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Old 01-27-2011, 11:13 AM   #1
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conafina HB User
6 yr old with Babesiosis

We live in the Hudson Valley in NYS and spend plenty of time outdoors. My 6 year old daughter has had Lyme twice, first at 18 months, then last May. Both times she had a clear bullseye rash and fever, and both times she began antibiotics the day the symptoms began.

She was fine until last September, when she began to get very tired and fall asleep every afternoon; had some incidents of nausea when swinging; one dizzy spell; and started to wet the bed. The bed wetting happened every time she fell asleep for a nap and often just after falling asleep at night, even when she had just peed. I took her to her pediatrician after a week of this, he ran some blood work, and she tested positive for Babesia.

Her doctor said that they only treat severe cases because the treatments are so harsh, and mild cases tend to resolve themselves. So we did nothing, and a week later she was fine.

She had a very good, happy fall, but here's what's happening now: In December she began to have crying spells (not new for her, but she hadn't had them with this frequency in almost a year); she has become clingy and anxious sometimes; the bed-wetting never completely stopped, but reduced frequency to once or twice a month; began having insomnia a couple times a week, during which she gets very distraught; had a sudden change in her pronunciation of words ending in "ar" (i.e. car), having difficulty with the 'r' sound.

Apart from these issues, she is vibrant, full of energy, concentrates well, rarely gets sick, never complains of any aches and pains, and is happy most of the time.

Her pediatrician said it could be the Babesia lingering on, but didn't recommend any treatment other than some herbs to help her emotional fragility and epsom salt baths. I am considering taking her to a Lyme specialist, but I'm trying to find out more before committing to the $1000 first appointment and potentially harsh drugs for a fairly mild set of symptoms.

What I want to know is:
1. Can the babesia disappear without treatment? If so, how long can it take?
2. Are mild cases likely to worsen in time if not treated?
3. If she has another blood test now, would a negative result mean it has been eradicated?
4. Is there anything else I should ask her pediatrician to check before heading to the Lyme specialist? (they all have a several month wait anyway)

Sorry this is so long-winded and thank you for any thoughts!

 
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Old 01-28-2011, 02:54 AM   #2
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jenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB User
Re: 6 yr old with Babesiosis

Quote:
Originally Posted by conafina View Post
What I want to know is:
1. Can the babesia disappear without treatment? If so, how long can it take?

I have never heard of this happening. This is an example of the misinformation you will get from a NON LLMD

2. Are mild cases likely to worsen in time if not treated?

Unfortunately, yes, IMHO. This is why it is imperative that you get the proper help immediately

3. If she has another blood test now, would a negative result mean it has been eradicated?

No. Blood tests are not reliable for a Lyme diagnosis. Babesia is a co infection of Lyme. This is why LLMDs rely on symptoms.

4. Is there anything else I should ask her pediatrician to check before heading to the Lyme specialist? (they all have a several month wait anyway)

A pediatrician is not the proper person to be asking questions about lyme disease. Truly, they do not understand lyme nor how to treat. I wouldn't waste precious time going down that path.
I am so sorry your daughter has this! LLMD's know how to treat children with abx. There are a number of LLMD's in and around NYC. You might try other's for a possible earlier appointment. But if you don't want to do abx there are alternative treatments as well that many children are presently using. The important thing is to start something as soon as possible. If you can't get an appointment right away with an LLMD you could start alternative while you are waiting. Many people even do both abx and alternative at the same time. My choice is Salt/C but you could do your own research. With Lyme, time is of the essence!

Wishing you all the best,

Jen

Last edited by jenj770; 01-28-2011 at 02:56 AM.

 
Old 01-28-2011, 08:52 AM   #3
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conafina HB User
Re: 6 yr old with Babesiosis

Thank you so much, Jen. I made an appointment for her this morning.
Can you tell me, what is Salt/C?
Thank,
Susan

 
Old 01-28-2011, 09:37 AM   #4
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jenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB User
Re: 6 yr old with Babesiosis

Hi Susan and welcome to this board.

The Salt/C protocol uses salt (NOT Morton's table salt but real salt. Himalayan is a good choice but health food stores have many real salt brands as well) combined with Vitamin C. However, there is a very specific way to do this by a scale up method to kill the critters. One should be very familiar with this prior to starting. Also, a buffered C would be best for kids and anyone with sensitive tummies. If you research this protocol you will find a lot of information.

Detoxing is also very important because as the critters die off they release toxins that can make us feel very ill. It's called herxing. This is actually a good sign - that whatever treatment you are using is working, but those herx symptoms can and should also be addressed as we don't want to be just wallowing in illness. So this is something else to research - what detox methods would be best for a child.

Again, I'm so sorry your little one has this disease, but now you have an appointment, so help is on the way. Please let us know how it goes.

Jen

 
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