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Old 08-30-2011, 09:49 AM   #1
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Has Anyone Out There Tested 0 Bands on Western Blot & Later Tested Positive?

I would like to know of testimonies of anyone who may have had zero (0) bands on a Western Blot but then with retesting had Lymes confirmed. I need this information to pass on to my infectious disease doctor who is very knowledable of Lymes, but concerned that I do not have any bands from the Western Blot Test. Thank you in advance. I have read the "newbies" page. Thank you for sharing. So very much appreciative.

 
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Old 08-30-2011, 07:39 PM   #2
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Re: Has Anyone Out There Tested 0 Bands on Western Blot & Later Tested Positive?

I have heard of others who tested negative only to test positive in the future. One individual who tested 4 or 5 times and was encouraged to test by her lab tech & she finally tested positive on the last time.


Personally i have tested negative for Lyme and all the co-infections, but I show MANY of the signs of Lyme and Babesiosis.

 
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Old 09-02-2011, 09:15 PM   #3
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Re: Has Anyone Out There Tested 0 Bands on Western Blot & Later Tested Positive?

There are no set of rules when it comes to Lyme and co-infections. How it affects one person is not how it could affect another. alot of it depends on different strains of the bacteria. Beings there are many people that come to our country and us to other parts of the world. We are swapin different strains.
Then there are different strains of Bartonella, babesia and on and on. So testing is defnatley unreliable. Plus the B.B. bacteria hates oxygen. So it imbeddes more into the tissue and bone and out of the blood stream. So another reason for negative testing.

I was told I did not have lyme. I was told my test were negative. I was tested with the Elisa test several times, negative every time. The Luate, negative with that...westerna blots that never was positive for the CDC. And each time it would pull up a different band. After 11 years of treatment FINALLY I tested positive on a Westerne Blot. (according to igenex) Still not enough for the CDC.

Lyme Specialist go on symptoms. And infectious disease docs are just as bad to get the right treatment from, as a general practioner. YOU need to see a Lyme Specialist.
Kind of like, you wouldn't go to a Ear doctor if you had a foot problem.

You could keep testing negative all along and never get treatment. Cause the run of the mill doctors do not want to lose their license for long term antibiotic treatment.
Also a good LLMD will help you to get on the right supplements your body needs too.

And of course many detox methods and things you can do on your own. Everyone that deals with a chronic illness needs to sit and read as much as they can. We have to become our own advocates!

Hope you find the right help soon!

Jodie

 
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Old 09-20-2011, 05:29 PM   #4
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Re: Has Anyone Out There Tested 0 Bands on Western Blot & Later Tested Positive?

Agree with other posters. You need an LLMD, otherwise you're going to be doing most of the work : (

I've heard that after initial infection that it can take several weeks before it is detectable in the blood test. It does make a big difference which lab you use. Also, just because the lyme test may truly be negative, it does not rule out other tick-borne diseases such as babesia, erhlichiosis, bartonella, etc.

Our MD also tests for thyroid dysfunction, and celiac screening to cover the basis.

 
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