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Old 02-10-2011, 12:56 PM   #1
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I have been diagnosed with Lymes

Hi everyone

My first post here, wish it wasn't, but hey I have to keep positive

So a quick history, I was feeling unwell, generally run down and aching middle of 2010, as I did know about Lymes I went to the doc and asked for a test, it was negative, and we just put it down to a bug, i showe dno signs of bullseye rash or any other symptons

I spend an awful lot of time in woods, but couldn't recall being bitten by a tic so thought I was OK

In August 2010 I was in Ireland and suddenly was ill, it was like hypothermia, shakes and difficulty being understood, felt so bad, but in a day was recovered, and back to normal, so I put it down to a nasty day bug

November the feelings returned, but this time with swollen elbows, so off to the doc again, he put it down to Gout, onto the Gout tablets which actually made me feel very ill, so stopped them, needless to say it wasn't gout

Another test for Lymes, again negative, but the doc persevered and I had lots of tests, blood, urine, x rays, all came back without a reason for feeling terrible

I now had a strange sensation, when shaving my right side of my face all was well, when shaving the left side it was like it was on fire, so sensitive and painful, that was so wierd

The other wierd sensation was my feet had constant pins and needles, and went from freezing cold to boiling hot

The tests ruled out liver, kidney, heart, lungs and everything else my doctor could think of, it all pointed to Lymes so another test, even though the first tests were negative we were running out of options on what it could be wrong with me

And this time the test showed full on Lymes, positive and deeply embedded
The only clue before this was the tests showed mega amounts of white blood cells

So now at least I know what I have and the treatment has started, loads of antibiotics i can't pronounce and very strong painkillers

I wake up aching all over, swellings come and go, headache is permanent, during the day it often improves which is good and then I try and do something, run out of energy after a few minutes and have to sit down

The lack of energy is bad for me, i am usually very fit, always outdoors and it is hard to come to terms with

The next stage is the mental stuff, see how far that has got in me, so it is a full scan and neurologist sessions in the next couple of weeks

I will let you all know how it goes

 
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Old 02-10-2011, 04:42 PM   #2
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Re: I have been diagnosed with Lymes

I hope you heal quickly! Hang in there!!!

Make sure to detox. You need to pull the dead bacteria/toxins out.
And take plenty of probiotics to help keep the yeast load down.

Jodie

 
Old 02-11-2011, 02:18 AM   #3
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Re: I have been diagnosed with Lymes

Thanks jojo

I have heard a lot about detox, not something that I am familiar with in this disease, maybe you can give me some pointers and what to look out for

 
Old 02-12-2011, 07:09 AM   #4
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Re: I have been diagnosed with Lymes

Hi Calstock, some of the ways of detoxing, are...sitting in a bathtub for 20 to 30 minuets. Use 2 cups Epsom Salts and 64 ounces of Hydrogen Peroxide.
This helps to pull the toxins out while the peroxide puts oxygen back into the body.

You might also look into purchasing a Infared Sauna. This is good for killing bacteria and viruses. Sweating the bad stuff out of the body.

You might also look into the Salt/C protocol. This kills bacteria and viruses also. And from what I have read it helps to pull out heavy metals out of our system.

You also need to get Probiotics to take along with the antibiotics. Beings as, they kill of the bad bacteria they also kill off the good bacteria. You can get this at a healthfood store.

Did your doc also test you for Babesia, Bartonella, Erichliosis and I am sure there are other critters where you live, that you can get at the same time as you contracted the lyme.

Did you know that Lyme is in the Syphillis family?

There are also lots of supplements you should look into using, to raise the immune system. That is the key...

Jodie

 
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Old 02-14-2011, 11:21 AM   #5
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Re: I have been diagnosed with Lymes

Thanks for all the info, luckily my doctor is very interested in Lymes, he is an outdoor type, climbs mountains for a laugh sort of bloke

We are in very regular contact and he is learning about Lymes more and more and he hasn't been afraid to ask other doctors who specialise in Lymes in England, even though Lymes is rare over here, typical of my luck to get another rare disease

One sympton he isn't sure of, maybe you lot can help, I am suffering from terrible itching, especially when I am going to bed, my scalp, arms, legs all itch and it is sometimes impossible to get to sleep, I have even drawn blood from the scratching

Is this normal sympton of Lymes ? or could this be something else ?

 
Old 02-14-2011, 11:51 AM   #6
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Re: I have been diagnosed with Lymes

Thanks for the reply Jen

I will try the baths and the q tips, Lymes is quite rare over here, but that is based on confirmed cases, so no doubt the tip of the iceberg in reality

I spend a huge amount of time in the woods here, and they are infested with deer, so I guess only a matter of chance and time before I stood a chance of contracting Lymes

Having said that, I am in the woods because of my sport which is field archery, a sport enjoyed by thousands over here in UK, and I have been doing that for 20 years and in that time I am only the third confirmed case amongst the archery society I am a member of, so while not rare probably not as common as in the US

 
Old 02-17-2011, 07:09 AM   #7
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Re: I have been diagnosed with Lymes

Im dealing with Lyme also, i cut out sugar and it helps so much with headaches and shakiness. A good cookbook is reciepy for repair it explains a lot and gives great food choices. I wish you well.

 
Old 02-17-2011, 07:40 AM   #8
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Re: I have been diagnosed with Lymes

Hi Sanders

Sorry to hear you have Lymes as well

I am experimenting with diet, I have stopped all dairy based on the advice of my doctor, now I only have Soya milk and Butter, no cheese or yoghurts or cream at all

On the good side I am losing weight, I used to have a lot of dairy in my diet, also I do believe I am benefiting from the change

Still early days in the treatment, so I just have to see how things go

All the best

Ian

 
Old 04-22-2011, 05:54 PM   #9
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Re: I have been diagnosed with Lymes

The baths really do work. sometimes I can come out of tub without any hurting at all..That only last about an hour, but it feels so good...thanks so much

 
Old 04-24-2011, 04:18 AM   #10
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raj1970 HB User
Re: I have been diagnosed with Lymes

Hi Calstock,

Sorry to hear that you have been diagnosed with Lyme and I wish you a speedy recovery.

I'm also from the UK and ever since returning from Canada in October 2010, I've been suffering terrible neuro symptoms.

I've seen two neuro's and had MRI's (which at the moment are clear) but I fear that I have either MS or Lyme or both!!

Do you know of a good LLMD?

Thanks
Raj

 
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