After reading all of these stories and questions - I feel bad for everyone who has this nasty lyme and everything associated with it - including any symptoms, complications, and co-infections. I have been fighting this since sept of 2007 in which it became severe, but I have been fatigued all my life with some complications to the point where I always knew something was wrong. Now 33 and was 12 or so back then - in which I resided in Louisiana. So, how I did I develop chronic lyme? The question remains. I did move to the east coast later in life - put presented with symptoms at a young age. Also, a grandmother, great aunt, and aunt - all with same symptoms - never been to east coast.
My point is - I have talked to so many people in person - from California, Louisiana, East Coast - and everyone is saying the same thing - except for the people who caught this disease early before symptoms worsened.
My point is - your chronic lyme cases are suffering every day - some people do not even know they have it. If you have a list of symptoms and have had a complete work up - meaning if you have seen doctor after doctor - specialist after specialist - possible er visit after er visit - test after test - and everything turns out negative put you present with the massive debiliating symptoms - don't waste time anymore.
As everyone suggest - pay the money and send your bloodwork to Igenex.
Go and see a top LLMD - you will get to the bottom of this. Don't let it beat you - you can beat it. I have decided that this won't get me. When I felt my worst - I forced myself to get up millions of times and go for a walk in the fresh air. Even on the days I felt like I was going to die.
We can beat this - just don't give up the fight. And if a doctor tells you that you are crazy or you don't have anything because all of your test are normal or that you are stressed out - keep pushing. Keep fighting. You will reach your answer and your right treatment for yourself if you DON"T GIVE UP.
Don't waste any more time on wondering or on doctors who don't understand the disease. Everyone person's body needs a different protocol of antibiotics/supplements/ possible diet/pain management. We are all genetically different so no protocol will work exactly on the same person. Each case of lyme is different - some people have co-infections some don't so this will cause variations in our symptoms comparatively as well as the person had pre-existing health conditions -for example diabetes. this together with lyme will cause different symptoms in one person versus another.
So KNOW that you are not crazy and we know we are all in this together.
I wanted to post words of encouragement tonight.
This is truly an epidemic and for it won't stop here - I want to pursue further medical training and specialize in this field to help people. This is how much it has impacted my life.
Get aggressive and don't give up to the lymers.