fernee

Well some of you were right. The appt today was a waste. She seemed very nice and I had been so looking forward to it. She even started out telling me that I have late lyme and she was classifying me in the late neurological stage but then she started about how my symptoms "did not fit into the box" (dizziness, moodiness, confusion, neck pain, joint pain, anxiety, palpitations, rib pain, etc). She said that she does not understand the meds that Dr. S had treated me with because the only one directed to lyme is doxy. Something about you do not treat bartonella in an adult and then she went on to say how they stay in the guidelines with the CDC. I knew then the odds were against me.

She is wanting me to have a stomach CT scan and a chest one to test my lymphs and all because you do not have weight loss with lyme and it must be something else. Everything she kept saying I was like "already checked and negative". She wants me to stop my oral abx and come back in one month. Then if needed she will do 2-4 weeks of IV.

I left there very depressed and feeling as though this is never going to be over. How do you get better? When I speak to people like this who say it is not lyme and must be something else that just puts all those doubts and weird feelings in my head again. I just do not get it and probably never will.

Glad I did not cancel my appt with Dr. S for the end of the month.

Oh, forgot to mention, I have chronic fatigue syndrome. Wasn't the first time some nut told me that and sure it will not be the last.