Well where to begin, I am new to board.. so hope I will not babble on forever. OK I am 54 with all the symptoms and one time or another.. of Lyme.. and have had them from age 30. I have been tested for lyme many times.. lupus, MS, told I had FM, fibro,, and my favorite.. it was all in my head! Now my latest test show I at some point did have Lyme and rocky mountain spotted fever~ Not active mind you.. just that I had it.
My symptoms are so bad now it is hard for me to do just normal every day stuff.. like feed the dog.. it hurts ! I have weird seizures go into a shaky all over fit. Doesnt last long.. but scary. I have vision issues,, can not tolerate the heat, light bothers me. gives me eye pain. Have headaches more days than not. Tho they don't last long if it is a morning headache that is. Have insomnia,, life pretty much sucks.. my 62 year old boyfriend told me I was holding him back! How nice I cant even keep up with a 62 year old ..lol
So from reading here I see high does of doxy are the norm.. my doc gave me one months worth of 100 mg twice a day. Will this help? He was not sure it would..
Wondering where you find lyme literate md's.. and why would so many lyme test show negative? I should have asked my doctor,, I know. Not sure what test he used either.
So guess what i would like is questions to ask doctor.. and LLMD name in arkansas.
Or for somebody to just shoot me and put me out of my misery!