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Old 06-21-2012, 12:27 PM   #1
Join Date: Jun 2012
Location: Warner Robins, GA
Posts: 2
leggylady HB User
Angry Dermatomyositis and Lyme Disease

I don't know which came first, but I've been diagnosed with both of these diseases. It's been over a year, and I still don't feel good. Taking prednisone - and getting fat! Any one with long term prospects and what to watch out for?

Old 06-22-2012, 02:43 AM   #2
Join Date: Aug 2007
Location: NYC
Posts: 1,436
jenj770 HB User
Re: Dermatomyositis and Lyme Disease

You''re certain the Dermatomyositis isn't a symptom of Lyme. Right? I ask because taking steroids, like Prednisone, could actually make your Lyme worse. Are you seeing an LLMD (Lyme specialist)? If not, I would strongly advise this. See the post at the top titled "Lyme Newbies".

Wish you the very best with this.


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Old 06-28-2012, 07:40 PM   #3
Join Date: Jun 2012
Location: Warner Robins, GA
Posts: 2
leggylady HB User
Re: Dermatomyositis and Lyme Disease

I went to my Dr. this week, because I was really feeling bad. He re-checked for Lyme, but called today to say I had no current Lyme disease. However, my dermatomyositis is worse. I've had break-outs this week, and pretty bad edema in my feet and legs, and tightness in my chest. He put me on a "water pill," and it seems to have at least cleared some of the fog from my head. I hate it when I can't think. Thank you for your response. Good luck w/ yours.

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