Could someone please tell me how Lyme disease typically progresses if left untreated? I'm skeptical that I even have Lyme, however, I think I am going to see an experienced LLMD just to rule it out (or not). Here's the thing - if I got bit by a tick back in the late 80s and I was never treated, wouldnít I be feeling much, much worse right now over 20 years later? Thing is, I have the same chronic headache pain and pressure, and jaw pain and pressure today that I had over 20 years ago. It has not got better or worse. I would assume if I had Lyme or a tick infection, wouldnít my symptoms have progressed to the point that I would be feeling horrible right now? Or am I wrong? It just seems so many people with Lyme keep getting progressively worse when not treated. I just want to know if I am making the right decision in seeing an LLMD for possible Lyme.
Those symptoms sound like lyme, but I highly doubt that you have it. From my experience, which I only have been battling this for 3 years, my symptoms progressively got worse. It all started with numbness and tingling in my upper and lower extremities. I didnít think much of it, and figured it would go away but after a month I went to the doctors to get it looked at. As the years progressed so did my symptoms. There was a point where I ran a 104 fever for 2 days and my body temperature hasnít returned to normal. Now my normal temp. is around 99.5 to 99.8. I also lost my vision, went from 20/20 to wearing bi-focals, like you said the pressure in my head, ringing in my ears, drowsy, dizziness, vertigo, neurological and muscular pain, extreme stiffness in my neck, if I look downward with my head it feels like someone is pulling on the lower part of my spine upward with a string, feels like my whole body is swelled especially my knees and my elbows which are always hot to the touch. All these symptoms I have progressively gotten worse over the course of 3 years, which in your case itís been over 20 for you. I also listened to a segment I found about lyme disease and the guy suffered for 5 years and was in an assistant living home! This was back in 1990 when the knowledge of lyme wasnít well known. He went on to say that he couldn't drive, his motor skills were really bad, couldn't talk, and a multiple of other symptoms. He went on to become a specialist on it and said that everyone he met, when he was suffering, with the severity of his symptoms have died. The segment I listened was broadcasted on. "Coast to Coast AM" the host is George Noory, the gentleman he had on the show who was infected is named "Tom Grier" and it aired September 14 2011. I would highly recommend everyone who is curious or is suffering from lyme disease to listen to this. It is very informant. Now back to what I was saying. From my stand point I donít believe you have lymes, but I donít have a PHD so I just recommend that you get tested for it just so you can rule it out. Hope I was some help on this. Good luck!
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I was recently diagnosed through a blood test through IGENEX and it came back positive. I am Australian and was infected in 1997 on a Tour that visited a Colorado Zoo. I had no noticeable symptoms up until around 2005 when my son was born, and even now although I have alot of annoying slightly painful symptoms (and of course fatigue) I am not crippled, blind or in extreme pain. I thought I had Fibromyalgia. Often with Lyme it takes a trauma or for your immune system to be down for you to start showing obvious symptoms. You may have Lyme and no co-infections and/or a good immune system. I would not assume you don't have Lyme because you are not in extreme pain or have rapidly deteriorated. The nature of this beast is to creep up on you and one thing another another you start to feel like there is constantly something wrong with you. Left untreated it will get worse though.
Thanks Dayna. I am going to get tested by an LLMD who uses Igenex labs just to be certain. As the previous poster indicated, I don't believe I do have Lyme, however, I'll pay for the lab work just to be certain (or as certain as I can be). I'll let the LLMD make his determination based on my symptoms and his evaluation.
Lyme can lie dormant for many years and then be triggered into surfacing by a very stressful situation, surgery or some other event. I know many people where this was the case, myself included. My symptoms didn't appear until 20 years after the bites. The full blown infection was triggered by having surgery and while still in the hospital. This isn't to suggest that you have lyme and it's good that you are sleuthing it out further. I'm just offering this as further info. as to how lyme can sometimes present.
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If I don't test positive for lyme through the Igenex testing, I wonder if the LLMD will try a course of antibiotics in order to see how I react? I guess I'll find out in August (he is booked until then).