity of the panic attacks. I have stopped drinking anything with caffenine, limted my sugar intake, and cut out red meat.
Please continue this thread. I know other people feel the same and by sharing we can all help eachother.
Hi - sorry to hear to you have these - I suffered through 3 years of them before finding I had Lyme and the big thing was that my adrenals were hardly functioning. 4 days - REALLY! - after starting on adrenal meds the panics stopped and have only had 2 very light ones since - been on meds for 1.5 yrs now. My doc says it takes time but I was just so happy to have escaped the madness I don't care!
Hope this might help someone else. I took the sputum adrenal test - 24 hours of spitting in a cup and am on Cortef.
Panic attacks ruined my life on top of it being ruined by Lyme, they were so bad it was as if my wind pipe was being crushed, and i would make horrific noises trying to breath.
I have no GP that cared and was labeled mental illness and still am, although i am labeled with Mental Illness i am refused any aids.
I'm far from mentally ill, i just read my body and explain in detail what it tells me, one thing I'm sure about Lyme disease and that is how it teaches you to listen to your body when it talks to you, and doctors cant understand the depth this takes and can sometimes see what they want to, neurotic, mad, obsessed.
So a labeling of mental illness is easier.
Anyway long story short i was so full of anxiety/dread/world ending that at one stage i wanted to harm my family, not to harm them but to save them from the feeling they may behaving, that i was suffering it was all very frightening and twisted.
So i was ignored, i was then treated fro Lyme by a doctor i contacted privately and the invading thoughts stopped but the anxiety increased higher!it was like a boiling pot, as if the thoughts that i had before were the outlet for the anxiety.
So i had no choice but to find something not on persrcipton.
I walked in a supermarket picked up St johns wort and I'm still on it 2 years later, i still have the short waves of panic, and waves of fear, but i believe thats due to the Lyme returning as i had a very good year.
I don't get full blown attacks, i can control them at this time..
I do also get 2 to 4 days were i hate everyone and can not bare peoples voices or the fact they exist around me.
Ive made a diary and most times its PMT time.
very important to diaries all events.
two herbal treatments are kava. muscle relaxant and equivalent to a benzodiazepan anti anxiety drug and valerian as a sedative i take ant i anxiety meds but they cause cravin and stop working i am considering these alternatives
i realized when the pms (which i've never had before until all of this) and the lyme peaked at the same time, it was a combo that sent me into a suicidal rage... i'm taking birth control pills now to manipulate my periods so the 2 peaks don't occur at the same time. it actually got me through Christmas without killing any relatives!!! gals you might want to look into the connection of how your cycles cross... it was weird, but last month was tolerable...
In October of 2007. I started to become really irritable. I would lash out at any one that got me in the least bit upset. Then I started becomming really tired and depressed. It seems like within two days of becomming a little depressed I completely lost my hunger. I didnt eat without force for about 2 weeks. I had thoughts running through my head constantly and I really felt that the world was falling on me. I kept on saying to myself, when am I going to feel a bit normal again. When can I wake up and not thing that my bf was going to leave me or that I was going to flunk out of school, or that my parents are going to get in horrible accidents. At night I would have to sleep in the living room with the TV on in order to sleep because I had so many thoughts running through my head.
I finally went to the Doctor when my urine was a very dark brown. We learned that I had bile in my urnine and then proceeded with every test that you could think of. When I made it to a liver doctor he suggested that I be tested for lyme.
I came up positive and started the normal antiobiotics. However as the liver function, fatigue, loss of hunger got better, I still felt like crying every five minutes. I was always on edge and thinking about every horrible thing that could happen in my life. I dealt with it day by day. Oh by the way, before the Lyme I would drink about 3 -4 couples of cofee a day. I loved coffee. Now anytype of caffeine in the least triggers an anxiety attack.
Now five months later I am better, but I still suffer from anxiety about once a week. The closer I am to having my period the worse the anxiety is. Last month I fell alseep crying for three nights right before my period. I still cannot drink coffee and I havent tried soda.
I really did not want to go on antidepressants or anything like that because I felt I was strong enough to deal with it on my own.
I hope this helps Zoe. Im sorry if my post is a bit scattterd. My best advice is to take it day by day and if you feel like you have suffered too long seek a lyme doctor. Ive read on these boards that these doctors know what to test you for, know how to treat you and know how to help you manage the anxiety.