My daughter is 17 and has had severe nausea and vomiting on a daily basis for a couple of years along with severe body pain and inability to sleep. Has anyone else with Lyme encountered this severe nausea and vomiting? We have tryed everything, and need help so she can be a kid for once and not have this disease ruin the rest of her life, its already been 6 years. Please help!
The following user gives a hug of support to mamastephania: jojo (03-18-2011)
For the first four years she was undiagnosed having every gastro test in the world done, 2 endoscopys, 1 colonoscopy, stomach emptying, ultrasound on stomach, x-ray on stomach, blood tests, medications of all sorts, of course everything looked fine in tests. After the diagnosis, we've tryed a pic line for 30 days of antibiotic, naturpaths with IV's, oxygen chamber, currently working with an Iridologist, nothing is helping yet. Her medical doctors act like they don't really believe the diagnosis because we live in Idaho I think, and more than one has said where would she have gotten Lyme disease? Last week she was in the hospital getting IV's for dehydration(even though she drinks 32 oz. of water a day) and morphine for the pain, that didn't take it away. So frustrating!!
I had nausea and vomiting until I was treated for a few years then it went away.
Thirty days of IV is not long enough. Now way is that even close to being long enough.
IF I were you I would get her to a Lyme Specialist. (Lyme Literate Medical Doctor). Even if that means flying her to some one.
She most likely is getting dehydrated from vomiting, sweating...
Lyme Disease is all over the world. It does not know boundries.
And as Jen suggested detoxing is VERY important to help rid the body of dead bacteria.
From where you are sitting you can look for a Lyme Support Group in your city, county, state. There usually is a contact person. I would see if they can suggest a Lyme Literate Medical Doctor, (LLMD) in your area. Sorry we can not give out names on the board.
Thank you for the ideas, that is the most frustrating part is finding a LLMD. I'll look for a support group in our area and see if that will help. What did you have to do before you were completely healed?
Hey jojo, was unable to find out how to send u a personal message, so posting here..
I have all the symptoms (terrible thing) including the gastro, was on rocephin 1 month, then switched to doxy by now for 6 months and keep taking doxy.. herxing constantly but cant get any better and its very discouraging so want to ask u..
you say the gastro symptoms were gone after 4-5 years of treatment.. were they just gone suddenly, was the improvement quick or it was slowly and gradually over (months)years?? When u noticed the improvement for first time??
Now 7 months of treatment only to be more ill than ever!!
Thanks for the info JoJo, she has had a lot of tests done as I mentioned before, mostly just to see what they could find. Previous drs. mentioned fibromyalgia, chronic fatigue, they checked her intestines for blockages through those tests, she's had an MRI, and CT scan, because I'd heard of a friend having severe nausea and going the gastro route and never finding anything, and finally someone looked outside the box and noticed a tumor in her head pressing and causing nausea, it was removed and she's been fine ever since. All the tons and tons of tests and blood tests have all come back normal except the Western Blot. Lately she has been saying she can't see as well as she used to, and I can tell the enamel on her front teeth is wearing thin from all the vomiting. It scares me to death, I've just got to find someone who understands this disease and doesn't just kind of look at us sideways when we mention she has Lyme. Thanks so much for any suggestions and advice you can give!
I don't know if anyone has mentioned this to you. But you could try calling Igenex Lab, in Palo Alto Ca. Possibly they will give you a name for a Lyme doc.
Also there are alternative treatments for Lyme. You might also read up on the Salt/C protocol. It would help keep her hydrated. This is not table salt that is used in the protocol. and you use buffered vitmin C.
My heart goes out to you and your daughter. This is a very tricky disease. To get to a true lyme specialist they will also help weed through the co-infections, if she has any.
The Following User Says Thank You to jojo For This Useful Post: mamastephania (03-25-2011)
First of all sorry Stephanie is going threw all this but it sound just like my story i was bit by a tick in Waco Tx. It was on me for a matter of weeks before detected, because it was in the bend of my knee in the back i felt of it thought it was a mole, till it got so big i pulled it of an it was a fat!!!!!! tick. I went through the same thing nausea i could be in the middle of a shopping center an would have to run to the bath room are out the front door to well u know, This went on for 4 years ended up in hospital for a week couldn't hold anything down pain oh my, The leg the tick bit me in would just give way when walking as if i had no leg there. No one new what was wrong I was bit in 1998 in 1999 is when all the horrible things started was sick all the time fever, pain, aches. heart palpatation chest pains. sweating, chills. Finally got tested for Fibromyaliga so i have that but i knew there was more read about Lymes Rhumy said no you where in Waco it couldn't be Lymes. Then after 6 years no one would listen had heart issues found out my main attery was 95% blocked had to have open heart surgery no one could understand. I had no health problems was only 42 finally talk my gp into testing for Lymes an guess what boom i have Lymes 11 years of begging for ppl to test but just because i was in Waco when i got bit, they wouldn't here of it. So good luck an keep at them you will find the right doctor.