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Old 02-21-2008, 03:54 AM   #1
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Join Date: Feb 2008
Location: Upstate New York
Posts: 27
Lateralus112358 HB User
My Lyme Story (gather 'round, kids)

wow, this is a really long post. Sorry about that. I'll leave it, but I don't expect anyone to feel obligated to read it. No worries.

Let's see, I was bitten by a tick about.... two years ago, give or take. I waited to see a rash, and when I did not get one, I thought I was in the clear (at the time I had no idea that like half the people don't get a rash)

Had a psychotic episode over the past summer (may 07 to august 07). I don't know if that is connected to Lyme or not, I remember reading someplace that Lyme can cause psychosis as it progresses into the early-late stage. Then again Lyme seems to cause everything, so I'm not surprised. I started flipping out, it was like bipolar mania....three month manic episode, at first I didn't know what it was. I was happy because my spirits were lifted and I felt good, for once (usually I am the depressing mope-master supreme).
Eventually (quickly) I realized that something was wrong, because I was whacked. Racing thoughts, insomnia, severe paranoid delusions, extreme social phobia that caused more than a few really awkward situations. Auditory hallucinations, too. I did a lot of reading on schizophrenia, and I was convinced that I was in the early stages.

During this time I wrote a lot, though, some of my better stuff if I might add, so it wasn't all bad.

Anyway, things settled out for reasons beyond my knowledge, and I went back to school (community college Wooo) in September 07. Felt fine until, I'd say mid october. My joints started popping, I was getting progressively more and more weak. My uncle the chiropractor told me I had carpal tunnel in my left hand, so I bought a brace, which made it worse; the snapping in my wrist still hasn't gone away.

I had no idea what was going on. I got my hands on some 100mg doxy, started taking that after some advice from my boss and my uncle-chiropractor. I became really depressed, and violently angry. I remember I had an appointment with a rheumatologist (this was during the phase where I went to a score of specialists and doctors and no one knew what was wrong with me, I think most of us lymers know what that's like), anyway I went to a rheumatologist, weak, clicky, depressed, sick and miserable. Basically I was less than a friendly face. I was not rude to anyone, but my demeanor wasn't a too pleasant. My girlfriend overheard the receptionists talking about me while I was talking with the doctor. They said that I seemed like an unhappy kid, one of them inferred that my parent's last names might be different (get what I mean?) and they just said a bunch of nasty, unprofessional, rude, presumptive things. My girlfriend told me this, and I went back to the office and hollered at them like a mad man. Got into a huge argument with lots of curse words and spit flying between the lot of us.

Wound up in the hospital a couple weeks later, too weak to walk more than a a couple hundred feet. They treated me like a hypochondriac, but put me on IV abx before they started doing the inconclusive testing. This made me feel exponentially better. So, I deduced that I had lyme because the abx made me feel better. The doctors didn't see it that way, and told me I was fine. I left after five days, with a two month supply of oral doxy in hand (I'd talked a couple of drs into writing scripts)

I took the doxy for two months, felt like the old Mike for about three weeks after I finished them. Then I relapsed over the course of 4 weeks. Right now I am all clicky and poppy again, can't pay attention to anything.

I have become a rage machine again. I know what I have, but none of the health care "professionals" I talk to are willing to cooperate with me. I went to see a dr for a rx of doxy to tide me over until my appointment with Doc Horowitz (3/3), and I got the same rash of SH**. A nurse practitioner refused to write me a script, so I called her a few names and then threw a scale across the office (one of those stand up scales with sliding bars in front of your face). They called the cops on me but I didn't get arrested. I've been banned from that office and I have to pay for the scale, though.

It's funny though, because I'm one of those people who's very quiet and polite, dare I say meek and impassive. Wouldn't harm a fly, and here I am in the throws of Lyme-rage, tossing scales across doctor's offices and cursing out receptionists.

The crazy things that lyme does to you.

Sorry for the long post.

Mike.
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"You're showing all the symptoms, but the blood test is negative... that means that you have a myriad of other disorders that are causing each symptom seperately..."

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Old 02-26-2008, 10:25 AM   #2
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Join Date: Feb 2008
Location: Kansas City,MO USA
Posts: 1
colby13 HB User
Re: My Lyme Story (gather 'round, kids)

Quote:
Originally Posted by Lateralus112358 View Post
wow, this is a really long post. Sorry about that. I'll leave it, but I don't expect anyone to feel obligated to read it. No worries.

Let's see, I was bitten by a tick about.... two years ago, give or take. I waited to see a rash, and when I did not get one, I thought I was in the clear (at the time I had no idea that like half the people don't get a rash)

Had a psychotic episode over the past summer (may 07 to august 07). I don't know if that is connected to Lyme or not, I remember reading someplace that Lyme can cause psychosis as it progresses into the early-late stage. Then again Lyme seems to cause everything, so I'm not surprised. I started flipping out, it was like bipolar mania....three month manic episode, at first I didn't know what it was. I was happy because my spirits were lifted and I felt good, for once (usually I am the depressing mope-master supreme).
Eventually (quickly) I realized that something was wrong, because I was whacked. Racing thoughts, insomnia, severe paranoid delusions, extreme social phobia that caused more than a few really awkward situations. Auditory hallucinations, too. I did a lot of reading on schizophrenia, and I was convinced that I was in the early stages.

During this time I wrote a lot, though, some of my better stuff if I might add, so it wasn't all bad.

Anyway, things settled out for reasons beyond my knowledge, and I went back to school (community college Wooo) in September 07. Felt fine until, I'd say mid october. My joints started popping, I was getting progressively more and more weak. My uncle the chiropractor told me I had carpal tunnel in my left hand, so I bought a brace, which made it worse; the snapping in my wrist still hasn't gone away.

I had no idea what was going on. I got my hands on some 100mg doxy, started taking that after some advice from my boss and my uncle-chiropractor. I became really depressed, and violently angry. I remember I had an appointment with a rheumatologist (this was during the phase where I went to a score of specialists and doctors and no one knew what was wrong with me, I think most of us lymers know what that's like), anyway I went to a rheumatologist, weak, clicky, depressed, sick and miserable. Basically I was less than a friendly face. I was not rude to anyone, but my demeanor wasn't a too pleasant. My girlfriend overheard the receptionists talking about me while I was talking with the doctor. They said that I seemed like an unhappy kid, one of them inferred that my parent's last names might be different (get what I mean?) and they just said a bunch of nasty, unprofessional, rude, presumptive things. My girlfriend told me this, and I went back to the office and hollered at them like a mad man. Got into a huge argument with lots of curse words and spit flying between the lot of us.

Wound up in the hospital a couple weeks later, too weak to walk more than a a couple hundred feet. They treated me like a hypochondriac, but put me on IV abx before they started doing the inconclusive testing. This made me feel exponentially better. So, I deduced that I had lyme because the abx made me feel better. The doctors didn't see it that way, and told me I was fine. I left after five days, with a two month supply of oral doxy in hand (I'd talked a couple of drs into writing scripts)

I took the doxy for two months, felt like the old Mike for about three weeks after I finished them. Then I relapsed over the course of 4 weeks. Right now I am all clicky and poppy again, can't pay attention to anything.

I have become a rage machine again. I know what I have, but none of the health care "professionals" I talk to are willing to cooperate with me. I went to see a dr for a rx of doxy to tide me over until my appointment with Doc Horowitz (3/3), and I got the same rash of SH**. A nurse practitioner refused to write me a script, so I called her a few names and then threw a scale across the office (one of those stand up scales with sliding bars in front of your face). They called the cops on me but I didn't get arrested. I've been banned from that office and I have to pay for the scale, though.

It's funny though, because I'm one of those people who's very quiet and polite, dare I say meek and impassive. Wouldn't harm a fly, and here I am in the throws of Lyme-rage, tossing scales across doctor's offices and cursing out receptionists.

The crazy things that lyme does to you.

Sorry for the long post.

Mike.
It sounds like you possibly were not on the doxy long enough, or perhaps not taking a large enough daily dosage. Also, just fyi, my Dr. has me doing a series of 4 different abx. I am on the 3rd one now. Was bitten on July 22, '07, got the rash, so I thank my lucky stars. My point is, you have to be on them a very long time and the length is different for everyone. Most importantly, you must get under the care of an LLMD (Lyme Literate M.D.) as it sounds like you need more drugs! Those other doctors just don't know....I, and almost everyone on these boards, understands your frustation in that department. Lots of progress yet to made on this journey.....

 
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