Chronic Lyme - Lyme Disease Message Board

Capa · 10-28-2008, 03:14 PM

Hello everyone! To make a long story short I was diagnosed with late-stage Lyme along with Ehrlichiosis and Babesia about 9 years ago. I had been sick for some time and it took them over a year to diagnose me. I was treated with IV Rocephin and a variety of oral antibiotics and was fortunate enough to be treated by Dr Steven Phillips in CT.

We got to the point where the antibiotics were not helping so I resorted to holistic measures to get me back on my feet again. After about 2 years of treatment life started to return to normal but I was never quite the same.

Fast forward to now and I have had dizzy spells, fatigue, joint pain, cognitive problems, and general achiness for about seven months. They diagnosed me with fibromyalgia but didn't think it was the main cause of symptoms. I've also been run through the gamut of tests for Addisons, MS, diabetes, etc etc to no avail.

I was reading about Chronic Lyme and think that this makes the most sense. I'm not trying to find a LLDr to help diagnose me (I'm in southern MA). Any advice would be appreciated! Thanks!

Bill S · 10-28-2008, 06:18 PM

It sure does make sense, especially if you weren't taking a second appropriate antibiotic to kill the cyst form at the same time as the IV meds.

You REALLY ought to get checked out by a LLMD to be on the safe side. Fibromyalgia is where they pigeonhole you when they don't know what is wrong with you, and certainly people with Lyme likely get labelled with Fibro. They get labelled as "depressed" or "hypochondriac" you know.

kitty9309 · 10-29-2008, 05:00 AM

Yes, see a LLMD.

jenj770 · 10-29-2008, 09:54 AM

Drugs only work in the initial phases of Lyme, the first 2 to 4 weeks. Have you tried the salt/C protocal?

Capa · 10-29-2008, 11:53 AM

I have not tried the salt/C protocol but am interested. I actually have very low blood pressure and a slow pulse (the cause of my vertigo they believe) and am on an increased salt diet.

I'd love to learn more!