Hi all, I am new to the board and wanted to introduce myself. I'm a 46 yr old wife and mother. I have a wonderful husband, beautiful daughter and 2 great step children. I also have Lyme Disease.
I started having trouble in 1999. My vision got totally screwed up and I started seeing double. About the same time I started experiencing the most odd sensations...felt like fleas on me all of the time. Well we had an inside dog, but no one else was bothered. I went for an eye exam which showed optic neuritis. After more attacks and multiple test and expense I was told two things.....1. I tested positive for lyme disease (we had been camping in New England about a year and a half before) and 2. I had possible/probable relapsing remitting MS.
At the time the MS diagnosis scared me worse than the Lyme. I had 28 days of IV rocephin and told that's it. Lyme is gone. Well long story short...nope! It is now 12 years later and I still experience symptoms! Still have the probable diagnosis of MS, because they have not found lesions on my brain, and am told by most doctors the Lyme Disease is cured. I beg to differ on that one. What I'm finding out is that if caught early on, yes...but after it gets into your nervous system (optic neuritis) not so.
So here I am, sitting up at 12:30, exhausted but unable to sleep, being sick of being sick and feeling like a hypochondriac. Like I'm crazy. I hate it for anybody else out there but I do hope I've found someplace where I can be among friends and people who understand.
Nice to meet ya!