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Old 03-21-2008, 11:17 AM   #1
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llmd's in Bucks/montgomery county, PA

Does anyone know of good llmds near montgomery and bucks county PA?

 
Old 03-22-2008, 06:00 AM   #2
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Re: llmd's in Bucks/montgomery county, PA

Unfortunately, I think most of us have to travel outside the area to find a decent LLMD. I'm near Pottstown and have to travel 3-1/2 hours each way to see mine.

I'm currently on Dr Corson's waiting list - it's a year long.

Dr Daly, in York, has at least a 10 month long waiting list.

I did see Dr Schuchman in Chadds Ford, once. He did my testing, but since my WB wasn't CDC positive, he refused to treat me. You might have better luck if you're WB is positive. He does take insurance tho, which is an added bonus.

There are some good Drs in Ny and Nj. Check the "Great Doctors and Clinics" thread on this forum.

 
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Old 03-22-2008, 07:20 AM   #3
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Re: llmd's in Bucks/montgomery county, PA

Thank you Nyxie63 for your reply. I have been tested three times by the Quest labs and have gotten negative results for Lyme. Did you get tested by Igenx ? Does Dr. S in Chadds Ford use Igenx. I am not sure how I get my GP to get me restested using the Igenx kit. I have all the symptoms and remember the bulls eye rash I had 5 years ago.
Any information you can provide me would be helpful !!

 
Old 03-22-2008, 08:26 AM   #4
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Re: llmd's in Bucks/montgomery county, PA

It's a wide-spread opinion among a lot of lyme folks that Quest pretty much stinks as far as lyme testing is concerned. Even for the best labs, the testing isn't 100% conclusive.

Dr S in Chadds Ford uses MDL for all his testing and mine were done through them. He believes that Igenex gives "too many positive results". Still, MDL is a good lab by most accounts. He'll also run PCRs for co-infections as well as Elisas. And he bills this to your insurance company. Mine were completely covered.

One way to get around the GP is to order a kit from Igenex and then go to a walk-in clinic or medical treatment place and have them draw the blood.

Just remember, a negative WB doesn't mean you don't have lyme. In my case, the only lyme-specific band (out of 8 total that showed up) on my Wb was an IND band 23 on the IgM. My LLMD dx'd me through symptoms. Lyme is a clinical dx anyway, so positive test results are nice to have, but aren't really the determing factor.

Did you tell your GP about the bullseye rash? Maybe they can put you on abx until you can get in to see an LLMD?

 
Old 03-22-2008, 03:04 PM   #5
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Re: llmd's in Bucks/montgomery county, PA

Thanks Nyxie63. I did tell my GP about the bulls eye rash about 5 years ago and was treated with short term antibiotics. However, he does not seem to know much about chronic lyme. Who was the LLMD that diagnosed you based on your results..was it Dr.S in Chadds ford? Do you know of walk in clinics that will do the blood draw and process the IgenX kit? How much does the testing through IgenX cost if Insurance will not cover ? I am currently on Abx (biaxin) for a sinus infections and that seems to help with some of the symptoms.
Thank you for all the information that you are providing me ..this is so helpful !!! I am not sure how I go about getting my insurance to cover this. I guess once I am diagnosed it should not be a problem ...but I need an LLMD to diagnose me.

 
Old 03-22-2008, 03:13 PM   #6
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Re: llmd's in Bucks/montgomery county, PA

Quote:
Originally Posted by lyme100 View Post
Thank you for all the information that you are providing me ..this is so helpful !!! I am not sure how I go about getting my insurance to cover this. I guess once I am diagnosed it should not be a problem ...but I need an LLMD to diagnose me.
Hi there I hope you find a good doctor relatively close to where you are- traveling to a LLMD every month is no fun. Definitely see if your LLMD is in your network- I know a lot aren't, but there are some. I had Anthem when I first started seeing my dr., and it recently switched over to Cigna. Thankfully the doctor I see is a GP, and in network- and so far, I haven't had any problems with coverage for treatment (even bi-monthly lab work).

Best of luck to you!

 
Old 03-23-2008, 05:58 AM   #7
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Re: llmd's in Bucks/montgomery county, PA

Quote:
Originally Posted by lyme100 View Post
Thanks Nyxie63. I did tell my GP about the bulls eye rash about 5 years ago and was treated with short term antibiotics. However, he does not seem to know much about chronic lyme. Who was the LLMD that diagnosed you based on your results..was it Dr.S in Chadds ford? Do you know of walk in clinics that will do the blood draw and process the IgenX kit? How much does the testing through IgenX cost if Insurance will not cover ? I am currently on Abx (biaxin) for a sinus infections and that seems to help with some of the symptoms.
Thank you for all the information that you are providing me ..this is so helpful !!! I am not sure how I go about getting my insurance to cover this. I guess once I am diagnosed it should not be a problem ...but I need an LLMD to diagnose me.
Dr S was the one who ran the testing, but Dr H in Hyde Park, NY is the one that dx'd me.

I think some place like UrgentCare or another "doc in the box" place can do the blood draws for you. Shouldn't cost too much and your ins might cover it.

I'd say start off with the Igenex WB series (IgG and IgM). It runs a little under $200 for both tests.

Just to let you know, my LLMD doesn't take insurance. I have to pay for the office visit and any supplements out of pocket. They're aware enough of people's cost restraints to run any non-lyme testing through my ins co's lab of choice.

Seeing a dr who didn't take ins was a hard decision to make, considering I'm not working anymore and our finances are seriously stretched. It's been less than a month since I got my dx and have started treatment, so I'm still trying to figure out the out-of-network reimbursement thing.

Hope you find a good doc soon. Please keep us posted.

 
Old 03-24-2008, 08:40 AM   #8
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Re: llmd's in Bucks/montgomery county, PA

Thank you so much Nyxie63, Ticker and datgrlstef !!!!!! You guys are so supportive ...I appreciate all of the help !

Ticker : I am in SE PA, can you share the names of good LLMD's in NJ. I realize that I am going to have to travel to get the right treatment.

For now, I guess I am going to have to pay for the treatment myself.

I got to Dr. Rax's (NY) web site , but there were no phone numbers to contact the clinic. I am not sure if it is still operational. I saw a few posts indicating he was really good.

I called Dr. Z 's office in Fairfax, VA as well, waiting to hear back from them. Just need a good LLMD I can see soon !!

Convinced I have a relapse of lyme, my symptoms match up well to the list that has been published. Have an appointment with the neurlogist tomorrow to review results of my MRI. Not sure if she is lyme literate and if I am going to be shuffled from one specialist to the next.

Does freeze dried garlic really effective as a supplement ? I would like to order some good supplements to keep me going ... Any recommendations ?

THANK YOU TO ALL !!!

 
Old 03-24-2008, 10:54 AM   #9
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Re: llmd's in Bucks/montgomery county, PA

Hi there and welcome . Dr. Kenneth Singleton is in Towson Maryland . It might be a couple hours drive but worth it. He will do tests from IGenex and go from there. He does not take insurance but from my view, even though I'm broke,, it has helped tremendously. He just wrote a book, "The Lymes Disease Solution" which is also helpful. good luck to you.

 
Old 03-24-2008, 12:07 PM   #10
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Re: llmd's in Bucks/montgomery county, PA

Hi lyme100. Dr. R. is in Manhattan.

The Lyme doctors I know of in NJ who come highly recommended are Dr. Emilia Eiras in Jackson and Dr. Leslie Fein in West Caldwell.

Good luck!

 
Old 03-27-2008, 06:52 PM   #11
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Re: llmd's in Bucks/montgomery county, PA

Thanks ticker and nyxie for your help and advice !
I have decided to go with a doctor who came highly recommended by the local lymePA group and I was able to get an appointment for next Thursday. Going to Dr. M in Rockville, MD.
Was not able to get an appointment with any other LLMD before that.
Can't wait to get better soon !!

 
Old 03-27-2008, 07:34 PM   #12
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Re: llmd's in Bucks/montgomery county, PA

Good luck! Let us know how it goes.

 
Old 04-28-2008, 08:10 PM   #13
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Re: llmd's in Bucks/montgomery county, PA

Quote:
Originally Posted by ticker View Post
Good luck! Let us know how it goes.
Ticker and all of the helpful folks on these boards,

A lot has gone on since I posted ..... but I finally have a Lyme diagnosis.
I went to Dr. M in MD and got my bloodwork results from Igenx during my phone appt this evening. Do not have results in hand, but Dr. M indicated that my IgM bands were CDC positive. I am currently on 100mg Minocycline and have an in person appt in May.

Dr.M also discovered a nodule on my thyroid during examination and since have had an ultrasound - is a multinodule goiter and am currently waiting for results on the biopsy.

I am so glad that I went to an LLMD and got my bloodwork to the right labs. All my testing from Quest had come back negative and had I stayed with my GP would still be suffering without a path forward. It was worth it to travel to MD and to deal with insurance not covering the costs etc to atleast have some resolution to my symptoms. Atleast now I know I can get on the path to getting better ........

This board has been such a fabulous resource and you guys have been so helpful. I am so grateful ....THANK YOU ALL.

 
Old 04-29-2008, 05:09 AM   #14
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Re: llmd's in Bucks/montgomery county, PA

Congrats on getting in to see Dr M! May you be on your way to wellness!

Btw, where did you get your thyroid biopsy done? I've had 3 so far and am facing #4 in a few weeks. Usually get it done at Phoenixville hospital because I like the way they do things there.

And good luck on your biopsy results! May it be benign!

 
Old 04-29-2008, 05:16 AM   #15
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Re: llmd's in Bucks/montgomery county, PA

Btw, where did you get your thyroid biopsy done? I've had 3 so far and am facing #4 in a few weeks. Usually get it done at Phoenixville hospital because I like the way they do things there.


Thanks Nyxie63 for your kind words and advice so far !

I got my biopsy done at Central Montgomery Medical Center only because it is closest to where I live.
Do you have multiple nodules as well ? I hope it comes out benign as well.

 
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