It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lyme Disease Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 04-28-2008, 07:43 AM   #1
Veteran
(female)
 
Join Date: Jan 2007
Location: usa
Posts: 370
tiredpoet HB User
fatigue

A question for those of you who are diagnosed and undergoing (or have undergone) treatment: I'm just wondering how many of you suffer from unbearable fatigue and muscle weakness? Have any of you ever had this go away, and if so what helped it?

My muscles are not weakened by exertion. They actually feel extremely weak and fatigued as if they've been worked to their limits, even though if I have done nothing but rest. No doctor has been able to explain why and my LLMD says it is a common complaint with Lyme and may be fibromyalgia caused by Lyme. But no one has said if it will ever get better.

I find myself excessively weak in the mornings, but on certain days, such as today, the weakness is worse than usual and remains unbearable all day long. The fatigue is constant. I'm wiped out for no apparent reason all the time. I'm nearing the end of my three months of tetracycline and will be starting something new in May, and I know I've been a bit more tired on the antibiotics, but the varying degrees of muscle weakness was just as bad before I started treatment. I'd just like to know if I can expect to feel like this even after my Lyme treatment, because quite frankly these symptoms are the only ones I really cannot deal with. I was hoping I'd see an improvement after a few months of treatment, but so far I haven't.

 
Old 04-28-2008, 09:11 AM   #2
Senior Member
(female)
 
Join Date: Jul 2007
Location: Boston, ma
Posts: 183
Aimiloo HB User
Re: fatigue

Lack of energy has always been one of my symptoms however I'd never experienced it along with muscle weakness until I went on the tetracyclin. It started then, the on the ceftin/biaxin combo it REALLY hit. I felt like I'd hiked a mountain, my legs were SO shakey all the time. I was sick for a week at home and moved around the house, not much, so I was worried it was atrophy! When it didn't go away I thought harder and realized it had happened on the tetra and continuted onto the ceftin/biaxin.

I'm happy to report that on the Zithro/Mepron combo I'm not feeling ANY of this. At all. I'm praying this is my solution.

Good luck

 
Sponsors Lightbulb
   
Old 04-28-2008, 03:24 PM   #3
Senior Member
(female)
 
Join Date: Jun 2007
Location: long island
Posts: 176
Kelly5907 HB User
Re: fatigue

Hi.. I have the answer for fatigue.. I was tired ALL the time.. I couldnt get through the day with out a nap.. Then my LLMD prescribed me Provigil.. It is amazing.. I HIGHLY recommend it.. I take the lowest dosage and it makes me go through the day with out that annoying tired feeling, and I had NO side effects.. AT ALL.. Iam going to write a post soon about it.. Iam so surprised I havent heard about this sooner.. All LLMD's should be prescribing this pill..

Kelly

 
Old 04-28-2008, 06:09 PM   #4
Veteran
(female)
 
Join Date: Jan 2007
Location: usa
Posts: 370
tiredpoet HB User
Re: fatigue

I actually have tried Provigil and it didn't work well for me. I currently take Adderall and it's not so great either. My fatigue seems to be a combination of both serious exhaustion and extreme muscle fatigue. I don't think stimulants or medications like Provigil work for me because it's the muscle fatigue rather than sleepiness.

 
Old 04-29-2008, 09:20 AM   #5
Senior Member
(female)
 
Join Date: Jun 2007
Location: long island
Posts: 176
Kelly5907 HB User
Re: fatigue

Iam sorry that the provigil didnt work for you... I just get extreme fatigue and not muscle issues.. Hopefully there will be something out there that works well for you

Good luck
Kelly

 
Old 04-29-2008, 11:12 AM   #6
Veteran
(female)
 
Join Date: Jan 2007
Location: usa
Posts: 370
tiredpoet HB User
Re: fatigue

I was so excited when I was prescribed Provigil. I had high hopes for it. It is apparently a miracle for a lot of folks.

 
Old 05-14-2008, 10:16 AM   #7
Newbie
(female)
 
Join Date: Nov 2006
Posts: 6
carolynjane HB User
Re: fatigue

Hi TiredPoet,

Fatigue is a big problem for me also though recently my energy has gone up alot because of a supplement called D-Ribose. not sure if im allowed to post the brand name i use here but you can email me privately and i will tell you.
i would say my energy level went up from about 40% to 70% after a few weeks of using it at 5mg 3 x day. im always trying different things for energy and so far none of them really make much of a difference but this one is supposed to help with muscle energy atp and ive been able to exercise so much more since ive been on it. i know everyone is different but maybe it is something worth trying for u? i tryed Provogil also but found it increased my pain levels and made me feel edgy (tho that could have been the pain)
hope you find a solution soon, dont give up, something will work for you it just takes a while to find the right combination of things.
Good luck!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
New to Board,Recently Diagnosed with Fibromyalgia, Chronic Fatigue, new to Pain Mgt New To CP Fibromyalgia 7 06-14-2009 02:39 AM
need help finding the cause! (chronic fatigue & chronic dry irritated eyes) Guy2307 General Health 3 08-13-2008 08:12 AM
inappropriate sinus tachycardia + chronic fatigue? mluke320 Sinus Problems 12 06-27-2008 12:31 PM
Question about fatigue kiya Chronic Fatigue 12 06-07-2008 03:19 AM
Adrenal Fatigue Hannigaholic Chronic Fatigue 3 04-03-2008 11:36 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



jojo (69), jenj770 (45), tess201 (31), ticker (14), Administrator (11), 6Blues (9), annalisa9397 (7), dganz (5), Katherine777 (5), lala52 (5)

Site Wide Totals

teteri66 (1180), MSJayhawk (1011), Apollo123 (909), Titchou (856), janewhite1 (823), Gabriel (761), ladybud (755), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 01:47 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!