Has anyone had experience with joint and muscle pain on only one side of your body? I suspect lymes disease, finally will see a doctor who supposedly knows how to treat lymes. I have severe pain in my left shoulder blade and in my left hip. Could this by lymes disease. Doctors have ruled out lupus and arithtis.
Just a quick update, I am finally being treated for lymes disease. I found a doctor who diagnosed me based on my sypmtoms and history and not just a blood test. Once treated, the pain on my left side went away after a couple of days. Now as I am being treated, I feel all over body pain, but I know it is the hump I have to get over before I feel better.
If you have weird, unexplained pains, pursue lymes disease and fight until you get answers!
I have been suffering joint pain on my left side since Feb. 1999! My Left Knee, ankle and wrist get so big and painfull that I have lost numerious days of work and sleep. I used to camp a lot in Oregon and now wonder if I should be tested for Lyme's disease! I have been tested for everything else and nothing comes up. How do you get treated for Lyme's disease? How long does it take?
When Lyme disease is a possibility, the most important thing you can do is see a Lyme knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. No test is completely reliable and results can vary by lab. Besides Lyme disease ticks can transmit several co-infections including Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It is important to be tested by a Lyme reputable lab such as IgeneX in Palo Alto, CA.
If you post where you are located, I will give you the name of the closest knowledgeable doctor to you that I know of.
Every bit of my physical pain has been on my left side. So weired that you mention that!!! I never really thought about it! Headaches always on the left, left knee, ankle, pelvis, hip, elbow, and even my left eye has worse vision than my right. My whole lower back is totally out of wack now but even when it is that time of the month it the pain is always worse on the left. Weird..... I am seeing the Neuro on Friday so I will keep you guys posted...............take care. H&A
All of my problems were on my left side until I was given massive doses of IV steroids. Now my right side is worse than the left ever was. I think my immune system was knocked for a loop with the steroids so if you think you have lyme don't take them.
I am living in Lahaina, Maui Hawaii now. I called about my test results and the nurse told me I tested negative (.5?). I asked her what kind of test kaiser used and she said "Bergdorf"? At least that is what it sounds like. I am so depressed. My doctor is looking at me like I am making it all up, like I am trying to score drugs or something. Does anyone enjoy swelling up when taking Prednesone?! The prednisone only reduced the swelling in the left side of my body, did nothing for the pain, plus I have numbing in my toes (cramping with it), ringing in my ears and yes, I have had my hair falling out in clumbs for sometime now (thought just turning 40 did that?). What now?
Has your thyroid been tested? When I mentioned that my hair was coming out in clumps my doctor said that that was more of a thyroid symptem. She wasn't saying that it wasn't a system of my lyme but that it is seen more with over/under active thyroid conditions. Just a thought.
It was only on my Husband's left side too at first. He actually went to answer his phone in his pocket thinking it was on vibrate mode...when he reached for his phone he realized it wasn't there...it started out as tingling then it turned into pain.
Tcabe - I would definitely find an LLMD and go through IgeneX labs - if it weren't for IgeneX I probably would have never gotten an absolute answer.
I have had my thryoid tested (it's right on). The only thing that was a little off was my calcium levels (barely). Now my doctor is sending me to a neurologist and want's to do a spinal tap. God this is awful. Doc put me on antidepresents and gave me pain meds that make me feel awful (put pain in left side has lessend (not gone). How much is the test at Inegex? Husband willing to pay for ourselves (doc knows).
Hi tcabe1965. I highly recommend that you get copies of all your test results, Lyme and other. I suggest asking your doctor to do a Western Blot test and co-infection tests at IgeneX Lab in Palo Alto, CA.
From what I understand, people who have Lyme should not take steroids for any length of time because it can make symptoms much worse. You may want to discuss this with your doctor. I believe that steroids have to be decreased slowly, not all at once.
I also suggest that you get copies of your thyroid results. Many people who have Lyme have a thyroid disorder. The symptoms of both can overlap. Even if your results are in the normal range, they may not be optimal for you especially if you are having symptoms. If you have not had the Free T3, Free T4 (besides the T3 and T4) and thyroid antibody testing done, you should. These tests are not normally run but are necessary for a comprehensive view. Post your results here or on the thyroid board at this site if you need help interpreting them.
Is the neuro doing the spinal test to test for Lyme or for other things?
I am in the same spot as you right now. My neuro has a spinal scheduled for one week from today to make sure that nothing else is going on with me. The doctors all agree that I have lyme but feel the spinal should be done to make sure there isn't any MS, menengitis, lupus, whatever, etc. I am also having an MRI on Friday. I keep saying no to myself about the spinal but then I think, what if there is something else and not just lyme. I have two beautiful young boys that I want to be around for for a long time and I keep saying to myself that I will go through it for them......any way, the main reason I am typing is because I had surgery on my shoulder almost two years ago, had 2 shots of cortisone and a almost 3 weeks of prednisone because it wasn't healing and the Orthopedist thought this would help. I had no Idea that it was going to make my symptems worse at the time because at that time I didn't even know I had lyme. Now that I read what Ticker wrote to you I recall everything really going down hill after all the steroids!! Stay away from them if you can.
Hope you feel better,
H & A (Wendy) (I need to change my screen name because I'm really not angry anymore.....
I have been suffering from severe joint and muscle pain on both sides of my body...mainly elbows, hands and feet and the muscles above and below elbows and knees. this has been goning on since April, they have tested and tested me over and over for Lymes, Lupus, Rhuematoid Arthritis and the last test finally gave a positive for Rocky Mountain Spotted Fever! I do not recall ever finding a tick on me, so I dont know when or where I got it, I was treated agressively with Doxycyline for a month, but I am still suffering from the same joint and muscle pain 4 months later. The past two days though, I have noticed the most of the pain is moving to the left side of my body..especially my elbow and the left arm muscles and left foot. I am curious to know what all this is, and I really would like to get some relief, it is hard to work and concentrate on life when one is hurting so bad. I keep going to the doctor and more doctors, but it seems the only thing they find that I have is --INSURANCE! I have two older sisters that have been suffering from the same joint and muscle pain, one was dx'd with RA and the other with FM, so I dont know what mine might be, maybe something different! Hope we all can find something to help us!
I am off the prednisone now. Pain has increased in my left elbow, hands, arm and hip, with the pain in my knee and ankle's still the same...awful! I am still waiting for an appointment with an LLMD (usually a waiting list for any appointment here on Maui). My appointment with the neurologist is on the 25th (only had to wait a month and a half for that appointment). I hope they will give me a copy of my lab results (will I have to pay for them?), It get's very tireing to be in pain everyday. I have never heard of Rocky Mountain Spotted Fever. I did a lot of camping in Oregon and a little in Washington State. I don't ever recall any ticks on me or rashes (at least that didn't seem like a mosqito bite).
RMSF was first found in the Rocky Mountains(hence the name) but now days it is predominantly found in the southeastern/mid atlantic states which I am right in the middle of that in NC! why it was the LAST thing they looked for is way beyond me! The infectious disease center specialist just said the results showed I had contact with RMSF, but they still don't know if the remaining joint and muscle pain is that or something else. It may end up being fibromyalgia, with the incredible stress and all I have been under for the past year and the amount of overtime I have been working. I just wish they could figure out what it is and get me on some kind of treatment...I am so sick and tired of being sick and tired and hurting so bad!