Originally Posted by lala52
I agree with Jenn that if Igenix said you have lyme I think you probably do. I would like to know what your symptoms were of the encephalitis and the meningitis. Were you confirmed that you had those illnesses and how did they diagnose them. LaLa
Thank you for your response.
My symptoms of the meningoencephalitis started with a severe headache and then my vision and balance were off. I had these symptoms for a few weeks while i was in Mallorca. I then returned to the UK and the following day took two grand mal seizures. I was sent home from hospital with suspected epilepsy. I was so weak and i couldn't put my chin to my neck. I ended up going back to hospital where they asked me if i thought i was ill enough to be in hospital.. YES. They then did a lumber puncture and an mri scan and made the diagnosis from there. An mri scan i had a few days earlier when i was in hospital with the seizures was normal. I was in hospital for a little over a month with this. I deterioted and i have lost my memory of most of this time. I was hallucinating alot. I couldnt eat or drink without vomiting so was given fluids though IV. I went from 8 stone to 6 stone in 2 weeks. I was treat with acycloviar, anti-fungals, anti-virals and steroids. We don't know which ones
My symptoms following this episode have not been so serious. In December 2010 i started having problems with my vision (blurred and doube vision). I was sent home from accident and emergency department twice being told nothing was wrong. Turns out i had inflammation in my brain again so i was back in hospital on IV steroids for a week. My balance was also affected.
In August 2011 i started to realise that there was something not quite right with my vision again. I went to see my doctor who arranged for me to go see my neurologist. However, a day later, my face was tight all morning and i didn't think anything of it. Then, i caught a glimpse of myself in the mirror and realised that half of my face was paralysed. I called my doctor who told me i needed to go to the surgery. He assessed me and i had to go over to hospital where i was further assesed and told i would need to stay in hospital. They did an mri scan which showed inflammation in my brain again. So i as given IV steroids again.
I have had 3 ELISA tests done and they all tested negative.
My consultant wants to treat me for an autoimmune disorder but is not sure which one.
We have no idea what has been causing this any of the times. Lyme could possible be the answer.