Hi everyone, I am new here so I will introduce myself. My name is Shirley, just call me Sheryl, "don't call me shirley", lol Some of my story:
I am almost 72 years old, I started having "nerve pain" symptoms of sarcoidosis in 2006. Which I had no idea that is what it was.
I contacted Lyme Disease in 2009 and started having lung and sinus infections in early 2010. I started losing feeling in my legs in late 2010 and was diagnosed with neurosarcoidosis.
None of the Drs. I went wanted to hear or even listen. when I told them I had Lyme Disease and only one prescription of Doxyclycine.
They did a lamendectomy, which really messed me up. They put me on steriods (which, from what I have read) is the worse thing you can do for Lyme Disease.
Long story shorter: I am totally dependent on others for my care. I can't walk, drive, take a shower by myself, both bladder and bowel incontinent. I have no feeling from my bra area to my toes except for heaviness and tingling numbness. This is not living.
I think my new Dr. is going to help me do the Marshall Protocol. I will find out next week. If she will prescribe the meds I'm going to do it. If she doesn't I'm going to keep looking till I find a Dr. and then I will start.
Is there anyone here doing the MP or do you happend to know anyone who is?
I haven't been doing much reading on Lyme disease since all my doctors are focusing on the sarc so I know a lot about that; this is my theory:
I've had "lung infections" many times over the years and my doctors told me to "quit smoking" seemed as if everything I had, even a hangnail was caused by my smoking. I was very protective of my "friend" "nico" is what I named him after I quit (another long story) Anyway I never heard the word "sarcoidosis" but I do remember one of them saying something about my immune system. So I'm assuming it began in my lungs, as it usually does. It kept going in and out of remission until I got Lyme Disease .
I had a serious sinus and lung infection. I went to the acuepuncturist and natural health Dr. in Garberville, CA I no longer trusted my regular Dr. because she would not listen to me when I had a horrible rash and the tick head still in my body
She said it was an alergic reaction She also said we didn't have the ticks there that carry Lyme Disease. I told her I had been doing a lot of research about Lyme Disease . and said she wish her patients would stay off the internet!
Then after I made her take blood and she told me I had Lyme disease she would only give me one prescription of Doxyclycine. When I started having symptoms shortly after I finished the prescription and went back to her she told me I was going to ache and feel like **** some of the time but my immune system would take care of whatever came along and I would be fine
. That worked for a while and then my sinus and lungs were in pretty bad shape when I went to Dr. Sterns and he gave me another prescription for doxycycline but that was in Nov. and I contacted Lyme in March so the borriolie fudiotchies, lol ( Have no idea how to spell what was multiplying in my body)
. Any I have done a lot of research on the MP and I believe it is my only. I know it's a life time committment but so are the "batteries" conventional medicine has to offer to cover the symptoms and prolong suffering while doing nothing for Health. I'd rather kill the "lil bastards" this is WAR. lol
This probably doesn't make sense......,my brain fog is getting worse too
Thanks for being here.